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  1. Replies
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    Hi Rob, Sorry to hear you are under the weather,...

    Hi Rob,
    Sorry to hear you are under the weather, hope you feel better soon.

    Dassar RN
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    Hi Ms_Determined are you newly diagnosed? I am...

    Hi Ms_Determined
    are you newly diagnosed? I am from Jamaica living in the U.S. My mom is from St. Ann
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    Hi i am from Jamaica living in the U.S. how are...

    Hi i am from Jamaica living in the U.S. how are you?
  4. Thread: Pink eye(s)

    by dassar RN
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    I have had issues with my eyes resembling pink...

    I have had issues with my eyes resembling pink eye but it was due to the sjogren's. warm compresses with a washcloth works to relieve the inflammation to the eye. I would also have it checked out...
  5. Thread: Venting

    by dassar RN
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    Hi Ritzbit I know it gets frustrating at times I...

    Hi Ritzbit
    I know it gets frustrating at times I feel like a lab rat with the amount of medications that I have to take. Hang in there!!
  6. Thread: Butterfly RN

    by dassar RN
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    649

    Butterfly RN

    Has anyone heard from Butterfly RN? Is she OK?
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    Hi Karenboss, I too am on plaquenil and mobic. I...

    Hi Karenboss,
    I too am on plaquenil and mobic. I take 15mg of mobic daily. How much are you taking? I take it at dinner and get enough relief throughout the night when my pain is at its worst. The...
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    Hi Amanda, I have been diagnosed with...

    Hi Amanda,
    I have been diagnosed with fibromyalgia secondary to lupus. I have been taking cymbalta for the burning neuropathic pain, with muscle tenderness and pain. I agree with mountaindreamer...
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    Thanks Mountaindreamer, I am trying to think...

    Thanks Mountaindreamer,
    I am trying to think positively.:yes: This beast will definitely not get the better part of me. I know my rheumy is going to just say it is a part of the LUPUS cycle.:unsure:...
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    Here I go again

    Hi everyone,
    I need to find out if there is any form of returning to normal. Here I am doing what I need to do: change diet, doing exercises, stretches, taking my medications, resting and I still...
  11. Hi Cherokee, I am sorry you are in so much...

    Hi Cherokee,
    I am sorry you are in so much discomfort. I hope you get some relief soon. I was just:Thinkingof_: the possibility of you even calling your PCP for an early appointment to prevent any...
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    Rob, I have taken neurontin and it was NEVER...

    Rob,
    I have taken neurontin and it was NEVER that high in dosage. I will have to look it up in my PDR. I agree that she should get a second opinion.

    DASSAR RN:yes:
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    Lizza, Please keep hope alive!!!!, it is...

    Lizza,
    Please keep hope alive!!!!, it is unfortunate that these doctors do what they do but you have to keep trying. I suffered for 11 years before being diagnosed with lupus. I was even told it was...
  14. Thread: Did you see

    by dassar RN
    Replies
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    1,878

    :9: Thanks Butterfly RN Dassar RN

    :9: Thanks Butterfly RN

    Dassar RN
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    Unfortunately the only issue that I have been...

    Unfortunately the only issue that I have been having is swelling of both ankles with more to the left foot. It hurts to walk. Hoping it is nothing too serious as my next appt. with the Rheumy is next...
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    Thanks to everyone for your responses. It is good...

    Thanks to everyone for your responses. It is good to know that I am not alone!!!

    Dassar RN:cute:
  17. Thanks for those words of inspiration. Have a...

    Thanks for those words of inspiration.
    Have a wonderful day!!!

    Dassar RN:yes::yes:
  18. Replies
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    Leanne, Don't worry we all go through those...

    Leanne,
    Don't worry we all go through those lupie fog days. If there is any comfort to this I go through the brain fog daily.
    Hang in there!!

    Dassar RN:hissyfit:
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    Losing strength!!!!

    Hi everyone,
    I am writing today with tears in my eyes and suffering from the debilitating nature of this disease. It is very difficult to post something right now as I feel as if I am complaining. I...
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    Hi, welcome to our family. You will find alot of...

    Hi,
    welcome to our family. You will find alot of support from this wonderful group of people. I myself and newly diagnosed and yes I suffer from numbness to my upper and lower extremities of which...
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    HI ROB, Sending :hugs: hope you feel better...

    HI ROB,
    Sending :hugs: hope you feel better soon.

    Dassar RN
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    Saysusie, Hope you feel better soon. :hug:...

    Saysusie,
    Hope you feel better soon. :hug:
    Dassar RN
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    unusual experience

    Hi everyone,
    I had the most unusual experience with this whole lupus illness. This morning I woke up to the most pounding headache to the left side of my head. The headache was so piercing and...
  24. Thread: Damage?

    by dassar RN
    Replies
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    Hi Sandra, I am newly diagnosed Lupie, however...

    Hi Sandra,
    I am newly diagnosed Lupie, however what I do know is that it is important to pace yourself to prevent a longterm flare up that probably would take a while to go into remission. I know it...
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    Hi mommyof1, sorry that you are going through...

    Hi mommyof1,
    sorry that you are going through such a rough time. I just started taking plaquenil as a newly diagnosed lupie. It has been about 2 1/2 mths and I was told by my Rheumy that it usually...
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