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  1. Please see my response in the other forum. ...

    Please see my response in the other forum. Please know that we read every post in every forum, so you need not post in two different places :-)


    Peace and Blessings
    Namaste
    Saysusie
  2. Hi Mua86; Welcome to our WHL family. I know...

    Hi Mua86;
    Welcome to our WHL family. I know that the testing process for Lupus (or any auto-immune disease) can be a bit overwhelming and confusing. So, let me try to go over tests one by one to...
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    Hello Jessica; Welcome to our family. You...

    Hello Jessica;
    Welcome to our family. You have come to the right place to be amongst others who are living with this disease (and other auto-immune diseases). We are here primarily to help you...
  4. Thread: Supplements

    by Saysusie
    Replies
    17
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    608

    Oluwa; I don't know how I missed your earlier...

    Oluwa;
    I don't know how I missed your earlier post. I just want to say, watching you go through everything that you described (albeit from the internet), I know how much you struggled and what a...
  5. Thread: SLE Lupus

    by Saysusie
    Replies
    4
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    118

    Just a footnote: Polymyalgia rheumatica is also...

    Just a footnote: Polymyalgia rheumatica is also an inflammatory disease (in the auto-immune family) and can often be seen as an overlapping disease with Lupus :-(. It is unfortunate that, once we...
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    Oluwa; You know how I looooooooove hearing...

    Oluwa;
    You know how I looooooooove hearing that anyone is feeling better and that a medication is working - and even working on issues that it was not prescribed for!!! So, I can actually hear...
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    Hi Perlina; I am sorry to hear that you have...

    Hi Perlina;
    I am sorry to hear that you have this condition :-(. However, you are in the right place to just "blow off" about anything. That is why we are here!! We are going to think positive...
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    Hi Heron; First and foremost...this is YOUR...

    Hi Heron;
    First and foremost...this is YOUR body, this is YOUR face, this is YOUR decision!! If you do not want another biopsy on your face (and believe me, I truly understand that), you do not...
  9. Thread: my apologies

    by Saysusie
    Replies
    5
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    136

    Hi Debbie; Please know that we are always here...

    Hi Debbie;
    Please know that we are always here for you. The loss of someone whom we love so dearly is quite devastating, I know. You can come here whenever you need comfort or just need to talk....
  10. Hi KC; I am so sorry to hear that your man is...

    Hi KC;
    I am so sorry to hear that your man is not as supportive as you'd like. As Steve mentioned, it is very difficult for men to be in a position where they cannot "fix" it! Also, add to that...
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    Hi Leenie; I am so sorry that your doctors...

    Hi Leenie;
    I am so sorry that your doctors are not being as helpful as you had hoped they would be. I just developed a rash and, like with so many lupus rashes, I have no idea why? I was in the...
  12. Hi Perlina; I am so glad that you found us...

    Hi Perlina;
    I am so glad that you found us and decided to join our family. Like you, many of us have realized that we suffered from symptoms of this disease for years and years before it was...
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    Yikes...$205/month!!!! And people balk at the...

    Yikes...$205/month!!!! And people balk at the affordable healthcare act while pharmaceutical companies do things like this!! Who can afford to pay these prices along with other living expenses..and...
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    Debbi; I can't tell you how many times I've...

    Debbi;
    I can't tell you how many times I've run around my house looking for rubber or plastic burning somewhere!!! It is truly a freaky sensation.

    Peace and Blessings
    Namaste
    Saysusie
  15. Replies
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    Heron; I'm sorry that things are so difficult...

    Heron;
    I'm sorry that things are so difficult for you. I still believe that having as much knowledge as you can will help you to deal with your doctors and become your own health advocate. It is...
  16. Thread: my apologies

    by Saysusie
    Replies
    5
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    136

    Oh, I am so sorry to hear about the loss of your...

    Oh, I am so sorry to hear about the loss of your sister and that you were unable to attend her funeral or to say goodbye. Have you considered a journal wherein you could write to her and tell her...
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    The price we each pay is probably very dependent...

    The price we each pay is probably very dependent upon the type of health insurance that we have. All of my prescriptions are only $10.00 due to my health coverage. So, I would not notice a change in...
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    Those were great and included some suggestions...

    Those were great and included some suggestions that I had not thought about myself. Thank you so much for posting this!!

    Peace and Blessings
    Namaste
    Saysusie
  19. Oh my goodness, I am so sorry to hear that you...

    Oh my goodness, I am so sorry to hear that you are going through so much. Congratulations on the birth of your beautiful baby though!
    The doctor who is best for those of us with AI-Connective...
  20. Thread: Hope

    by Saysusie
    Replies
    6
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    1,105

    So Very True Nonna!! Thank You :-)

    So Very True Nonna!! Thank You :-)
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    Hi Heron; I can hear the frustration and fear...

    Hi Heron;
    I can hear the frustration and fear in your text. I can only imagine how difficult and stressful this has all been for you. I wish that I could help you more.
    Yes, it is possible to...
  22. Thread: Hope

    by Saysusie
    Replies
    6
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    1,105

    So very true Jsimona!!

    So very true Jsimona!!
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    Hi Jsimona; Welcome to our family. I am sorry...

    Hi Jsimona;
    Welcome to our family. I am sorry to hear that you are having a bad time right now. But, we are here to help you in any way that we can and to provide you with honest and caring...
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    Hello and Welcome to our family. I am so sorry...

    Hello and Welcome to our family. I am so sorry to hear that your husband is struggling so badly with this disease. To what does his doctors contribute his weight loss? Knowing that specifically...
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    You are most welcome. I hope that we are able to...

    You are most welcome. I hope that we are able to provide you with what you need or, at the very least, be open and welcoming when you just need to talk!

    Peace and Blessings
    Namaste
    Saysusie
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