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Type: Posts; User: frekkuls

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    Hey There! I am a fair skinned ginger...

    Hey There!
    I am a fair skinned ginger person...so I'm very familiar with sunscreen!! I've tried them all!!
    With Lupus now, I take no chances!! I use Aveeno body lotion with sunscreen in it.......
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    Thank you both!! and no, I'm not any more scared...

    Thank you both!! and no, I'm not any more scared than having Lupus is scarey and weird things are always a little almarming!
    But that's why I love this board...we're never alone!!
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    Thank you for taking the time to answer me!! ...

    Thank you for taking the time to answer me!! Wow, and thanks for being direct. I will call my Rheumy tomorrow for sure.
    That's just a bit frightening! But I'm trying to stay zen about it! Do...
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    Olfactory Halllucinations

    Hey Everyone!
    I've been experiences strong unpleasant smells that seem very real to me, but not detected by anyone else.
    I've had two extreme times when I was sure there was fire...a strong...
  5. Thread: Cellcept

    by frekkuls
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    Hey There, I'm about to start Cellcept and am...

    Hey There, I'm about to start Cellcept and am looking to find out what I should expect. Can anyone give helpful info.?? I"m nervous! I really liked imuran, but it isn't working anymore. Thanks!!!
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    Happy Mother's Day!!!

    To all of you beautiful beautiful mother's on this board!! I'm sending everyone a giant Mother's Day Hug!! And a thank you for all the wonderful loving Mother energy that is generously given here!!...
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    Yes, I am on Plaquenil. I have an appt. with my...

    Yes, I am on Plaquenil. I have an appt. with my Rhuemy coming up in two weeks, so I've written it down to ask about. Today my eyes seem fine. My husband says he thinks the blurry problem only...
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    Eyesight problems

    Hello everyone,
    I woke up this morning and couldn't see properly out of my right eye. I had the sensation that one gets if they have one contact in and one out. I didn't have any pain other than a...
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    Thanks for your nice comments Rob! Your life has...

    Thanks for your nice comments Rob! Your life has never had a dull moment, has it? :)
    I'm a fiber artist, with my main medium being wool. I weave, felt, knit, spin, and sculpt.
    The life change...
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    Everyone here is so cool!

    I knew from pre-school that art is where I am. Although my parents desperately tried to talk me out of it, I studied art in college for 7 years. And just like my parents predicted, I've been a...
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    Thanks Becky, this has been a great thread!! ...

    Thanks Becky, this has been a great thread!! I've been invited to start Twitter by friends, but have been hestitant to start anything new because of the fogs....I get so confused and fuddled. But...
  12. Hey Angie, I'll bite the hook and go. I'd...

    Hey Angie,
    I'll bite the hook and go.
    I'd say everything is generally the same for me except my remission time. (although my Doc. says there is no such thing as remission for ppl with Lupus) ...
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    Rob you rock!! You should go on tour!! That...

    Rob you rock!! You should go on tour!! That will stay with me and remind me to be assertive and stand up for myself!! Hopefully it inspires everyone who reads it!!! Thank You.
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    Sticky: Two quick things. One, has everybody seen that...

    Two quick things. One, has everybody seen that Nuetragena just came out with a new 100+ sunblock? I just got some to try.
    And two, has anyone invested in the special clothes they sell with UV...
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    Leaf, Welcome! It's not all in our heads!! LOL ...

    Leaf, Welcome!
    It's not all in our heads!! LOL
    This group is the absolute best for providing you with knowledgable advocates!! I learned way more here to help myself feel better than I ever...
  16. Thread: new member

    by frekkuls
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    Welcome Marjorie! I wanted to commiserate the...

    Welcome Marjorie!
    I wanted to commiserate the loss of your wardrobe. I have gained weight too, and lost most of my hair, but it's really the new wardrobe that I'm depressed about. I don't want...
  17. Hi and Welcome! I'm pretty new here, but I've...

    Hi and Welcome!

    I'm pretty new here, but I've been freaking out alot less since I discovered this board and talking to the people here!! I hope it will be the same for you!

    Just a note about...
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    Welcome Thinkingirl

    Welcome Thinkingirl!!
    I'm relatively new here myself, but boy have you come to the right place!!
    I think waiting for test results is part of the worst. I keep wondering....ok, what else? But...
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    I'm on Mountain time. so I'm two hours behind...

    I'm on Mountain time. so I'm two hours behind you.
    No, I don't work anymore at a real job persay. I'm an artist and I do alot of my best work late at night, if I can.

    I have insomnia...
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    Oh!!! I've heard Uggs are wonderful, what makes...

    Oh!!!
    I've heard Uggs are wonderful, what makes them the best?? Never had a pair.
    You can't move to either of those places!!! The Sun!!!! There isn't enough sunscreen!!!!
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    Hi Buddhabelly!!! Do people call you Buddha for...

    Hi Buddhabelly!!!
    Do people call you Buddha for short? :D
    I'm fair today. Nothing specific, just a little off here and there. I guess that makes it a good day, lol. I live in the Southern part...
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    Buddhabelly, Yes I definately moisturize. I...

    Buddhabelly,
    Yes I definately moisturize. I put that on before my sunscreen. In my mind, that creates a barrier between my face and the sunblock.


    I'm still getting some pimples, but my Doc....
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    Thanks Buddhabelly. I knew most of that to be...

    Thanks Buddhabelly. I knew most of that to be true, but not all things that used to be true, still are. Thanks for the back up.
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    Yes, start cautiously. That's how I did it. I...

    Yes, start cautiously. That's how I did it. I was skeptical too because it's much thicker than anything that's worked for my face before. I put my "medicinal" stuff on first after washing, then...
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    Is Heat Therapy Good?

    I forgot to ask my Rhumy about this, but I love heat. I use a heating pad/hot water bottle every night, and I live for sessions in a hottub or hotsprings as often as I can get to one. I seems to...
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