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    Painting...

    is what I do now, and I have found it to be incredibly helpful. I paint the world I believe in, and also have painted my isolation and pain in interesting and beautiful ways that help me feel better....
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    To Hatlady

    >>Every significant artist, I think, paints her own soul.<<

    Well said, Hatlady. I agree, entirely.
  3. Thread: Pets?

    by Awi
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    Sole-singer...

    I wasn't intending to go "deep," just wondering if a pet-less home felt lonely.

    I'd like some arms around me, too, but a furry body that purrs and loves to sit on my lap makes me feel good.
    ...
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    Self-reliant to a fault

    (First of all, what does RL mean?)

    Yes, I've been that way all my life, and it's been one of the reasons my friends drifted away. I was embarrassed to ask for help, and it turned out they were...
  5. Thread: Pets?

    by Awi
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    Solo singer!

    Hey you,

    No pets?? Don't you get lonely without someone to cuddle? Someone furry, that is.

    I can't imagine not having animals in my house. Like Kat, I've tended to acquire cats, sort of like...
  6. Thread: LUPUS AND DEATH!!

    by Awi
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    Twelve???

    Wow. I had no idea someone could get this at such a young age. I'm so, so sorry. How did she get it, did anyone have an idea? No one seems to know why we get it, but I'm wondering, in one so young,...
  7. Thread: Pets?

    by Awi
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    Kat's cats!

    Wow, Kat! I've exploded in cats before, too.

    I once had 15 cats all at once, back in Connecticut--three adult females (two of which were from an earlier litter by the Alpha Female), and they all...
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    ++ ARTIST ZONE (that means everybody) ++

    For everyone who makes art of one sort or another, how has being ill changed that (or hasn't it), and do you sometimes make art to express your feelings about being ill, to describe it, to...
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    Thanks, Kat

    Hey Kat,

    I didn't realize we could just do that, so great idea! It sounded like the very suggestion caused a problem because this forum is supposed to be dedicated to someone--I guess Susie's...
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    Is there only the mildest interest?

    What level of interest is there in a non-illness Forum? If it's just me and SoleSinger and one or two others than I guess it's a non-starter, but if there is interest but people feel that they're...
  11. Thread: LUPUS AND DEATH!!

    by Awi
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    Making peace with mortality

    For me, by the time I was diagnosed it was urgent because I was, in fact, dying. My organs were shutting down, and it seemed to be over. The fact that my spiritual life had always made me able to...
  12. I may have Lupus, but I'm not loopy!

    Hatlady gave the reason I won't use that word!

    I don't give myself a label in real-life; but on this board, one needs a short hand. That was my point.

    Out in the world, one often has to say one...
  13. Thread: Lupus migraine

    by Awi
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    Soul retrieval

    Yes, I do that. It's incredibly intense. And yes, too, a "curendero" is merely the Spanish word for Healer, and a good one can be quite effective. In the Indian world, the word is "Medicine Woman" or...
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    Whatever everyone wants...

    I'm just tired of being a sick person who can only come here to talk to other sick people about being sick. It feels like wallowing, which is why I've avoided such sites in the past. To have on one...
  15. Thread: white bumps

    by Awi
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    Lots o knowledge!

    Yes, I was virtually certain they were related to the (at the time undiagnosed) SLE I eventually was diagnosed with, and I believe that if the lesion in my urinary tract were as easy for me to treat...
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    Necrosis????

    What do you mean, necrosis???? I'm doing IM injections, and not IV, so let's be clear on that, but what the hell?? You've given me quite a scare, so please respond!! I know it causes scar tissue to...
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    Let's do it!

    Can we set up a new forum, or does the administrator have to do it? I'll make contact if someone will tell me how.

    Thanks.
  18. Not quite

    Not for me. I hate the whole "survivor" mentality. Nothing personal, but the lists of "survivors" I'd be on is pretty damned long, so I try to avoid that one, too. Just like I hate "sufferer"....
  19. Thread: Lupus migraine

    by Awi
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    More of us Healers than you'd think...

    There are a lot of us out here who can heal. I am hardly unusual, but I don't make people pass out! I can usually see the headache instantly, and once the first thing I said to a moving-in new tenant...
  20. Thread: Lupus migraine

    by Awi
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    Phenergan instead

    Many people are allergic to the '-zines'; try asking for Phenergan instead, and be sure to list compazine as a drug to which you are allergic.

    Imitrex nearly killed me, and the side-effects of...
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    All Lupus all the time--time for a change??

    I thought this forum was also for non-Lupus topics, but I don't see a single thread that's not about the condition.

    Can we start a new forum that's specifically for us to get away from LUPUS?

    I...
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    Thanks...

    I know Morphine can cause trouble with urination, but as I pee about every 7 minutes (not an exaggeration) morphine only slows that down to about every 15. Because it relaxes the muscles (which is...
  23. Many thanks to all

    What a lovely set of greetings! Yes, I am Cherokee, and will happily talk about the Healing work I do, but not tonight--a day of great pain.

    I'll be back soon--tomorrow probably--and would love...
  24. Thread: white bumps

    by Awi
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    white bumps that are Lupus lesions healed

    My white bumps are @ 1/8" in diameter,and started out as flat, red lesions that spontaneously split after being in the sun (this was before I knew I had Lupus). Eventually, enough scar tissue built...
  25. Thread: Lupus migraine

    by Awi
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    Maybe seems extreme because of injection?

    Hi Val. Toradol is a pretty common treatment for inflammatory headaches, though if you're not used to the idea of self-injection, it may sound 'extreme'. I can't move my head or open my eyes when I...
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