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Type: Posts; User: maisie

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    Hi there! I have SLE/SJOGRENS overlap. Last year...

    Hi there!
    I have SLE/SJOGRENS overlap. Last year I had a rash on my thigh which my dermatologist couldn't identify. He said that it was tumour like and may be lymphoma or cutaneous metastes. He...
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    Hi Jaynie Just read your query about sunscreen...

    Hi Jaynie
    Just read your query about sunscreen in the UK. Better late than never! My dermatologist and GO prescribe Sunsense factor 50 for me. Ask your GO to do the same unless you are already...
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    Hi Shanna yes the Plaquenil does seem to be...

    Hi Shanna
    yes the Plaquenil does seem to be working well. The LUPUS tumidus rash on my leg started to disappear within a short time and the malar rash on my face soon followed . The joint pains ...
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    Hi Shanna, I saw the nephrologist last week and...

    Hi Shanna,
    I saw the nephrologist last week and she told me that the biopsy clearly showed that the lupus had attacked my kidneys but it seemed as though it was in its early stages. Here in the UK...
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    Hi Shanna I don't see my nephrologist until next...

    Hi Shanna
    I don't see my nephrologist until next week. I'm hoping that the involvement is so mild that I won't need treatment, just monitoring. I really don't know and I'm a bit anxious about...
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    Lupus tumidus and lupus nephritis

    Hi. Everyone
    A skin biopsy on a huge rash on my right thigh in July led to a diagnosis of LUPUS and I saw my Dermatologist again on Friday when he told me that further tests revealed that the rash...
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    Hi Jaynie I think as a rule it's best not to...

    Hi Jaynie
    I think as a rule it's best not to have people stick pointy things in your kidneys if you can possibly avoid it!!!!
    How long have you been on Plaquenil?
    PS I meant to write rheumy in my...
  8. Thread: warts?

    by maisie
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    warts?

    I am recently diagnosed with lupus and sjogrens. In Jan I had a huge rash on my right thigh which spread to my face. I was given plaquenil on July 3 and a steroid cream for my face which I used for 5...
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    Hi Jayne I had the biopsy because I have blood...

    Hi Jayne
    I had the biopsy because I have blood and protein in my urine and my kidney function is down. My hermit explained to me that my treatment would be different if the lupus is in my kidneys. I...
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    Hi Jayne I live in Liverpool and have...

    Hi Jayne
    I live in Liverpool and have consultants at the Royal and Broadgreen. I understand that addenbrokes is really good.Sorry if you get two replies but I wasn't sure that I sent the first one...
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    Hi Jayne I'm in liverpool. The biopsy has been...

    Hi Jayne
    I'm in liverpool. The biopsy has been done and it wasn't too bad I'm just waiting for the results. my rheumy explained that the docs want to be absolutely certain that the Lupus is in the...
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    I was a bit relieved really because it explained...

    I was a bit relieved really because it explained a great deal. I first went to the doctor about my problems with the sun in 1979. He told me that I was allergic to UV and to avoid the sun at all...
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    Hi there! I am going through something...

    Hi there!
    I am going through something similar.please see my post on the newbie page. I had no obvious symptoms of kidney problems but my kidney function was tested and retested and I filled the...
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    another step on my journey

    Hi all
    I am trying to chart my journey in the hopes that it may help others who are waiting for a diagnosis or are newly diagnosed, just as other people's posts have helped me.
    I spent most of last...
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    A very positive experience

    Hi all
    I had my first appointment with a rheumy today today and he confirmed the diagnosis made by my Dermatologist and nephrologist of Lupus and Sjogrens. Now this may not seem very positive but he...
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    Thanks Jaynie it's helpful to have other people's...

    Thanks Jaynie it's helpful to have other people's experiences to compare. Today the renal support nurse phoned me and explained that they want to know whether or not my kidney probe are caused by the...
  17. Thread: Lupus at 60

    by maisie
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    Hi I'm new to this forum and I just read your...

    Hi I'm new to this forum and I just read your post. I'm 60 too and I was diagnosed last week. The doctors think I've had it since at least 1985 . Hope that you're well
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    As people have been kind enough to respond to my...

    As people have been kind enough to respond to my previous posts, I thought that I would give an update and ask for a bit more advice.
    I saw the kidney specialist today and she agrees with the...
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    Thanks for your replies and interest.I have only...

    Thanks for your replies and interest.I have only waited 8 months for a diagnosis so I think that I am more fortunate than most. It helps a lot to hear other people's stories and to have support from...
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    I dont know whether I should be glad or sad

    My dermatologist just phoned to tell me that the biopsy of the rash on my thigh shows that it is massively inflamed and is strongly suggestive of systemic lupus when combined with my blood results...
  21. Thread: hello Im new

    by maisie
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    thanks Debbie

    My doctor says that he thinks the kidney failure is connected to the rash and the rash is connected to lupus.

    I have an appointment to see a Nephrologist next week and he had fast tracked me to...
  22. Thread: hello Im new

    by maisie
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    hello Im new

    I don't know if I have lupus but my GP thinks that I do. Last year I had terrible joint pains and felt totally exhausted all the time. After tests I was diagnosed with prosperous and severe vit d...
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