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    ditto beth2300. nekhbet, your words could...

    ditto beth2300.

    nekhbet, your words could have come straight from my mouth too. everyone here has those feelings, im having one of those 'tired' days today too. so i wont say too much other than...
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    hi beth! so sorry for all your pain, heaven knows...

    hi beth! so sorry for all your pain, heaven knows all of us here know all about that :roll: :lol:

    well, i'd been on lyrica for a while (see my old posts about it) for both siezures and pain. it...
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    thanks so much saysusie, as always! i appreciate...

    thanks so much saysusie, as always! i appreciate your info. this is more concentrated and "non hype" like info than we've found. dearest hubby tends to be drawn to the pie in the sky remedies, sweet...
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    hi barbara jean, yes i have cns-sle with lung,...

    hi barbara jean, yes i have cns-sle with lung, heart, and brain involvement, along with vasculitis, and interstitial lung disease.

    oregano oil is increadibly stong, i just started it last night....
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    oregano oil anyone?l help please...

    hi all! hope you all are having a comfortable day? got a questions... have any of you heard of oregano oil? it's an essential oil that's suppose to be really good for rheumatic and inflammatory...
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    oregano oil anyone?l help..

    hi all! hope you all are having a comfortable day? got a questions... have any of you heard of oregano oil? it's an essential oil that's suppose to be really good for rheumatic and inflammatory...
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    hey there! i have the same thing, and it's called...

    hey there! i have the same thing, and it's called pleurisy when it's not the other stuff (pericarditis and such, although i get that too when i;m flaring really badly). here's some info about it from...
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    hi all! i had to jump in too :lol: for the...

    hi all! i had to jump in too :lol:

    for the sweat 'down there', which do and like crazy, i use secret antipersperant clinical strength. what i do is use a non residue leaving soap (i use a...
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    i'm lol!! are we married to brothers??!! same...

    i'm lol!! are we married to brothers??!! same thing in my house. :lol: eventhough he's here with me and see's what i go through, he (of all people) still doesn't get it either. :? he also doesn't...
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    if a complete personality makover means risking...

    if a complete personality makover means risking loosing my dear saysusie and fellow mommy to a ladybug, then absolutely not! i'll just have to help you carry some of that guilt :lol:

    thanks for...
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    thanks as always saysusie! i'm sorry about...

    thanks as always saysusie! i'm sorry about marycain, andam sorry that you're lugging guilt about it around with you. i can totally relate regarding the guilt/mothering thing. i'm a financial/career...
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    thanks pretty in pink! it's good to be back. i...

    thanks pretty in pink! it's good to be back. i hope you've been well :wink:
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    anyone on depakote for siezures?

    hi there, hope everyone is doing well! i had a bad flare/relapse and have been the hospital for a long while, since mid september, and got home last week.

    i was 4 months pregnant and did'nt know...
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    has anyone heard of "HAELAN 951"? a friend just...

    has anyone heard of "HAELAN 951"? a friend just mentioned it where they're doing trials with it on lupus patients and helping them deal with the effects of chemo (cytoxan, etc....).

    thanks :)
  15. Thread: Emotional

    by angela
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    hey there my dearest ab! i'm sending you hugs and...

    hey there my dearest ab! i'm sending you hugs and cheer ups! i totally understand how yr feeling today. fortunatley i woke up this morning with lot's o cheer, and some of it must have been meant for...
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    welcome! and sorry that you were'nt having a good...

    welcome! and sorry that you were'nt having a good day. we all feel this way at some time or other. but your in a great place here. we'll do our best to take care of you!

    be well and hang in there...
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    YAY!!!!!!!!! :BIG: congrats saysussie!

    YAY!!!!!!!!! :BIG:

    congrats saysussie!
  18. welcome back lil red!! glad that you're out and...

    welcome back lil red!! glad that you're out and about doing your thing. sounds like your having lots of fun. i understand how you feel about 'popping in'. ive been away for a lil while too, doing the...
  19. i know i'm waaay late!! i just love ALL of you...

    i know i'm waaay late!! i just love ALL of you selections!! inspiring! and like browneyed girl, i truly LOVE music. it means so much too me. it's kept through so much. i really dont know where to...
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    hi there morningstar. i'm not a doctor, but my...

    hi there morningstar. i'm not a doctor, but my sle began with breathing problems, and i continue to deal with them because my sle is focused on my heart, lungs, and brain involvement. do you, or have...
  21. Thread: Gluten Issues

    by angela
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    i'm toying with the same thing too. in addition...

    i'm toying with the same thing too. in addition to my lupus, my ladybug has (what we thnk to be) food triggered eczema. so far we've been able to keep it at bay thanks to many recommendation from...
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    yes, yes jody! get ta scrappin! :lol: i...

    yes, yes jody! get ta scrappin! :lol:

    i never considered myself the artsy craftsy type, but i love photoraphy, and somehow got myself nominated to to the troops scrapbook " :?: " and have now...
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    hi kristen. sorry you're flaring. i know the...

    hi kristen. sorry you're flaring. i know the feeling! i have vasculitis too as i said before and it's frustratingn an dpainful. im fighting a flare too. same as you, my joints are hurting as well as...
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    yes, you'll feel much better once you do....

    yes, you'll feel much better once you do. prednisone gives you a false high. its one of the side effects.

    let us know what happens or if there's anyting i can do for you :wink:
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    there's your verdict. off to see the...

    there's your verdict. off to see the rheumatologist! :P

    so sorry for the frustration. let us know what happens ok?

    be well :wink:
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