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  1. I also have a prominent butterfly rash, and even...

    I also have a prominent butterfly rash, and even then the rheumy made me go and have it biopsied to be 100% sure. And I know I meet the criteria to have systemic, but I guess she thinks that my blood...
  2. Yes, it's very frustrating... But I am trying...

    Yes, it's very frustrating...
    But I am trying to tell myself that it really changes nothing having an "official" diagnosis...
    My rheumy tried to start me on Plaquenil, but said that since I have...
  3. How long did it take you to get the "official" diagnosis?

    Hey everyone!
    Just a curiosity on how long it took to get your "official" diagnosis...
    I have been to 8 different specialists in the past 3 months, and all I know is I "definitely" have skin lupus...
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    Ok, so after speaking with many doctors again,...

    Ok, so after speaking with many doctors again, they all agree that Paraguard (What they call the copper iud now) is the best option for my health. It is a lot harder to find an ob/gyn that will use...
  5. Thread: Mctd?

    by NurseSusan
    Replies
    4
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    277

    No, I got my records from the heart hospital I go...

    No, I got my records from the heart hospital I go to... I have a long history of heart arrhythmias, that were undiagnosed for 10+ years.
    I'm assuming they over time caused heart damage? I'm not...
  6. Thread: Mctd?

    by NurseSusan
    Replies
    4
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    277

    Oh ok... Thanks for the info. No, I asked what...

    Oh ok... Thanks for the info.
    No, I asked what other treatments are there, and she said that she only gives steroids with a very bad flare or if you are in end stage organ failure. She didn't offer...
  7. Thread: Mctd?

    by NurseSusan
    Replies
    4
    Views
    277

    Mctd?

    So, I went back to the rheumatologist today... Completely expecting her to say, "You have SLE."
    But, of course it couldn't be that simple. (Things with me never can be I guess)
    She said that I...
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    IUD/Birth Control help

    Hey girls!
    I need some help. I am very new to this but am being diagnosed with SLE and possible other AI disease, but my rheumy said I need an IUD ASAP.
    I am getting married in a couple of months...
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    Hello! I am 24 years old, and I started having...

    Hello!
    I am 24 years old, and I started having blood in my stool when I was 16... Bright red and it will last for weeks at a time. For years, I was told that it must be hemorrhoids and it was...
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    Hello! I have been suffering from this for the...

    Hello!
    I have been suffering from this for the past few months. It especially happens when I am under stress. Also, I will go to sleep and it will be minimal or not even noticeable and I wake up...
  11. Thread: My Story

    by NurseSusan
    Replies
    2
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    537

    My Story

    Hello WHL!
    This is my first thread, although I have read so many of your questions and comments over the past couple of months.
    They have helped me on my journey, so I thought I'd share my story...
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