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Type: Posts; User: SleepyInSeattle

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    You will always be OUR councillor! : - )

    You will always be OUR councillor! : - )
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    I don't watch her show but know who she is and I...

    I don't watch her show but know who she is and I have seen news stories/clips/commercials. Nothing I have seen leads me to believe she's anything other than a Kardashian in a long black robe: i.e.,...
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    Oh Kim - I'm so sorry!!!! That sounds absolutely...

    Oh Kim - I'm so sorry!!!! That sounds absolutely horrible. You must be redlining stress, but you still sound upbeat and caring.... ((((hugs))))

    Mikaela will get through this - as hard as it is on...
  4. Thread: Grrr!

    by SleepyInSeattle
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    Keep at it - it's hard to be persistent when...

    Keep at it - it's hard to be persistent when you're hurting, but if we don't advocate for ourselves, nobody else will. Be patient and don't stop until you get somebody who will help you feel better,...
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    You'll find lots of friends and support...

    You'll find lots of friends and support here...glad you found us!
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    You go, girl!!!! Enjoy the good times...they will...

    You go, girl!!!! Enjoy the good times...they will carry you through the rough ones. :-)
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    Congratulations in advance!!!! Sending best...

    Congratulations in advance!!!! Sending best wishes for an easy, healthy delivery....please let us know how things go!!!!
  8. Everybody has to make their own decisions, and I...

    Everybody has to make their own decisions, and I am no doctor, nor do I know your case...but do keep in mind that Lupus actually DAMAGES your body -- sometimes the fatigue and aches are symptoms of...
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    Dunno how I missed this one, but a belated HAPPY...

    Dunno how I missed this one, but a belated HAPPY BIRTHDAY!!!!! Hope it was a good one....
  10. Well, i don't know the details of your...

    Well, i don't know the details of your case....but I do know change can be scary, so probably what you're feeling is pretty normal! It's great you have a doctor who will really listen.

    All I can...
  11. 8mg Mtx/week is very low...it might not be enough...

    8mg Mtx/week is very low...it might not be enough to take care of symptoms. I know it is always a balancing act with the liver.

    When I went on Mtx we started with 10mg/week and worked up to...
  12. I think autoimmune diseases are a moving...

    I think autoimmune diseases are a moving target...ya kinda gotta try stuff and see what works (and what doesn't). I think in some ways Rheumatologists are more like chefs than doctors - like we're a...
  13. I don't have a ton of medical knowledge, but just...

    I don't have a ton of medical knowledge, but just wanted to offer sympathy and support - and wanted to make sure you know it's not unusual for it to take a while to figure out a good treatment plan....
  14. I have had great luck with Mtx so far (been on it...

    I have had great luck with Mtx so far (been on it maybe a year and a half or so...). I take 10mg on Monday nights and 10mg on Thursday nights...that works best for me. It does take a while to get...
  15. I have not had this type of surgery myself, but...

    I have not had this type of surgery myself, but have two friends who have had knee reconstructions with harvested parts. it kinda weirded them out for a while, but now they never think about it - or...
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    Oh, it makes me so happy to know I helped...

    Oh, it makes me so happy to know I helped somebody! : - )

    Plaquenil tips:
    - Don't take it with dairy (for many people it causes a lot of gas that way), but DO take it on a full stomach.
    - Often...
  17. I don't know as much about the tests because (I...

    I don't know as much about the tests because (I am embarrassed to admit) I have never really understood them anyway. I have great docs and I do trust them to interpret that stuff. I always READ the...
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    You guys are so cute....wonderful to have such...

    You guys are so cute....wonderful to have such great support and understanding. Sounds like he's a keeper!
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    Sounds like your doctors are on-the-ball...that's...

    Sounds like your doctors are on-the-ball...that's great to hear! : - )
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    So glad you are making progress!!!! It can be a...

    So glad you are making progress!!!! It can be a looooong road, and often diagnosis is not certain anyway. If you have anxiety issues as well, then it's way too easy for doctors to attribute...
  21. How about "Aaaaaaa-CHOO! ..... Um, could somebody...

    How about "Aaaaaaa-CHOO! ..... Um, could somebody mop that up outa there?"
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    Congrats! I am sure you'll do great, and add a...

    Congrats! I am sure you'll do great, and add a good perspective to discussions, as you do here.

    And, of course, to an American, anything that has "Shire" in the title sounds impossibly exotic and...
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    Howdy, and welcome! Sounds like your body held...

    Howdy, and welcome! Sounds like your body held out as long as it could...funny how things happen like that, isn't it? I'm sorry you had to go through such a scary time with your husband, but I'm glad...
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    I'd say it's definitely worth calling your doctor...

    I'd say it's definitely worth calling your doctor - it could be something that requires an office visit. You don't want to risk having one (or more) of them get infected. It's also important that...
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    S-I joint problems are also common with lupus - I...

    S-I joint problems are also common with lupus - I have had some awful hip pain (especially after sitting) because of that over the years. Fortunately, it's been pretty much fixed with physical...
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