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Type: Posts; User: AlphaWolf06

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  1. Replies
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    Anyone else had this?

    Hi,

    I was just wondering if anyone else ever experienced this weird sensation I get in my skin sometimes. Sometimes I get a patch of skin, sometimes on an arm or a leg, where it just aches. The...
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    Is there enough support?

    Hi,

    Just a general question for people from all over the world. Do you feel that there is enough support for people with lupus? I never see or hear much about lupus in the UK but I was wondering...
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    Fed up taking medication

    Hi everyone,

    I just wanted to let off a bit of steam if that's ok. I've been taking medication for my lupus for 4 years now and I'm just a bit annoyed that my rheumatologist hasn't been trying to...
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    New questions

    Hi all,

    If you can spare a few minutes and answer these questions for me I would be very grateful.

    1. Has your lupus affected your social life?
    2. How did your friends and family react to your...
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    Hi Samantha, Yeah, you can private message me...

    Hi Samantha,

    Yeah, you can private message me if you've got any more questions.

    Good luck with your project,

    Harriet
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    Hi, My name is Harriet. I am also doing a...

    Hi,

    My name is Harriet. I am also doing a project on Lupus for Social Anthropology at university but I also have lupus. I'd be happy to help you with your paper.
    1.) December 2005
    2.) I had...
  7. Thread: Me again

    by AlphaWolf06
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    Me again

    Hi all,

    I've got some more questions.

    1. Once you were diagnosed how did you go about finding more information about your type of lupus?
    2. Do you find the internet is a valuable source of...
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    Hi, The other forum wasn't called LUpus...

    Hi,

    The other forum wasn't called LUpus Patients Understanding & Support was it? Just out of interest.

    Harriet
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    I've got some more questions...sorry

    Hi, me again,

    I was just wondering how easy/difficult you found joining the WHL forum. I tried to join another one before this one but it kept telling me I had entered my date of birth in the...
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    Diagnosis question

    Hi all,

    I was just wondering how you felt when you were first diagnosed with lupus. This is to do with my project but I am interested in other people's experience as well. It makes me feel like...
  11. Hi, anyone interested in helping me with my project?

    Hi everyone,

    I was just wondering if anyone would be interested in answering a few questions I have come up with for my project at uni.
    They are as follows:

    1. What type of lupus do you have?...
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    Hi Lauri, Thank you. Everyone on here seems...

    Hi Lauri,

    Thank you. Everyone on here seems to be so kind. I'm glad I've found somewhere where people can share their feelings and coping strategies. It's very reassuring to know you're not the...
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    Hi Marla, Thank you, that's very kind of you. ...

    Hi Marla,

    Thank you, that's very kind of you. What subject and age range did you teach? I'm going to speak to my tutor and find out exactly how I need to go about this project because I want to...
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    Hi, I'm new

    Hi everyone,

    I'm Harriet, I'm 22 and I was diagnosed with SLE in 2005. I won't go into detail but it wasn't pretty. Anyway, I thought I would join this group to get to know people who have...
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