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    Hi Cathy, I think we all pray for remission...

    Hi Cathy,

    I think we all pray for remission and for a break from doctors, tests and meds. I have had Lupus for 20+ years and have had many of the feelings you describe. I too had to retire from...
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    Hi Ave_Paramo, It is good to hear from you...

    Hi Ave_Paramo,

    It is good to hear from you again. I'm glad my info was helpful. I'm not sure about the website, but I buy hand covers from Sunveil in St. Thomas, Ontario. I'll try and find the...
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    I have had SLE and FM for about 20 years. My...

    I have had SLE and FM for about 20 years. My hubby and I both wanted children though I worried constantly about my ability to care for her. I also thought a lot about the extra responsibilty it...
  4. Thread: Paralysis

    by Maggie17
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    Hi Oluwa, You are so poetic! I too love to...

    Hi Oluwa,

    You are so poetic! I too love to watch the fall leaves turn and fall. Fall is such a time of freedom for me. Winter is too cold (I mind severe cold almost as much as severe heat now)...
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    Hi KatieMarie I have similar symptoms and they...

    Hi KatieMarie

    I have similar symptoms and they are also looking at MS but no one is willing to commit to anything yet. I order veils for my face from Sunveil in St. Thomas, Ontario. It is a...
  6. Thread: Paralysis

    by Maggie17
    Replies
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    1,264

    Hi Oluwa, I have been away on a bit of a...

    Hi Oluwa,

    I have been away on a bit of a holiday. Alexandra and I went down to Waterton, AB to do some camping. Cool cloudy days were great. She really enjoyed herself. Camping is definitely...
  7. Thread: Paralysis

    by Maggie17
    Replies
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    Hi Saysusie, I do have hypothyroidism...

    Hi Saysusie,

    I do have hypothyroidism (diagnosed just a few months before the Lupus diagnosis). No one told me they were related (HT runs in my family - lots of us have it). I don't do well with...
  8. Thread: Paralysis

    by Maggie17
    Replies
    7
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    1,264

    Paralysis

    Hi Everyone,

    I have a new symptom that I've never come across in my reading about SLE. I had a bad cold last xmas and was left with a very sore throat and great difficulty in swallowing. My md...
  9. Hi Deanna, I'm Maggie, 38 and have had Lupus...

    Hi Deanna,

    I'm Maggie, 38 and have had Lupus more than half my life. I get the rash that you describe. Exposure to sunlight and some indoor lighting like unprotected florescent will cause a...
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    Hi, A good resource for information is...

    Hi,

    A good resource for information is www.xps.com. This is the first place I found helpful information about people who had similar sun and light issues I have. Granted people with xeroderma...
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    Hi Ave_Paramo I have DLE and SLE and I too...

    Hi Ave_Paramo

    I have DLE and SLE and I too have extreme issues with the sun as well as indoor lighting. I live in Alberta, Canada so I only have to deal with extreme heat for about 2 months of...
  12. Thread: Hi, I'm new.

    by Maggie17
    Replies
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    Hi Mel, The weather here just now is cool and...

    Hi Mel,

    The weather here just now is cool and overcast/rainy. July was monstrously hot and sunny. Yes the heat makes me really sick as does sun exposure. Too much sun usually precipitates a bad...
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    Hi Oluwa, Because of my health, we would not...

    Hi Oluwa,

    Because of my health, we would not qualify for an agency adoption or international. It was a private adoption (someone my extended family knew).

    Sounds like your yard is a...
  14. Thread: Hi, I'm new.

    by Maggie17
    Replies
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    1,269

    Hi, I am 38 year old mom of one 19 month old...

    Hi,

    I am 38 year old mom of one 19 month old girl and I live in Ponoka, Alberta (1 hour south of Edmonton). I'd be happy to chat with you anytime. We all feel homebound at least some of the time...
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    Hi Oluwa, Hubby is home today - yeah!!! A...

    Hi Oluwa,

    Hubby is home today - yeah!!! A break for me and some family time - the very best time.

    My husband and I too suffered through infertility. It seems fairly common with Lupus women,...
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    Hi Oluwa, When I first went on the Plaquenil...

    Hi Oluwa,

    When I first went on the Plaquenil it made a huge difference, that was 8 years ago. I've gone off it before just to sort of test the waters and found I would be better back on it. But...
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    Hi, Plaquenil is in my dish - or it's supposed...

    Hi,

    Plaquenil is in my dish - or it's supposed to be! I am taking a trial run being off of it. I don't really think it makes that big a difference in my symptoms. It's been about a month and no...
  18. Naw Naw, I've had SLE 20+ years. Itching is...

    Naw Naw, I've had SLE 20+ years. Itching is just part of the deal. I had unexplained itching long before I started taking Plaquenil and I'm not aware that itching is a listed side effect. The...
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    Hi Jennifer, How frightening for you. Not...

    Hi Jennifer,

    How frightening for you. Not only to be facing this disease and all that entails but to not have access to health care - my heart goes out to you. I live in Canada and thank God...
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    Hi Oluwa, My rut is mostly mental I think. My...

    Hi Oluwa,

    My rut is mostly mental I think. My physical symptoms just now, while tiresome, are certainly not extreme. It's just my normal its summertime and I wish I could have a normal life...
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    Kids

    Oh my gosh!! Four children!! I have one daughter 19 months. I would love love love to havemore, but I simply don't have enough energy. As it is, this summer we have had to put her in daycare a...
  22. Skipping meds

    Hi Jody,

    I am new to this forum and it has been really great reading the posts of people going through the same problems I am (that sounds really bad doesn't it?). This year for some reason I am...
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    Homeopath

    Hi Everone,

    It is so nice to read everyone's stories. I was feeling pretty down last night when I logged on. I have a bunch of new symptoms that I was unaware were Lupus related and already have...
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    Neg. ANA

    My ANA was negative when I was tested too. Then positive then negative. 8 years later it is still sometimes positive and sometimes negative. I do have a diagnoses of Lupus and have found that if I...
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    You sound a bit like me when I was your age (I'm...

    You sound a bit like me when I was your age (I'm 38 now). I was about your age when I started getting sick too, although I was in my late 20s before it really started affecting my life on a daily...
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