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Type: Posts; User: tatiana

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    Sticky: Me too!

    I recently moved to NY from FL and the relief from the sun was immediate! However, as the seasons change and we enter the spring, it's all going to come back! Just today I have been feeling lousy...
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    How are you feeling today? I am so sorry that you...

    How are you feeling today? I am so sorry that you are going through all of this physical and emotional pain. It brings me to tears to know that you are having such a hard time. Please hang in there,...
  3. Information on Lupus drug studied by Human Genome Sciences

    I recently spoke to someone that informed me of this progress. This drug, being developed and is at 3/4 stage of testing has been found helpful to SLE patients that have a more severe case of Lupus,...
  4. Thread: Sjogrens Too

    by tatiana
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    I also have both. And like hatlady, suffer mostly...

    I also have both. And like hatlady, suffer mostly from dry eye. i'm not too well versed on sjorgens either, but a flare is usually the same, so i dont even pay attention to what it could be. I am...
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    I just recently went to my rheumy, and has also...

    I just recently went to my rheumy, and has also noticed these red bruises all over. I have the general kind, where i bumb myself and they go through the range of colors, but these other ones i could...
  6. Thread: Climate?

    by tatiana
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    Ozone is not the 'good' kind of oxygen, it's...

    Ozone is not the 'good' kind of oxygen, it's actually an air pollutant. Up in the atmosphere it protects us from the sun (ozone layer-- the good ozone). Down here in the stratosphere it's not such...
  7. I did manage to make it home OK, though it took...

    I did manage to make it home OK, though it took some time. I have a Dr. appt next week, on the 28th-- at which point I will definetly make sure to bring up this issue with my legs. It kind of went...
  8. it's not a good day...and I feel like i'm making it all up

    I’m at work and miserable. I was OK this morning…I was great, actually. I have been feeling relatively well, some minor aches but OK. Then I went to this big meeting that lasted for over an hour and...
  9. Thread: How to Explain

    by tatiana
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    We are all here for you. I found this website at...

    We are all here for you. I found this website at a time when i couldnt express my feelings very well to others, or myself. Everyone here is so great and suportive. We are all going through this in...
  10. Thread: all alone

    by tatiana
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    hi

    I can understand what it's like not wanting to share with others. Either because you can think of how to explain it or because you fear that they cant relate or because you dont want anyone's pitty....
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    on a happy note!

    Just a few days ago I told my boss about my Lupus. No one here knew, and it's always been very difficult for me to talk about it. I try to hide it, and for the most part would get away with simply...
  12. thanks

    Thanks so much. There is so much information out there, and its almost painful to try and understand it all. i really do appreciate you taking your time to furhter define it and place it into...
  13. well...the thing is

    Thanks Missy, but my problem is that I'm NOT on prednisone. I am currently only taking aspirin for the clotting antibodies, and I was on vioxx, but i'm off it now that it's been pulled from the...
  14. Blurry vision and lack of concentration/any answers?

    Hi everyone,
    I wanted to ask the group if anyone has experienced blured vision and memory issues with LUPUS?
    I have in the past had tingling in my arm, and got to a point where i became so...
  15. Thread: Books?

    by tatiana
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    the book i read

    The First Year--Lupus: An Essential Guide for the Newly Diagnosed
    by Nancy C. Hanger

    This is the only book i ever purchased regarding Lupus. It was very good when i didnt know anything at all....
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    i sort of understand...

    I used to live in Florida, and for me it was more the stress of the bad weather that affected me. I haven't really paid attention to actual rain effects though.... the fear of thunderstorms, and...
  17. silly nurses!

    HI, i'm very glad that everything turned out to be ok! The same thing has happened to me, a nurse will call, and say the doctor needs to see me "right away", causes panic attack, stress!, and it's...
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    Vioxx, off the market!!

    Please take notice that vioxx is deemed unsafe now, and its distributer pulled it from the market. I was very upset especially because i had not heard anything about it, and its my main med, and also...
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    Thanks everyone, it really helps..by the way!!

    I read the paper and CNN confirmed it, Vioxx is off the market. It was proven to cause stroke or heart realted problems. So please take notice all of us that take vioxx!
    That leads me to the latest...
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    My boyfriend of a long time has had real trouble...

    My boyfriend of a long time has had real trouble with fully understanding this disease. He either aims too low or too high. When I tell him that I feel bad he sometimes tells me to think positive,...
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    everyday.. new issues

    thanks so much. I really apreciate everyones kind words. I have been depressed lately. I recently had to work extra hours for a whole week, and the extra effort and stress really got to me...
  22. Thread: Hi

    by tatiana
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    Hi

    Hi, i'm new to this site. I was hoping to talk to other people who have Lupus. I was diagnosed about 2 years ago, i'm 24 now. I never really wanted to talk to anyone with the disease before. I've...
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    I am looking for some suport

    Hi,
    I am 24 years old, and was diagnosed with Lupus about two years ago, although after i found out what all of my complaints meant, i realized that i was symtomatic since high school times.
    I did...
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