Search:

Type: Posts; User: Adventure Racer

Search: Search took 0.00 seconds.

  1. Mountain dreamer -- I haven't heard of the...

    Mountain dreamer -- I haven't heard of the infusion taking 5 hours. Typical dosing is 1 to 1.5 hours. IF you have some reactions, then they may slow down the drip to take 2-3 hours. As for costs,...
  2. I currently take 15mg prednisone, 400 mg...

    I currently take 15mg prednisone, 400 mg plaquenil, 20 mg methotrexate, and the benlysta.
    i have SLE, sjogerns, and raynaud's.
  3. Replies
    7
    Views
    934

    Thanks everyone!!

    Thanks everyone!!
  4. Replies
    7
    Views
    934

    Pleurisy treatment

    For those of you that have been officially diagnosed with pleurisy, what was the specific course of action prescribed? I went to urgent care today and the doctor said I had pleurisy,and just to take...
  5. Replies
    10
    Views
    547

    Not sure about getting it in Australia --- but my...

    Not sure about getting it in Australia --- but my derm recommended Anthelios 60 fluid with matte finish. I love it!!! Non greasy, doesn't smell, doesn't feel like I am wearing sunscreen at all ----...
  6. I am taking Benlysta. I've had 4 infusions. Most...

    I am taking Benlysta. I've had 4 infusions. Most of my Benlysta buddies say it takes 8-9 infusions to see much difference. The first few days after infusion, I am exhausted. But in general, I *...
  7. Replies
    14
    Views
    1,588

    I was able to get $7000 co-pay assistance from...

    I was able to get $7000 co-pay assistance from Benlysta. My doctor's office actually informed me of the Benlysta gateway program and filed all the paperwork for me. The $ can only be used for the...
  8. Replies
    14
    Views
    1,588

    I am on Benlysta, and have had 3 rounds so far....

    I am on Benlysta, and have had 3 rounds so far.
    pls feel free to message me if you'd like to talk about it. :)

    FYI- the pharmaceutical company is helping me cover the extremely high co-...
  9. I have had three rounds of Benlysta thus far. ...

    I have had three rounds of Benlysta thus far. First round had me sound asleep for 3 days. Likely from the Benadryl. :)
    I can tell a slight improvement in terms of my malar rash. It had been...
  10. Replies
    14
    Views
    2,463

    Weather impacts?

    Hi
    I was wondering if the weather impacts anyone's lupus symptoms.
    Other than the sun/heat of course! ;-)
    It seems that inclement weather really seems to play a number on me.
    My hands and ankles...
  11. Replies
    6
    Views
    1,142

    one of the lucky ones

    Last Friday, I got the official diagnosis. Even though 6 months earlier, I had been diagnosed with Undifferientiated Connective Tissue Disease, this official SLE diagnosis felt like a punch in the...
  12. Replies
    8
    Views
    3,042

    Thank you everyone! My B12 and Folic Acid are...

    Thank you everyone!
    My B12 and Folic Acid are actually both a little ABOVE normal, so no needed injections for me. :-)
    All of your support is greatly appreciated, and helps me feel better every...
  13. Replies
    7
    Views
    891

    Hi cptnblah - My Rheumy just gave me Savella -...

    Hi cptnblah -
    My Rheumy just gave me Savella - so I'll be starting it tomorrow. Looks like it has been a month since your post - have you noticed any improvements or side effects? He wanted to...
  14. Replies
    8
    Views
    3,042

    Lupus symptoms?

    Hi.

    I've been having some odd symptoms lately, and wondering if any of you have had similar?

    Hands and feet falling asleep many times throughout the day.
    Numb and tinging face and tongue....
  15. Replies
    5
    Views
    709

    Thanks to everyone for your encouragement and...

    Thanks to everyone for your encouragement and support!
    I am searching out a good Rheumy and will keep you all posted on my results!
    I have been on prednisone for the past few weeks and am really...
  16. Replies
    5
    Views
    709

    What do YOU think?

    HI,
    I am brand new to this forum, and would love your thoughts on "my story". :unsure:
    I also have a few questions I am hoping you guys can help answer for me!

    I've been quite sick for some...
Results 1 to 16 of 16