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Type: Posts; User: Saysusie

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    Hi There!! It is so good to hear from you and,...

    Hi There!! It is so good to hear from you and, as you know, I ALWAYS love getting good news. I am so happy that Karma is working out for you and that he is such a sweet dog. That makes me smile...
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    Also, it is a well known fact that diabetes can...

    Also, it is a well known fact that diabetes can cause loss of vision for some. Have you asked your doctors about that?
    For patients with Lupus, the most common cause for eye damage is the use of...
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    Hello and welcome Justine; I am so sorry to...

    Hello and welcome Justine;
    I am so sorry to hear that you are going through so much and that this heinous disease has caused so many health problems for you. I know that it must be very difficult...
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    Tgal; I think that what you've done is...

    Tgal;
    I think that what you've done is wonderful. I wanted you to know that I've done the EXACT SAME THING for my cats. I love them like they were my children. But, I just could not care for...
  5. Thread: new to lupus

    by Saysusie
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    Hi Angie; Welcome to our family. I am glad...

    Hi Angie;
    Welcome to our family. I am glad that you found us and decided to join us. Please make yourself at home. We are here to help you in any way that we can and as much as we can for as...
  6. Thread: Hi to all

    by Saysusie
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    Hello Julie; Welcome to our family. I do hope...

    Hello Julie;
    Welcome to our family. I do hope that we get to know you. Please tell us a little bit about yourself.
    This is a great place to be if you want to be amongst people who understand,...
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    Oh yes, I remember that horrible rash that you...

    Oh yes, I remember that horrible rash that you had and I remember someone suggesting that you use your own urine on it (lol).
    I, too, hope that it disappears as quickly as it appeared. Is there...
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    I am so happy that your doctor is a caring one...

    I am so happy that your doctor is a caring one who is interested in finding answers for you and treating your symptoms accordingly. Please let us know when you get all of your test results back. I...
  9. Thread: new member

    by Saysusie
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    Hi Kate; Welcome to our family! As Steve...

    Hi Kate;
    Welcome to our family! As Steve mentioned, negative ANA Lupus is becoming more and more common. As such, it behooves doctors to consider other signs and symptoms in making their...
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    Hello Oluwa; Are you still on any Plaquenil? ...

    Hello Oluwa;
    Are you still on any Plaquenil? I know that quinine products can cause your condition and also aggravate it. I do hope that the trace of nickel is not the culprit because then,...
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    Hi;If CellCept is used during the first trimester...

    Hi;If CellCept is used during the first trimester of pregnancy, it could cause miscarriage or various birth defects. Due to these, and other serious risks, CellCept has a pregnancy Category "D"...
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    Given your high ANA along with the other tests...

    Given your high ANA along with the other tests and the symptoms that you are displaying, please do not be devastated if the prognosis is, indeed, an auto-immune disorder. As Steve said, we cannot...
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    Hello Hisdaughter51; Welcome to our family. I...

    Hello Hisdaughter51;
    Welcome to our family. I am glad that you decided to join us and to tell us a bit about yourself. This is the best online support group for Lupus (or any auto-immune...
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    Hello Lupie_Cat; First, let me welcome you to...

    Hello Lupie_Cat;
    First, let me welcome you to our family. There are many here who have been where you are or who, like you, are currently in a low point of their lives due to this disease. ...
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    My Thoughts For Today

    I posted this in my blog, but thought that I would also post it here for everyone to see:

    I was sitting, this morning, thinking and meditating. Trying to place myself in a calming, quiet,...
  16. Thread: untitled

    by Saysusie
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    Hello Wynnr and welcome to our family. I am glad...

    Hello Wynnr and welcome to our family. I am glad that you found us and decided to honor us by letting this forum be the place where you feel safe to open up about your Lupus. You will find that...
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    I cannot tell you if it will be your new normal...

    I cannot tell you if it will be your new normal or not? That depends greatly upon your tolerance of the drug and your symptoms. There are many who find that they've had to increase their...
  18. Wow; This is GREAT news, especially for the...

    Wow;
    This is GREAT news, especially for the 10yr old girl. Having specialized treatment that targets an actual cause is new and rare with Lupus.
    It would be great is the cause was universal...
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    Yes, there are some of us who are still here! ...

    Yes, there are some of us who are still here! WHL has been a bit slow lately, but in some ways - that is a good thing as we are down to only two (2) moderators.
    I am glad to see you back and...
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    OMgoodness - no Vicks in your nose??? I do that...

    OMgoodness - no Vicks in your nose??? I do that ALL OF THE TIME!! Did she say why not?? Just curious.

    Peace and Blessings
    Namaste
    Saysusie
  21. Oh Moonbeam; I am so sorry to hear that you are...

    Oh Moonbeam; I am so sorry to hear that you are under so much stress. No, your issues do not sound everyday to us because we totally understand how stress affects our health and our Lupus.
    I'm...
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    Hi Moonbeam; You did not tell us when your...

    Hi Moonbeam;
    You did not tell us when your test was going to be. Have you been tested? If so, what was the diagnosis and prognosis. Please update us on how you are.

    Peace and Blessings...
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    I try to drink eight (8) bottles of water each...

    I try to drink eight (8) bottles of water each day. I don't always reach that goal, but I try hard to do so.
    Do you think that your edema is due to your kidney issues? Have you discussed this with...
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    Thank You Steve and Moonbeam; I had a...

    Thank You Steve and Moonbeam;
    I had a wonderful birthday! My hubby took me to Cancun along with 10 other couples who are very good friends. So, it was a week long celebration with dear friends. ...
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    Hey Rizbit; Yes it HAS been a while! I do...

    Hey Rizbit;
    Yes it HAS been a while! I do hope that you get medical coverage soon so that you can continue to receive treatment.
    I am happy to hear that you are still involved with LFA, with...
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