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Type: Posts; User: YollyDolly

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  1. Replies
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    Thank you so much! I want to write back a...

    Thank you so much!

    I want to write back a whole huge message but I think I simply get it.

    I just have to stay strong and I can always deal with it and some people are so much worse off. One...
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    If I am not babysitting for Debs gorgeous kiddies...

    If I am not babysitting for Debs gorgeous kiddies whilst she is in hospital I will see if my Dad wants to come for a drive this time :-)
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    Really enjoyed meeting you all today. Sucked Debs...

    Really enjoyed meeting you all today. Sucked Debs couldn't make it but if we meet once a month/six weekly you guys sill meet her soon enough. Thanks to her for getting the ball rolling for us to meet...
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    Looking forward for tomorrow. I'll be with...

    Looking forward for tomorrow. I'll be with someone so that's how you might spot me out. Blonde hair and a fringe but I may have the fringe pinned back so I'll see you guys tomorrow! :)
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    Yay can't wait and yes i think Saturday is the...

    Yay can't wait and yes i think Saturday is the plan! :-) As i know a few people from the FB group that may be able to come but only on the weekend.
    Are we meeting at the DOME cafe though or the...
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    Hopefully as many as possible and then we can all...

    Hopefully as many as possible and then we can all exchange contacts and try meet up once a month or something :)
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    Thanks amazing job!! I know I strongly think the...

    Thanks amazing job!! I know I strongly think the body can do enough damage to itself and that we have no control or say over so why do any more damage. Good on yyyooouuuu !!!!!
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    ok smart one :) thanks, will do ... excited!!...

    ok smart one :) thanks, will do

    ... excited!! :)
  9. Replies
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    Sounds great :) We'll PM messages...Looking...

    Sounds great :) We'll PM messages...Looking forward to it!
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    My col étude have been great so far as this is...

    My col étude have been great so far as this is the first time it's all really flaring up since I was first diagnosed and most of tha family that I inform about it are pretty understanding but not...
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    I think city, like Perth city area is a good idea...

    I think city, like Perth city area is a good idea because it seems most central and easy to get to for everyone to get to like I am expecting others that want to meet up might live scattered...
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    Haha lucky, my Lupus was diagnosed last year as I...

    Haha lucky, my Lupus was diagnosed last year as I finished my year 12 TEE and I want to start Uni next year :) thanks for your comments :)
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    Guys :) Debstar, my sister has started...

    Guys :)

    Debstar, my sister has started planning a meet up on the Lauries Lounge Forum section, the thread is titled 'For all the Sandgropers Keen to Meet Up' or something like that. Lets plan it...
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    I am with where she is :-)^^^^^

    I am with where she is :-)^^^^^
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    It's so hard to know what is a link between the...

    It's so hard to know what is a link between the drugs and side effects or what is just a coincidence
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    Thanks. Yeh I knew there was one type of Lupus...

    Thanks. Yeh I knew there was one type of Lupus that partiulary just effected the skin as an organ, thanks fir naming it, but since I have SLE I was just wondering if it was the medicines side effects...
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    Side Effects on Skin?

    I know Lupus causes ally of effects on the skin, I know directly from the Lupus but also as side effects from some medications. Has anyone got itchy skin, the last few days, especially at night it...
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    Haha not to laugh but that is kinda funny. I...

    Haha not to laugh but that is kinda funny. I understand you then, but that sucks and is so annoying that the Lupus actually can cause the chemical unbalance like how can that be fixed, will my anti...
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    Hey :) ok I think one of us needs to come up with...

    Hey :) ok I think one of us needs to come up with a date time and place haha. Where a bouts in Perth are you guys, I am Bayswater or Woodvale? Thanks
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    OMG well the so called depression I think I am...

    OMG well the so called depression I think I am experiencing started a little after I started the plaquenil. I wonder if anyone else experiences this because maybe there is a link? I had Sjogrens...
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    Sticky: I was really sensitive and Burnt easily and was...

    I was really sensitive and Burnt easily and was effected long after being sun burnt way before I was diagnosed with Lupus but now I am thinking it may be that having had Lupus imam guessing forever...
  22. For now I'll just reply, I think Lupus forces us...

    For now I'll just reply, I think Lupus forces us to look after our bodies which is a good thing, I should snooze now and will chat a lot tomorrow. Thanks! You are very helpful!
  23. Psychology of Lupus and 'dealing with it'

    DEFINITELY HAVING A WWWWAAAAAAAA WHY ME MOMENT. Just reading around the forum on another night of yet not being able to sleep and I'm not going to go do anything stupid or anything but it really...
  24. Makes heaps good sense especially the second last...

    Makes heaps good sense especially the second last paragraph. Thanks!
  25. Hi. I'm from WA Australia and a lady I spoke to...

    Hi. I'm from WA Australia and a lady I spoke to over east said her daughter was diagnosed with an auto immune disease (not Lupus) after the IUD was inserted and as I can recall apparently the doctor...
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