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  1. Replies
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    Hi guys, I am sorry for being out of it for...

    Hi guys,

    I am sorry for being out of it for months, I hope all of you are well. I know this is an old thread but thought I should give you guys an update on how the incandescent ban is coming...
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    Hello everyone, Faith I am really sad to hear...

    Hello everyone,

    Faith I am really sad to hear about your husband's job--engineering consultancies are horrible when it comes to treating employees right. (btw, I am an engineer too...what type of...
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    Hello Faith, Yes, I have been away for a...

    Hello Faith,

    Yes, I have been away for a while--the semester start was rather busy and one of my colleagues is on sabatical leave so the workload has gone up a bit. I am just glad I can work my...
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    Hey JohnnyBGood,. I also found that steroid...

    Hey JohnnyBGood,.

    I also found that steroid creams makes the rash more red the next day. Although I have to say my doc gave me the super-duper steroid cream called Betamethasone and I can only...
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    Hello guys, Well, it is such a coincidence you...

    Hello guys,

    Well, it is such a coincidence you mentioned that Faith because here in NZ the government announced that by the end of 2009 they are banning the sale of incandescent bulbs. (same in...
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    Hey hey, I'm 28 , a bloke and living in...

    Hey hey,

    I'm 28 , a bloke and living in NZ--there are just not many lupus guys around. I hope all of you are well?
  7. Thread: ER

    by tintin28
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    731

    Faith is right--it takes a while for plaquenil to...

    Faith is right--it takes a while for plaquenil to kick in. The reason is that plaquenil needs time to accumulate in the liver, the skin cells and the joint tissues. When you consider the fact that...
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    I am 28 and diagnosed around the same time as you...

    I am 28 and diagnosed around the same time as you (Aug last year). Things were fluctuating a lot around Nov-Dec, like you were saying, good one day, horrible the next. Things just didn't seem like...
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    Hi Heather~! My two cents worth is that if you...

    Hi Heather~! My two cents worth is that if you like a challenging career and still look after your health--you might want a job where your working hours are flexible. Being in the IT field I hear is...
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    Oh yeah--it's like moving into a new house all...

    Oh yeah--it's like moving into a new house all over again. I love it. Living in constant fear of being fried inside my house isn't good for my stress levels. I am back at work today and my head of...
  11. Oh crap--you say you guys are feeling bad about...

    Oh crap--you say you guys are feeling bad about vanity issues--what happens if you are a bloke and feel the same way....get the lynch mob ready.~!! :)

    I wonder if the germs on the planes are...
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    haa haa good question. I can probably tell you...

    haa haa good question. I can probably tell you where NOT to live~! NZ has the highest UV in the world (due to the ozone layer being thin over here, the lack of pollution and the bright sunny...
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    Hi Noodlemom--I am really sorry you are in so...

    Hi Noodlemom--I am really sorry you are in so much pain. I do remember when my MCTD started the arthritic pain was so horrible I cannot walk with my knees straightened. If I straighten my joints it...
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    PS Over here we can't claim medical expenses off...

    PS Over here we can't claim medical expenses off our tax.....sucks eh?
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    I now have so many places inside my house to...

    I now have so many places inside my house to roam--I don't know what to do with myself. Yes, I agree, the filters are worth it.

    I am keeping my monthly appointment with my specialist. Currently I...
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    Hey Faith, I took the plunge and went and put...

    Hey Faith,

    I took the plunge and went and put uv film on the whole house. Not cheap--but I figured having to wear a hat and sun umbrella inside my place is just not right.

    I toyed with the...
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    !

    Thanks Saysusie~! I feel really bad for worrying over the statistics--but I figured surely there must be other newbies out there getting totally depressed reading those statistics for the first time....
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    Wondering about the future

    Hi guys (I mean that in the generic sense),

    Reading through the recent posts made me wonder a little about the future.

    I am 28, male, MCTD for 7 years and now with SLE. I am sure you all ...
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    Hi Faith, My wife has been wonderful but the...

    Hi Faith,

    My wife has been wonderful but the uv filters are going to set us back a grand or so--hence the long decision. I am competing with a new dishwasher so it was touch and go at one stage.
    ...
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    Thanks for your response~! Yes--document...

    Thanks for your response~!

    Yes--document camera has been tested but for some reason, the frame rate for these cameras are quite low--and we get "blurring" when we move things too fast on the...
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    Dr House won't be much help coz he ripped up his...

    Dr House won't be much help coz he ripped up his lupus book to stash his pain meds. :)
  22. Thread: New Here

    by tintin28
    Replies
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    Hey Gabrielwriter~! My own experience is that...

    Hey Gabrielwriter~! My own experience is that Prednisone really helps with the fatigue, fever and the energy level. However, I still get my usual joint pains while on it.

    The weird thing I found...
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    I have managed to convince the wife that living...

    I have managed to convince the wife that living in a dark study--especially over Christmas and New Year is not ideal--so we are forking out for some UV filters for the living room and the bathroom....
  24. Thread: umbrellas

    by tintin28
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    Hi Faith, Wonderful~! After reading your post...

    Hi Faith,

    Wonderful~! After reading your post I dug through my garbage to find the packaging for my curtains--and lucky for me, they are made out of polyester (yay~!). I suspect the acrylic...
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    Hey Numpty--thanks for your reply~! Oh...

    Hey Numpty--thanks for your reply~!

    Oh yeah--the plague-look is in--when it was in full swing I reckon I would fit nicely in a zombie movie. Only my lifestyle is more like a vampire at this...
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