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Type: Posts; User: Miss Sunshine

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    No period at all

    Just a side comment, I want everyone who has a period to be thank full.
    I'm 26, had the opportunity of experiencing periods till my first round of cyclo treatment at age 19.
    I didn't have my...
  2. Meds

    I was put on 100mg of Prednisone at age 11. I ballooned out and I don't think it's fair to anyone. I spent a year on 60mgs.
    I spent most of high school floating between 30 and 50 mgs.
    As a...
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    Ontario

    Hi
    I was reading over your post. I remember being 16. Today I am 26 and survinving Lupus head on...you really learn more about yourself with a chronic illness.
    There are no groups in Ontario,...
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    Anthralin

    Yep, I tried all doses of Anthralin, which is a compund that is mixed into a cream you apply at night. It irratates the scalp, itches like crazy and burns after months of usage. I had the steroid...
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    AVN

    I was diagnosed in early stage II on my right hip and stage I on my left.
    I had to quit teaching taichi at the commuity centre. Had 2 core decompressions, which basically is drilling holes through...
  6. When and how much

    My doctor encourages me to taper my prednisone myself. It is a game really. It's important to go as you feel. 3 Years ago, I had a flare and was back on 60mg, after being down to 15 over the summer,...
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    Alopecia Universalis

    I lost all my hair in 2 weeks, this time last year actually. Started out as alopecia totalis, which is all the hair on your scalp.
    And now I have alopecia universalis, so no hair anywhere, no...
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    Vices and little pleasures

    Hi guys:)

    I'm gong through a dilema about coping skills with Lupus.
    After having a core decompression on my right hip and a total hip replacement at 21, I quit smoking for a while. I had two...
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    Miss Sunshine

    Hello to everyone.
    Today I got to work and I decided I would join a support group for Lupus.
    I've had Lupus since 1991, at age eleven. I spent almost 6 months in hospital.
    Does anyone in this...
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    Re: anyone from montreal?

    Hi,

    I just joined the group today, I noticed your question. I'm not so far from Montreal, I live in Outaaouais (Aylmer), about 2 hrs away...
    I've had Lupus for over ten yrs, to be honest, there...
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