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    Thanks for replying! I did call both my rheumy...

    Thanks for replying! I did call both my rheumy and my pcp. I will be being seen tommorow. She agreed it needs to be looked further into. I am going to stay on the higher dose of prednisone. Even...
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    Feeling out of sorts and short of breath

    Hello friends,

    Lately I feel like all I do when post here is COMPLAIN :cry: I am very sorry that I have been doing so much of this, but I feel like I am really truly loosing my lupie mind, as if...
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    I also heard this on my local news and was...

    I also heard this on my local news and was SHOCKED :shock: !~ Many people with auto immune illnesses such as lupus and RA or on this med with good respondce to the med :? I tried the med when it...
  4. I went to the doctor's GOOD NEWS!~

    Late last night I posted a lengthy whinny post about my worries over what my nurse said! Prednisone and well let's face it just plain old over reacting brought on that silly post :changes:

    I went...
  5. That armpit pain, nurse called and wouldn't tell me what it.

    I had an MRI on Tuesday. My doctor's nurse calls me this afternoon and tells me I need to come in tommorow and could I make it in at 11:30. I said of course I would come in, and what was wrong? She...
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    PREDNISONE yuck! OMG it tastes like something...

    PREDNISONE yuck! OMG it tastes like something real awful and dandaloins. I usually take a hand full of pills all at once! Of course the only ones I taste is the prednisone. It's truly nasty. :rofl: I...
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    I am feeling a little bit better today. I am very...

    I am feeling a little bit better today. I am very thankful that I am handling myself a tad better now then I was yesterday. I still just feel so on edge all the time. I want to bite someones head...
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    Hello Karen, I like you stared out with a ton...

    Hello Karen,

    I like you stared out with a ton of varied symptoms and have a huge family history of auto immune diseases. Many have lupus even more have RA and I even have a cousin with...
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    Welcome Dad :lol: It sounds to me like your...

    Welcome Dad :lol:

    It sounds to me like your daughter is a very lucky young lady. You are there for her and are doing all you can to make this illness less of a burdan on her. The days ahead could...
  10. Thread: Intro

    by lulumomof5
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    Welcome Beth, You will find a lot of info and...

    Welcome Beth,

    You will find a lot of info and support here. This is a very comforting place to come. I wish you and your husband all the best. Sounds like you will be of great loving support to...
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    Just not my day.....could use a hug.

    I woke up late for my day of non stop appointment. I meet my new rheumy. First female rheumy I have ever had. I had been looking forward to meeting her. Then after meeting her I just kind of felt...
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    JenHa55, I'm so glad you have been able to get...

    JenHa55,

    I'm so glad you have been able to get off the prednisone. I have always hoped I'd be able to get off it myself. I have been on it now I guess 5 years w/o a skipped day and the 3 years...
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    Tdeyne, I am very glad to here your rheumy...

    Tdeyne,

    I am very glad to here your rheumy said the protien in your urine was not serious. As I have heard it is a lot more difficult to have babies when you have kidney invovlement. I am so...
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    I went to the doctors. Yesterday, because the...

    I went to the doctors. Yesterday, because the pain just keeps getting worse. In fact typing makes it hurt worse. She is very worried that it is something called avascular necrosis of the shoulder. I...
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    Bathing suites! Yes, I remember fondly wearing...

    Bathing suites! Yes, I remember fondly wearing slinky cute little numbers. But not anymore. I simply find a basic black one peice. I have done both water arobics and water physical therapy. It feels...
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    My children

    Thank you I never thought of it that way before like a mini movie, my life. That's very comforting. It kinda put things into prospective for me. I like the way you put it. Special indeed my children...
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    Sasdawg, I know your pain like it was my own....

    Sasdawg,

    I know your pain like it was my own. I have been where you are. In the early days of my illness I gained 100 pounds in just a few months. I thought I was going to die! Sometimes I still...
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    Pian in my armpit any ideas /giggle

    :oops: Kind of a strange pain I haven't had before. In my left armpit. It throbs and hurts sometimes really badly. It seems to hurt most when I am driving or typing things of that nature. I haven't...
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    I also became sick with lupus while pregnant

    I was pregnant with my 4th child and started getting many symptoms of the disease. I had her then went into severe flare. For the next few years I went from sick to sicker. I also have lost more than...
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    lupus with 5 kids

    Dear Megl,

    I understand your guilt so very well. I always feel like I should be spending so much more time with my kids. I feel like I should just be a better parent. But I am so tired. It takes...
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    Prednisone

    Hello,
    First I want to say how sorry I am that your sister has been dx'ed with lupus. Lupus is hard to be dx'ed with at any age. But being so young can add to normal teenage stressors. I am glad...
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    Fairly New 8 years with lupus

    Hello Everyone!

    My name is Lucy I live in Seattle Washington. As you can all tell by my name I have 5 kids! :!: Yes, 5 KIDS! 13 yr old girl, 12 yr old boy, 10 yr old boy, 8 yr old girl and last...
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    So sorry for your pain

    I have been where you are. Only I have had a husband the whole time, he has NEVER been any sort support. Even after getting out of hospital the first day he would be back at his 14 hour a day job. I...
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    I so UNDERSTAND how you are feeling.

    When I was first getting sick I had such vauge symptoms. All I had was pain everywhere! I kept getting infections. My kidneys werent keeping up. Otherwise I was ok. I had High sed rate and CRP. My...
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    Thanks for the info. I think I will try to eat a...

    Thanks for the info. I think I will try to eat a grapefruit a day at breakfast and dinner to see if that helps. I was told though early on to avoid any of the sugar subs because the have been linked...
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