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Type: Posts; User: summerdragonfly

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  1. Replies
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    Sorry i haven't been on recently, just been busy...

    Sorry i haven't been on recently, just been busy getting some exercise in (walking and swimming). As for my father, he has had no complications that i am aware of. he healed quickly and was out of...
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    Good! You figured out how to get registerd. Have...

    Good! You figured out how to get registerd. Have you read though many of the posts yet? Love Summer
  3. I have SLE and shortly after my DX it attacked my...

    I have SLE and shortly after my DX it attacked my kidneys, spent 2 months in the hospital, they put me on dialysis and my kidneys started working again. But six months later they shut down again and...
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    my husband says that they have to do with how...

    my husband says that they have to do with how many posts' you have. if you notice that people with 4000 posts' have 4 or 5 butterflies. and less than 100 dont have any yet. i believe it goes like...
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    I went through the whole SSI/Disability BS! I...

    I went through the whole SSI/Disability BS! I waited a year because i thought i would be able to go back to work and didnt want to be "disabled", if your ready to go back to work by the time your...
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    *BIG HUG* I too had the same problems while on...

    *BIG HUG* I too had the same problems while on the 60 mg of pred. But your doc should slowly ween you down to a lower dose. I hated my puffy face, i looked like a cabbage patch kid! Just be paitent,...
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    Ive been on Ulram for my back and also had the...

    Ive been on Ulram for my back and also had the sleepys and nausea for the first month or so, now it only happens if i take Lortab with it, so i do my best to not take the Lortab unless im in lots of...
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    DITTO DITTO DITTO!!!!!!! My hubby calles me...

    DITTO DITTO DITTO!!!!!!!
    My hubby calles me space cadet! Welcome to the club STaylor and good luck, you have my support, and from the looks of it many others. .
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    I have taken CellCept (500mg 2 x day) for over 6...

    I have taken CellCept (500mg 2 x day) for over 6 years now, (for lupus AND an anti rejection med for a kidney transplant). I couldn't tell you what my side effects(SE's) are because so many of my...
  10. I actually recieved a form from a hospital i...

    I actually recieved a form from a hospital i stayed at after my kidney transplant to get a med ID braclet for $5.00 (anyone that has one knows thats a HECK of Deal), I also keep a card im my wallet...
  11. im in utah, but unfortunatly not that far north....

    im in utah, but unfortunatly not that far north. I live 120 miles from SLC, (where my nephrologist is... hes supposed to be the best so its worth the drive twice a year to see him) I dont see a...
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    Wow im sorry that your family isn't understanding...

    Wow im sorry that your family isn't understanding of what your going through, have you tried asking your mom/family to go to a doctors appointment with you? That is how my current husband found out...
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    My headaches get so bad sometimes that its hurts...

    My headaches get so bad sometimes that its hurts to do anything, i have to lay in a COOL area (i feel hot when i get them) and just lay as still as possible, it hurts to blink, turn my head, move in...
  14. WOW, ive had Lupus for almost 9 years and this is...

    WOW, ive had Lupus for almost 9 years and this is the first i've heard of this...... i never thought that my clumsiness could be from my lupus. I just though i was getting older..... learn something...
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    Lupus you'll find is different for eveyone.......

    Lupus you'll find is different for eveyone.... there are times when i can be in the sun all day and be fine. Then other days spend only a few hours in the sun and feel lousy the rest of the day...
  16. Thanks Kathy. I have rarely come across people in...

    Thanks Kathy. I have rarely come across people in my similar situation, but i know they are out there. I'm sure i'll keep up the postings.
  17. Organ Transplant due to Lupus related organ failure?

    Is there any others that have had to have an organ transplant due to Lupus related complications? My SLE hit me hard and fast, and shut down my kidneys in the first two years after being diagnosed,...
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    Hello, here is my introduction.

    Im not sure what to put here, so i'll start with the basics, Im 31 years old, i live in a small town in Utah called Huntington. I am married to a wonderful man. I have a 10 year old daughter and I...
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