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    I hadn't thought of using it to help explain it...

    I hadn't thought of using it to help explain it to others - that's a great idea. Yesterday I felt like I was stuck upside down on the loopty-loop...or maybe should call it the lupie-loop. haha ...
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    lyme too

    Hi jcg - I felt like I was reading a post that I wrote! I have been battling lyme (and babesia) for 2 1/2 years (and many years trying to get diagnosed). I have always been very susceptible to...
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    Thanks for your replies. I thought I liked...

    Thanks for your replies. I thought I liked roller coasters until I realized what it's like to LIVE one. :P Very well said that the moment at the top of the hill makes us able to endure the rest! :)...
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    Roller Coaster Analogy

    Many times I've made the comment "my life is like a roller coaster ride." I was thinking this morning just how much it really is like one.

    Heading up the first big hill of a roller coaster you...
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    I love that song! I didn't pay much attention to...

    I love that song! I didn't pay much attention to it until I heard that Rob Thomas wrote it for his wife but now my kids call it "Mom's song" and know to be quiet while it's on the radio! LOL

    Ang
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    Then of course there's the wonderful "forgetting...

    Then of course there's the wonderful "forgetting words" problem. The other day I was trying to say amusement park and said museum. Realized that was wrong but couldn't think of the right word. ...
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    Hi Kris - I have had problems for years and years...

    Hi Kris - I have had problems for years and years with patches of "bumps" on various areas of my skin. I don't know if they are the same as what you get so I will try to describe mine...
    ...
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    Thanks Oluwa. I'm slowly learning that it's best...

    Thanks Oluwa. I'm slowly learning that it's best to mention EVERY little symptom to doctors. You just never know what is a clue that would get you diagnosed more quickly.

    Ang
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    I've gotten them also in the past but it's been a...

    I've gotten them also in the past but it's been a while. Never thought of the lupus connection for those! Mine sometimes seemed to last a long time but I never mentioned them to a doctor so never...
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    Thanks!

    Thanks for all the responses! I thought I remembered reading that about half get the rash/half don't. Why can one person's bad reaction make you doubt yourself?? :P

    Hopefully I won't be back...
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    % of you that get butterfly rash?

    Just curious...is there anyone else that has been diagnosed with Lupus that doesn't have the butterfly rash on their face?

    I do not (but have other skin issues) and last week I was in the...
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    Thanks!

    Thanks for the responses. It's always nice to have a place to come where you can bring up weird symptoms and not have people think you are wacko! haha Oluwa-yes, I'm new. I just jumped right in...
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    lol - I wish I didn't know so much info about...

    lol - I wish I didn't know so much info about ticks. However, I'm glad to share info whenever possible though to hopefully help others get diagnosed before it gets to the later stages! I will say...
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    Perhaps it's something that comes and goes with...

    Perhaps it's something that comes and goes with flares?? Always a new mystery... Looking forward to other responses!

    Ang
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    opposite is happening to me

    Hi debbie - I can't really answer your question but thought it was odd that I feel like the opposite is happening to me. I used to be really sensitive to smells and now I'm not at all. I babysit...
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    lyme vs. lupus

    Hi Lizza,

    Well, unfortunately, I have both lupus and lyme so can probably give you some information. lol Yes, both have some very similar symptoms so it's difficult to determine what's going on...
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    prayers

    Hi Kim - I am new to the board but just wanted to say I'll be praying for you and your family!!! You sound like an amazingly strong woman - you are dealing with so much right now but are still being...
  18. Thread: Insect bites

    by Ang123
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    me too!

    I get enormous welts also and always have. They last forever too - my husband can get bitten and have a little tiny red mark and it will be gone the next day. I'll still be itching like crazy weeks...
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    body temp below 98.6?

    Hi - I've seen fevers mentioned frequently with Lupus but my question is...does anyone else typically have a BELOW normal body temp? My "normal" temp is about 97.2 so I can feel as though I have a...
  20. Thread: Lupus diet

    by Ang123
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    Funny you should post this today...I just was...

    Funny you should post this today...I just was searching around yesterday for information on foods to eat/avoid before I did my grocery shopping. lol I found some good info on the Lupus Foundation of...
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    leg pain/spasms/numbness/clot?

    Wasn't sure what title to put since I'm having a lot of leg problems. lol

    A while ago I started having problems with my left leg - spasms, tingly feeling (like something crawling on my...
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    Gallbladder test?

    Hi Kirsten - May be a long shot but it may be something for you to have checked....I just had a "HIDA scan w/ CCK" done to test my gallbladder. I had been having weird stomach issues - although not...
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    I just had a HIDA scan today to see if need my...

    I just had a HIDA scan today to see if need my gallbladder removed. The technician said she estimated it to be at about 25% functioning (she was really nice and said she hates that patients have to...
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    Hi Phylis and Saysusie - Thanks so much for your...

    Hi Phylis and Saysusie - Thanks so much for your responses. It's good to be able to get some information so I can go to my appt prepared.

    Phylis, yes it has been a long time coming to get my...
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    Has anyone used Mepron?

    Hi, will try to keep a long story short...lol...I was diagnosed with Lyme 2 1/2 years ago and have not been having much success with treatments. Recent tests also showed I have Babesia (a...
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