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    If you donate, Write in the comments where you...

    If you donate, Write in the comments where you are from (Lupus forum) :)
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    My 3 year old cousin has Leukemia :(

    I haven't posted here in a while but Avien my cousin had a recent diagnosis of Acute Lymphoblastic leukemia.
    ...
  3. Thread: Discoid lupus?

    by Maegan
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    thank you for all the useful info! I went to...

    thank you for all the useful info!

    I went to the doc today and she poked at it and said she thinks its a cut or a burn. WTF! Its on my butt! I think I would have remember if I cut or burned it!...
  4. Thread: Discoid lupus?

    by Maegan
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    Discoid lupus?

    I found this on my butt the other night! It doesn't itch but its dry and feels scaly. It is slightly raised. Also I only have one and not multiple. I have an ulcer in my nose at the moment and was...
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    Does sunscreen burn when you apply it?

    Sunscreen has always burned when I put it on my face. I just found out this isn't normal. Anyone else s face burn when applying sunscreen?
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    So my results are in. My vitamin D is low (22)...

    So my results are in. My vitamin D is low (22) and my A1c is elevated (6). She put me on 1500 of vitamin d a day and told me to eat more lean meats, fish, yatta yatta yatta....I think my A1c is a...
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    I went back to the docs and they are checking my...

    I went back to the docs and they are checking my A1c, TSH and T4, sedimentation rate, non-automated, my vitamin D and for the epstein-barr virus early antigen antibody.

    I was working outside in...
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    I was also wondering about my Rheumatoid factor....

    I was also wondering about my Rheumatoid factor. It says this on one site:

    "Rheumatoid factor though is not normally found in the general population (only found in about 1-2% of healthy people)."...
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    I hadn't eaten yet that day so it was a good 8...

    I hadn't eaten yet that day so it was a good 8 hours or more since I had eaten.
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    makes perfect sense thanks!

    makes perfect sense thanks!
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    So i actually SAW my results. I can't understand...

    So i actually SAW my results. I can't understand some of them but did they test my thyroid at all here? I don't see RNP anywhere and thats one thing that was positive last time. Do I have to special...
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    no they didnt do a urinalysis. I am not on ANY...

    no they didnt do a urinalysis. I am not on ANY meds. I don't get blisters but I get headaches, and joint pain.
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    Doc said test results are normal...Grrr

    You would think I would be happy but this just puts me back to square 1.

    2 years ago my ANA was positive and my RNP was 1.3. At this time I had an infestation of bed bugs which is REALLY gross...
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    Just complaining....

    OMG i feel like total crap today! I woke up with sore joints all over and an achy body that lasted ALL day and I am totally exausted. PLUS now I feel like vomiting.Not to mention my ankles and...
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    It wasn't a reaction to the sun I don't think. It...

    It wasn't a reaction to the sun I don't think. It was BEFORE i went to the ocean. I don't remember what cream it was. I think it was some kind of cortizone cream. I don't get rashes when in the sun I...
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    Discoid lupus and then SLE?

    I am in the process of being diagnosed as having SLE and for some reason I remembered when I was in high school I had a rash all over my upper torso that looked EXACTLY like discoid lupus. I got...
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    Yeah that is a bummer. Everything I have read...

    Yeah that is a bummer. Everything I have read says a elevated rnp is mctd and nobody with an elevated rnp is "heathy". I know there is something going on and I guess its going to take some time to...
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    I def. Have more than 4 lol. So how do people...

    I def. Have more than 4 lol. So how do people even know if they have lupus and why do they do blood tests if they mean nothing anyway?
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    Yeah its kind of annoying to not have answers. A...

    Yeah its kind of annoying to not have answers. A normal range is up to .9 I think and mine was 1.3 so I guess that isn't too high but high enough to where it isn't normal. My other question is...
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    1.3 RNP and positive ANA?

    I know that ana could be in healthy people but what about rnp? What IS rnp and what does a higher than normal rnp tell me? I know it is connected with MCTD but that doesn't mean that's what I have...
  21. Thread: Lupus and OCD

    by Maegan
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    Lupus and OCD

    Does anyone here have OCD along with lupus?
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    no i dont feel myself getting bit. and i get...

    no i dont feel myself getting bit. and i get these hives when i am at home too!
  23. thank you! well the derm says ALL my hives are...

    thank you! well the derm says ALL my hives are bug bites which is rediculous. And they dont know about all my other symptoms, only my rhuemy does. I guess we will see when i go back to the doc
  24. My biopsy report....help me read this in english please!

    so shes saying its consistant with bug bites but there is a question mark before insect bites in the clinical data?

    word for word


    Diagnosis: Right arm punch: features consistant with...
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    I want to scream at my Derm tomorrow!

    She called me today about my skin biopsy and shes like "the pathology report said that your hives are consistant with big bites so if you stay away from animals it should resolve on its own" WTF! I...
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