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  1. Thread: Blogs

    by sprant
    Replies
    6
    Views
    515

    Thanks Giggle, what's the name of your blog? So I...

    Thanks Giggle, what's the name of your blog? So I can find it. Blogging is all very new to me, so just trying to find my feet with it at the moment. I don't think you have to be a good writer, I...
  2. Thread: Blogs

    by sprant
    Replies
    6
    Views
    515

    Goodness I didn't even realize this site had a...

    Goodness I didn't even realize this site had a blog section, I must not be in the best frame of mind when I am on here LOL. Great I will check it out. Blogs are new territory to me. I really enjoy...
  3. Replies
    13
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    1,157

    Unfortunately busymom3, I have had this as well....

    Unfortunately busymom3, I have had this as well. I got referred to a cardiologist by my doctor and receptionist said that he would have to look at the referral before he decides to take me on. I felt...
  4. Thread: Blogs

    by sprant
    Replies
    6
    Views
    515

    Blogs

    Hi all,

    Sorry to have disappeared over the last few months, I have once again been fighting with my body and also fighting to get the medication I need. Finally I have had some success with...
  5. Thread: Music and Life

    by sprant
    Replies
    68
    Views
    5,752

    What a fantastic post. I have just been listening...

    What a fantastic post. I have just been listening to your songs and they were a treat. Music is really important to me too. It is my profession, I am a music therapist and work with children with a...
  6. Sorry for my delay in response, I have had a...

    Sorry for my delay in response, I have had a rough week, and havn't managed much. I went to a rheumatologist last week who said it was highly likely to be caused by lupus, but that it is a rare...
  7. Replies
    15
    Views
    869

    What awesome days, reading them has put a smile...

    What awesome days, reading them has put a smile on my face. I will have to add lying in the sun at the beach and body bording for hours in the water. Oh crap, not enough hours in one day...
  8. Replies
    15
    Views
    869

    SLE symptom free bucketlist

    I got myself in a state one night. When my partner asked why I was crying all I could say was "I just need one day off". I hadn't had a symptom free day for months and the daily struggle was getting...
  9. Hi Red, sorry your daughter has POTS it is a...

    Hi Red, sorry your daughter has POTS it is a rubbish thing to have. To be honest I have got to the point that I don't know which symptom is coming from which disease, or medication. I am on...
  10. Thanks for the replies. My rheumotologist called...

    Thanks for the replies. My rheumotologist called me and she is going to do some research into it. Feeling better that she is on the case now (I had a different consultant treat me for the POTS). I...
  11. Autonomic nervous system and lupus HELLLLLPPPPPP

    Hey guys,

    Sorry I have not been on here for awhile. I have had a terrible time in and out of hospital and was at times completely incapacitated. I was diagnosed with postural orthostatic...
  12. Oh yeah nothing like a doctor show down....

    Oh yeah nothing like a doctor show down. Particularly with some of their egos. I had a general consultant at the hospital have a disagreement with the cardiology department over my case. It turned...
  13. Replies
    5
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    829

    Thanks everyone for your responses. I really...

    Thanks everyone for your responses.

    I really like Robs "same stuff, different day". It is just sooooo hard to describe the roller coaster ride we are on to others, they just don't get it. I don't...
  14. Replies
    5
    Views
    829

    "hows the health"?

    So today I got asked "how's the health"? by a work collegue who knew I had been going through a difficult time with my lupus. I really stumbled over the answer, couldn't think of how to answer this...
  15. Replies
    4
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    1,320

    I am having a good day, because it is WARM. Yahoo...

    I am having a good day, because it is WARM. Yahoo I love days like these, makes everything so much easier.

    How are you going today?
  16. Replies
    4
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    1,320

    Hi Kathy, Thanks for your lovely welcome and...

    Hi Kathy,

    Thanks for your lovely welcome and reply. It's always helpful finding out others experiences when trying to make choices etc and meeting lovely people. So I am sure I'll be hanging...
  17. Replies
    4
    Views
    1,320

    Iloprost infusion

    Hello all,

    I was wondering if anyone has had an iloprost infusion before. My rhuemy suggested that I should consider having one to help with my circulation and raynauds symptoms. I got put off by...
  18. Replies
    31
    Views
    3,997

    Hey all, I have had a chuckle to myself...

    Hey all,

    I have had a chuckle to myself reading your posts to this topic because circulation is not my bodies forte.

    I went to the doctor because my feet just couldn't get warm and I kept...
  19. Replies
    8
    Views
    1,531

    Thank you for your quick replies, Like you...

    Thank you for your quick replies,

    Like you sits_inthe_corner I freaked when I first had chest pain - that is a few years ago now. Now I know not to panick so much when I get it. But this just...
  20. Replies
    8
    Views
    1,531

    left side chest pain

    Hey guys,

    Sorry I have not posted for ages, but I have been checking in with how you are all doing from time to time.

    I am aware that chest pain with us lupies can occur, and it is a symptom I...
  21. Replies
    5
    Views
    750

    That's great NoodleMom :D It is funny that you...

    That's great NoodleMom :D It is funny that you posted this today as I too have had a great day, I have had very minimal pain, but the best thing was I came home from work not feeling like a zombie...
  22. Replies
    12
    Views
    2,635

    Oh thanks Sick n tired, I just put my arms above...

    Oh thanks Sick n tired, I just put my arms above my head when I was having trouble yawning/deep breathing and it really helped. I must have looked a bit crazy when I did this at the petrol station.
    ...
  23. Replies
    12
    Views
    2,635

    I have another yawning related complaint that I...

    I have another yawning related complaint that I was wondering if anyonelse gets. I too feel the urge to yawn a alot at times, but I often get this feeling that when I try to yawn I don't quite manage...
  24. Replies
    2
    Views
    612

    Hi Sick n tired, I have had problems with...

    Hi Sick n tired,

    I have had problems with nausea as well, which has in the past effected my intake of food. After many trips to the doctor and finally a stomach specialist (who excluded gastro...
  25. Replies
    4
    Views
    1,220

    Hey thanks for your replies and advise, :D ...

    Hey thanks for your replies and advise, :D

    Saysuzie they are great suggestions I will give those a go. Too bad plaquenil doesn't help with relieving nausea. I was put on maxolon before I was...
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