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Type: Posts; User: tanyaw

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  1. Replies
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    Thanks so much for all your responses. My one...

    Thanks so much for all your responses. My one doctor who I went to after being diagnosed and who has been with me for years recommended for me to stay on the meds. He said that a flare would be...
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    Hi, Just to let you know that when I was...

    Hi, Just to let you know that when I was diagnosed I had all the tests done one day and everything came back normal. Six weeks later at a different hospital (i was totally crippled up by this point),...
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    Advice about going off Plaquenil

    I have two conflicting opinions from two Rheumies - my new one told me to go off Plaquenil as I am in remission (finally after 4.5 years) and my old rheumie (had to stop going to him as the hospital...
  4. Thread: Lupus diet?

    by tanyaw
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    Thanks for your replies. Hatlady - do you...

    Thanks for your replies.

    Hatlady - do you think cutting out red meat helped? I rarely eat it but when I go on vacation back home or to Europe, I really have a meat fest. After 3 or 4 days of meat,...
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    Hi, Thanks for your replies. Hopefully my...

    Hi,

    Thanks for your replies.

    Hopefully my next appt. will show better bloodwork.

    I would love to hear from someone that has carried a baby and had the fetal heart block antibody.
  6. Thread: Lupus diet?

    by tanyaw
    Replies
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    1,129

    Lupus diet?

    HI,

    I am wondering if anyone has followed a gluten free, red meat and dairy free diet and has had sucess with it? This diet is recommended for MS sufferers and also for autoimmune disease...
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    pregnancy and antiphospholipid antibody

    Hi,

    I am wondering if anyone has a sucessful pregnancy with a positive antiphosolipid(SP) antibody? I also have a concern that a pregnancy would have longterm affects on me. I have a 6yr old and a...
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    changes in lifestyle

    I am a firm believer (like mnjonette) that God gave me this disease to slow me down (I also would have preferred a more subtle warning). I was living a very high not a care in the world lifestyle...
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    Hairloss and Plaquenil? is it related?

    Hi, I know that I am sounding redundant as I have gone on every board about hairloss yet I was just reading that Plaquenil is prescribed to people to help with hairloss...then what is causing my...
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    hairloss

    I finally did it and got all my hair cut off. I was so disgusted with the huge (and I mean huge) amount of hair that I pulled from my drain last week. I was scared to look at it as it looked like a...
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    hairloss

    Once again MARYCAIN, I always appreciate your responses. I would love curly hair! My hair used to be auburn but as I am so grey now, I have gone lighter but now paranoid about colour and highlights...
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    hairloss

    I am going through the motion right now of losing a considerable amount of hair. It started about two months ago and I started to use a VICHY woman's hairloss product that really made my hair nice...
  13. Thread: Exercise ideas?

    by tanyaw
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    exercise

    I was just on vacation for 8 days and I literally swam the whole time (in a full suit as I am not sure how sun affects me and was not willing to risk it, looked like a dingo but what the heck!) and I...
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    hairloss

    I remember when I was first diagnosed back in Aug. all the docs looked at my hair and told me that it would probably not fall out as usually the worst flare is the sign of the future and since I...
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    thanks

    Hi Angie,

    Thanks for your reply to my pregnancy inquiry. I am so pleased that your pregnancy is going well. You answered a lot of questions for me by telling me your story. Right now I am on a...
  16. Thread: Trying to deal

    by tanyaw
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    Hi, just keep your thoughts positive and eat...

    Hi, just keep your thoughts positive and eat healthy and ask for help when you are feeling low. I have two little ones too that I haven't spent much time with due to exhaustion and generally feeling...
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    diagnosis in 6 weeks

    My diagnosis was also pretty quick but felt like an eternity...I had a miscarriage in May and thought that I was geting arthritis in my fingers. At 36 and being very healthy, I thought it odd. Then...
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    Pregnancy and Lupus???

    Has anyone had a baby after being diagnosed with Lupus? I am curious as I miscarried in May (probably due to Lupus, I had no symptoms but they started soon after) and I really wanted that 3rd baby. I...
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    Thanks MaryCain

    Thanks for that info. I just returned from the nephrologist and he is going to wait for more labs in a months time to see if I need meds or a biopsy. He thinks that maybe my meds now are keeping my...
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    My kids physician told me that her best friend...

    My kids physician told me that her best friend has lupus and has had one flare in 10 years!!!!And one of my friends told me that her friend has had one flare in 5 years....I had hope that would be me...
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    By the way, why does it say Sea Monkey under my...

    By the way, why does it say Sea Monkey under my name????
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    Kidney Biopsy.....

    Just here to get a little advice. I was informed this morning that my 24 urine test says that I have borderline protein and am in need of a biopsy. I am totally freaked! Should I be? Is this normal...
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    tapering

    I was told by many doctors that my hair loss is due to the steroids not the disease. My kids are suffering from the steroids as my fuse is short and sometimes I blow without warning and these two...
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    tapering

    I am going through the same as you are...if I followed the schedule that was made for me, I would be at 5mg now but my body was not in agreement. At the 10mg mark, I reverted back to my pre-diagnosis...
  25. Thread: Getting fat???

    by tanyaw
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    Thanks

    Thanks MARYCAIN for all the great info! I am a Canadian living here so my diet is very plain and Wedstern oriented. I am not a rice eater and steer away from Saudi food as it is soooo high in fat....
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