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Type: Posts; User: ElyMiller000

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    you have to take care of yourself first. Imagine...

    you have to take care of yourself first. Imagine the problems that could occur from all the meds and being pregnant. Also, if you're successful with a pregnancy but don't handle your health- it would...
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    yeah mine happened overnight too. I have never...

    yeah mine happened overnight too. I have never cared much for showing off skin, but its ridiculous that now i cant even wear regular shirts w/o them showin on my arm and swim suits are now so way out...
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    I've ALWAYS been told the lost hair comes back....

    I've ALWAYS been told the lost hair comes back. It may come back different but does come back. I lost a lot of my hair and now I'm wearing lace wigs...but I feel so silly cause I just know...its...
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    Scary stretch marks?

    At the beginning of my treatment I began bloating HORRIBLY. I didn't notice how horrible it was til I saw my skin had ripped in thunderlike patterns. Now that some of the water and bloating is down,...
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    I'm sorry you have weird doctors, but I can tell...

    I'm sorry you have weird doctors, but I can tell you this much, if you can localize pain to a location, it probably is that location. If you have pain in your ear, its in your ear- not your head or...
  6. Thread: Hi,

    by ElyMiller000
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    Well see, I was told that me eating more protein...

    Well see, I was told that me eating more protein wasn't helpful due to the fact that I would just spill more of it...I don't see why you wouldn't be able to build muscle...you might be spilling some...
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    Anyone else experiencing this?

    Constant muscle cramping/locking up...mainly the calves and fingers...and this is the worst...ok, lets say youre standing or walking, all of a sudden you hear an internal cracking noise from your...
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    I'm so sorry that your experience with Doctors...

    I'm so sorry that your experience with Doctors has been a horrible one. I am very lucky because my Doctors almost seem heaven sent. I have a group of men (like 4 or 5) who stay in touch with each...
  9. Thread: Hello

    by ElyMiller000
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    I live in Live Oak, its outside of San Antonio. ...

    I live in Live Oak, its outside of San Antonio.

    Thanks everyone for the welcome.
  10. Thread: Hello

    by ElyMiller000
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    I'm taking prednisone and Cytoxan

    I'm taking prednisone and Cytoxan
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    You have every right to feel hurt and I would...

    You have every right to feel hurt and I would absolutely feel hurt about something like that...however, who are you really helping by not doing anything on that day? Are you helping yourself? Because...
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    If you're on prednisone, then there's the...

    If you're on prednisone, then there's the culprit. I went from eating like a bird because I felt so bad to waking up in the middle of the night with absolutely horrible hunger that would almost make...
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    A positive outlook

    I know many of you might not relate to this, but I just wanted to give a different outlook. I am thankful to God for everything in my life, including my health. I know it could be better but I also...
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    I'm a teen...and yeah. My mum doesn't rub it in...

    I'm a teen...and yeah.
    My mum doesn't rub it in my face but I see it...and it bothers me. She stayed up late last night going through all my bills. Everyday I get the mail and we have like three...
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    I know what you mean because I'm going through...

    I know what you mean because I'm going through the same issues, however I don't feel depressed about it. The reason I don't is because I know God will make everything better, I don't know if that...
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    -=-=-=- YOU-=-=-=- 1. Name: Ely 2. Age/D.O.B:...

    -=-=-=- YOU-=-=-=-
    1. Name: Ely
    2. Age/D.O.B: 18
    3. Boyfriend/Girlfriend's Name: Husband- Ryan
    -=-=-=- Favorites! -=-=-=-=-
    4.Your favorite colour: Lime Green and Hot Pink and Dark Purple...
  17. Thread: Twitching

    by ElyMiller000
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    Twitching

    I'm guessing it's the meds...I've never been a nervous person, but I noticed I can't talk without shaking and seeming nervous now. I cant hold my glass without shaking and my hands are always...
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    My calves and fingers lock up/fall asleep often,...

    My calves and fingers lock up/fall asleep often, when I told my doctor about it he said it was probably prednisone, because it can cause muscle weakness.
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    My doctor told me my eye sight problems (which I...

    My doctor told me my eye sight problems (which I am having too) were because of prednisone...
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    That's awful. I'm on prednisone, but my teeth are...

    That's awful. I'm on prednisone, but my teeth are fine, I have noticed I have discomfort- like sensitivity. I'm currently decreasing my dosage to 30 (from 60) and I'm a little afraid of what it will...
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    Sticky: I don't know if anyone here has answered this...

    I don't know if anyone here has answered this cause to be honest, I didn't bother looking (sorry!) But...could anyone let me know this...How much exposure is too much? For example, I was feeling fine...
  22. Thread: Hello

    by ElyMiller000
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    Hello

    My name is Ely. I obviously have Lupus, systematic. I was diagnosed with it about a month and a half ago, but the symptoms began 2 months ago. I'm eighteen...apperantly it was pretty aggressive, but...
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