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    Hi Phyllis! It's been great talking to you on...

    Hi Phyllis! It's been great talking to you on face book. I hope someone comes along with similar symptoms too. Welcome back!!
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    Thank you tgal! It is really frustrating very in...

    Thank you tgal! It is really frustrating very in fact! I see my rheumy on thurs. and am hoping she can come up with some ideas, my primary is thinking of running another Mri as well as a spinal tap,...
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    Gibberish!!

    I am having some severe speech problems. Everything I say comes out gibberish. Drs. aren't sure whats causing it. They think it might be CNS lupus but are unsure. It seems to come and go, lasting...
  4. Thread: migraines

    by smokerscat94
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    I can definitely relate! I have been having...

    I can definitely relate! I have been having horrible migraine or (lupus headaches) for 14 months now. They have tried several different prophylactic meds to prevent them. Currently on Depakote and...
  5. Thread: Update!!

    by smokerscat94
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    Thanks Tgal and hillbillie, I may need to vent...

    Thanks Tgal and hillbillie, I may need to vent alot very soon! hugs to all
  6. Thread: Update!!

    by smokerscat94
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    Thank you all for your support and for...

    Thank you all for your support and for responding! Yeah it sucks to be back in a flare!!! I did get 3 wks flare free this year so far... LOL!!! Well I am am back from Seattle. They did EMG and EEG...
  7. Thread: Update!!

    by smokerscat94
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    Update!!

    Tomorrow I will be seeing a resident and attending physician at the University of Washington Neurological Clinic. I am really hoping they can get to the bottom of my symptoms. I also am back to being...
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    Congratulations I am so happy for you.. I know...

    Congratulations I am so happy for you.. I know how you feel I just recently suffered a miscarriage. My hubby and I tried for 3 yrs and had to give up due to medications. 2 mo. ago I got pregnant...
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    We have 5 other cats but it's not the same. They...

    We have 5 other cats but it's not the same. They all have their own personalites, I will be ok in time. Yes u did tell me Phyllis you were right! Gracie and Blaze have been taaking extra good care of...
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    thanks for the hugs and thoughts! She was my baby...

    thanks for the hugs and thoughts! She was my baby girl I feel like I lost my child! Our other cats (kids) have been more effectionate today lots of lovies and staying close. They know I am sad and...
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    My Poor Kitty!

    Had to put my kitty smokers to sleep today she lost her fight with small cell cancer in her jaw.:hissyfit: She was 13 yrs old so she lived a pretty long life! It doesn't make it any easier she was my...
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    3 days since I slammed my thumb in the car door...

    3 days since I slammed my thumb in the car door and still can't feel a thing! It is purple turning black and blue YUCK! gonna lose the nail! It's so weird I know I should be greatful I can't feel...
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    Well, first off my Dr. never got the mri report?...

    Well, first off my Dr. never got the mri report? so my hubby called and had it sent to him by computer. he looked at it and it is a single lesion on the right front section of my brain. can't...
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    I have an appointment scheduled on June 15th in...

    I have an appointment scheduled on June 15th in Wenatchee with a neurologist. In the mean time they are working on trying to get me in to the University of Washington, apparently it takes a while. I...
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    I have A referral to the University of Washington...

    I have A referral to the University of Washington Neurology Dept. so hopefully things will be figured out soon!
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    ticked off!!!!

    So I have been have having migraines for quite a while now. They can be controlled for a while then the medicine quits working. I am mixing up my words more and more. So they did an MRI 2 wks ago...
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    I have found vitamin E oil helps take the burn...

    I have found vitamin E oil helps take the burn out and also helps th rash heal up faster. I hope this helps you!
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    Kim Sorry to hear thing are rough for you. I hope...

    Kim Sorry to hear thing are rough for you. I hope things settle down soon for you. Sorry about the bugs!! AS for the hands and feet thing, you aren' alone. I have been dealing with that for almost a...
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    [QUOTE=Angel Oliver;68216]Ah welcome back SC, ...

    [QUOTE=Angel Oliver;68216]Ah welcome back SC,

    Im sorry you have been going through a bad patch and also about your hair,but hopefully it will grow back once the meds are lowered.I giggled at your...
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    Thanks for the advice saysusie! I will check the...

    Thanks for the advice saysusie! I will check the ingredients on my sunscreens. As for my hair loss, I know it will grow back but it certainly sucks right now! I will try to participate more often on...
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    Update!! Sorry Lost in FarmVille!

    Sorry I haven't been on in quite a while. I have been spending ALOT of time on FamVille on facebook. Probably more than I should. LOL I saw my rheumy Feb 1st, he lowered my plaquenil to 1 a day, and...
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    Dr. Appointment Update!

    First off we were getting ready to go to Spokane to see my rheumy and mom calls. She says your dad was in an accident at work and they air lifted him to Spokane to Sacred Heart. Freak me out!!! We...
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    Hi I go to Arthritis Northwest in downtown...

    Hi
    I go to Arthritis Northwest in downtown Spokane, Wa. They have several rheumatologists and are very good in my opinion. I have been going there for 10 yr or more now. check the out tey are very...
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    I too have stomach pain! I have noticed since my...

    I too have stomach pain! I have noticed since my dr. put me on nexium that it has helped.


    Does anybody know if the dosage of plaquenil can be increased? Just curious if it can be increased, I...
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    hi andrea, Yes I have an epi pen as I am...

    hi andrea,

    Yes I have an epi pen as I am allergic to honey bees. I have absolutely no clue what caused it and I have been racking my brain tying to figure it out. Thank you all for your input and...
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