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Type: Posts; User: E42brchick

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  1. Replies
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    Thanks for the responses. I'm not happy that we...

    Thanks for the responses. I'm not happy that we have to go through this but it's comforting knowing that some of you have dealt with this so I don't feel like I'm losing my mind lol. I went and saw...
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    Alopecia and lupus?

    Hi all,

    I've been a bad flare for about 6 wks now so I went to a 2nd rheum for another opinion. My regular rheum is very good, ver nice, but at my last appt with him he basically conveyed that...
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    Hey jmail, Sorry for the late reply but I...

    Hey jmail,

    Sorry for the late reply but I must have missed this! So I'm still I'm this flare up that I posted about last month and I know exactly what caused it. I woke up one morning and my back...
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    You crack me up!

    You crack me up!
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    Oh my goodness I hope you have found something...

    Oh my goodness I hope you have found something out by now!

    I just wanted to mention that I do think a gluten free diet did help me some with my lupus.. Before I knew I had lupus lol. I was dx was...
  6. Thread: hot spot

    by E42brchick
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    464

    I have had weird sensory things like that before....

    I have had weird sensory things like that before. I get it down the back of my left leg. Sometimes it feels like a hot cup of water was poured down the back of my leg. I thought it may have something...
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    That sounds exactly how my flares start. First my...

    That sounds exactly how my flares start. First my hair starts to fall out, then I get severely dizzy like even when immlaying down and not moving my head (and I have been checked for Menieres)... I...
  8. Hi Ashley, Man, you are dealing with a...

    Hi Ashley,

    Man, you are dealing with a truckload of crap! I'm so sorry. I know it must be hard. I'm not dealing with 1/4 of the symptoms you are and it's hard for me so first, just know you must...
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    Lol thanks for the laugh guys! I needed it.

    Lol thanks for the laugh guys! I needed it.
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    520

    Thanks tgal. They gave me the Titrating dose of...

    Thanks tgal. They gave me the Titrating dose of prednisone.. 50mg for 5 days 40mg for 4 30mg for 3 and then he's actually keeping me on 20mg for a month. I've never done that before. Hopefully it...
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    6 mos on plaq and flaring badly

    Hey guys,

    Havent posted in a while because things were going good. Life was good, pain level was ok but as we all know, it never completely goes away and my lupus feels like it has come back with...
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    Thank you very much for the reply. I think this...

    Thank you very much for the reply. I think this was an ER dr who said this to me before being diagnosed with lupus, so it may not be correct. I will be calling my rheumy tomorrow since the pain is...
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    My turn with pleurisy

    So I have been having chest pain for about 2 weeks. Called the Rheum and got me in ASAP. He said it sounds like pleurisy so I probably need some steroids for it. I had 2 rounds of prednisone in Nov...
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    I did have a scope and biopsies and they were...

    I did have a scope and biopsies and they were inconclusive. so I'm back on the gluten again to get re tested soon also. Prior to the biopsies a few mos ago I was gluten free for 4 years
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    I was on lamictal for a long time before I was...

    I was on lamictal for a long time before I was diagnosed with lupus, and I had no side effects.
    Sorry I'm not much help. I hope things get better for you soon.
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    Peeling fingertips

    Ok so things have been pretty good.... I have been feeling alright except for the fatigue every now and then. But then a few days ago I noticed my fingers and finger tips started peeling. A pretty...
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    I have been feeling the same way for the past 2...

    I have been feeling the same way for the past 2 weeks. Even with redbull or coffee I just feel like I can't get off the couch. I'm too tired to look at a book or watch tv and yet I can't sleep. I...
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    Welp I'm almost better just super fatigued. Guess...

    Welp I'm almost better just super fatigued. Guess it takes longer to get over being sick with lupus.
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    Lupus and the flu

    Yay. I have the flu. I started coming down with it today on the plane from AZ to DE. Fun fun. I was vomiting profusely and couldn't keep anything down until I got home and tried my cure-all, jello...
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    Profuse sweating

    Ok.

    So I know with lupus you can get night sweats, which I do have, but do other people sweat more in general? I know I've commented on this before but it's getting to the point where I'm truly...
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    Well a newbie here so nice to meet you! I'm glad...

    Well a newbie here so nice to meet you! I'm glad we can bond over sweat lol
  22. Replies
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    You take both pills at the same time during the...

    You take both pills at the same time during the day? I didn't know you could do that. I'll call my rheumy and ask if that's possible. These dreams freak me out and it takes me a while to snap out of...
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    Update/plaquenil nightmares

    Hey guys,

    So I had my check up a few days ago and my rheumy said I'm not where he wants me to be symptoms wise on the plaq. My symptoms are better on it than without it, but I'm still having quite...
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    Hey Carli, I just posted something similar so...

    Hey Carli,

    I just posted something similar so I have somewhat of an idea what you're going through. I'm working on two thesis papers to finish my Masters next month. I also speak Russian but have...
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    I am learning this very quickly! I'm a very "high...

    I am learning this very quickly! I'm a very "high stress/high strung" person to begin with so I'm trying to learn new ways to manage my stress. It's been a little difficult to find time to do...
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