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  1. Thread: insomnia

    by karli1238
    Replies
    36
    Views
    3,665

    I'm still up too but this time its not insomnia,...

    I'm still up too but this time its not insomnia, I'm in the neuro icu. I have blurry vision and headache due to hydrocephalus again. They already adjusted my shunt and it didn't get better so I'm...
  2. Thread: insomnia

    by karli1238
    Replies
    36
    Views
    3,665

    Yep u have people all over the world up with u!...

    Yep u have people all over the world up with u! I'm trying to get over a nasty cold and cough. I've been sleeping all day and feel like I could go back to sleep. I'm not sure if its the cold or the...
  3. Thread: insomnia

    by karli1238
    Replies
    36
    Views
    3,665

    Hope that u can get some sleep soon. Luckily its...

    Hope that u can get some sleep soon. Luckily its only 7pm here so I still have time to sleep. Hope u get some zzzz's soon!
  4. Thread: CONFUSED

    by karli1238
    Replies
    8
    Views
    908

    I've had ana's be positive then neg and pos the...

    I've had ana's be positive then neg and pos the next time. I think it depends on the labs. I don't understand why they would just suddenly stop the meds. I know that a lot of mine have to be weaned...
  5. Replies
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    1,509

    I've been getting spasms in my back. I take...

    I've been getting spasms in my back. I take flexeril for it. They relax the muscles. I mostly just take it at night or half dose during the day. Hope you get some releif soon.
  6. Replies
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    951

    I hope you get better fast. I've been having...

    I hope you get better fast. I've been having issues lately too. Could barely walk but luckily dr gave me some oxycodone so I can move some until prednisone kicks in. This my second flare and lupus is...
  7. Thread: Its M day

    by karli1238
    Replies
    502
    Views
    136,667

    Nice that you have sun. I got up to a trace of...

    Nice that you have sun. I got up to a trace of snow that really helps my joint pain. Not. Oh well I'm in drs office now so I can get some more pain meds for back. Wonderful degenerative disc!

    Oh...
  8. Replies
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    2,192

    Thanks. I'll let her now. Her name is mary and...

    Thanks. I'll let her now. Her name is mary and will be celebrating her 41st birthday on friday. I have to think of something fun to do. She start chemo on monday.

    Thanks for your prayers. I have...
  9. Replies
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    1,905

    I have seen the same rheumy for almost 5 yrs. He...

    I have seen the same rheumy for almost 5 yrs. He first said I had UCTD and even went as far to say it was GOK - God only knows then laughed about it. I was really mad. I don't think being sick is...
  10. Replies
    26
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    3,222

    Hi summer- thanks for the reply. It seems like my...

    Hi summer- thanks for the reply. It seems like my family is slowly getting better. I had my mom read the spoon theory the other day. I think she got it but can't fully understand. She is trying...
  11. Replies
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    2,192

    Thanks Rob. This so hard to deal with. I saw her...

    Thanks Rob. This so hard to deal with. I saw her tonight. She just got her port put in and is really down. She keeps talking about how she needs to get things in order in case she's not here. It is...
  12. Replies
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    4,511

    I saw my neurosurgeon today. He just told me if...

    I saw my neurosurgeon today. He just told me if the headache doesn't go away after taking medicine for a few hours that I need to get a head CT to ck for hydrocephalus. I'm still confused on how to...
  13. Thread: Its M day

    by karli1238
    Replies
    502
    Views
    136,667

    Hope your feeling better ISDM. Its great that you...

    Hope your feeling better ISDM. Its great that you got all that stuff done.

    I got my dr to write rx for mtx tabs. I'm going to take them on fridays so I can recover on weekends. He said it doesn't...
  14. Thread: missing work

    by karli1238
    Replies
    22
    Views
    2,886

    I was in the er for the 3rd time in 3 wks for...

    I was in the er for the 3rd time in 3 wks for headaches. Luckily my shunt is ok. I went to rhuemy today. He finally actually wrote lupus down for dx. He has been dancing around it. He said I could...
  15. Replies
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    1,781

    Ya its crazy. I had my first one done in 2002 and...

    Ya its crazy. I had my first one done in 2002 and didn't have any issues. This one made me feel horrible. I slept all day yesterday that's why I'm still up at 4 am here. I took pictures of my red...
  16. Replies
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    1,781

    EEG's and lupus flares

    I had an eeg on friday. By that night my face was really red and burning. I also have a rash were a lead was placed on my right cheek. I'm guessing this is from the strobe lights that they used to...
  17. Replies
    20
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    2,699

    I hope the new med helps you. I am going to ask...

    I hope the new med helps you. I am going to ask my dr about taking something. I can't be staying up all night. Hope you got some sleep. I'm still up and its 12 so much for going to bed early...
  18. Replies
    11
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    1,313

    Welcome kristina! I've dealt with my hair falling...

    Welcome kristina! I've dealt with my hair falling recently. I is really depressing to look at my thinning hair but the good news is I'm now noticing it growing back. I hope yours starts to grow back...
  19. Thread: missing work

    by karli1238
    Replies
    22
    Views
    2,886

    Rob- my joints are still killing me. The dr said...

    Rob- my joints are still killing me. The dr said to take tylenol like I haven't already tried that. I'm going to try to get in tomorrow so I can get paperwork filled out. I have my rescheduled eeg in...
  20. Thread: missing work

    by karli1238
    Replies
    22
    Views
    2,886

    Thanks rob. Ya I'd rarther have an illness than...

    Thanks rob. Ya I'd rarther have an illness than be like them. The dr didn't call me back today. I'm going to call again in the morning. I need to start feeling better. Hoping that if I get rid of...
  21. Thread: missing work

    by karli1238
    Replies
    22
    Views
    2,886

    I have the form just need him to fill it out. I'm...

    I have the form just need him to fill it out. I'm making a list of my symptoms so I'm ready to talk to him. I'm never going to get better if I stay in that environment.
  22. Thread: missing work

    by karli1238
    Replies
    22
    Views
    2,886

    I've only been able to sleep for a few hrs...

    I've only been able to sleep for a few hrs tonight. I'm going to use another fmla day. I'm going to call dr since I've been in a lot of pain due to reducing steroids. I want him to fill out short...
  23. Replies
    20
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    2,192

    Well my aunt just got the results from all the...

    Well my aunt just got the results from all the tests. She has stage 4 colon cancer that has spread to her liver and part of her lung. She has about a 10% chance of remission. I'm really upset, don't...
  24. Thread: missing work

    by karli1238
    Replies
    22
    Views
    2,886

    I am technically the lead of the area. I have...

    I am technically the lead of the area. I have worked for the company for 7 yrs with no problems until the last 6 to 8 months. It is horrible to realize that your not capible of doing things that you...
  25. Thread: insomnia

    by karli1238
    Replies
    36
    Views
    3,665

    I used to get so frustrated that I'd start crying...

    I used to get so frustrated that I'd start crying when I couldn't sleep, now I just sleep when I can and go to work late using flma hours so I can't get in trouble. I'm just glad that I don't have to...
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