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  1. Replies
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    Lupus

    Rach

    I know how you feel! I'm not 28 (I'm 47) but I've been living with the symptoms the past few years and finally got a firm diagnosis last July after having seizures/migraines for a couple...
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    Vegas

    My husband and I have gone to Vegas the last couple years (except for this year). I'm recovering from hip surgery and 2 staph infections.

    My aunt lives in Vegas and she gave us some great tips...
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    Raynauds

    I saw that taking Procardia was mentioned for Raynauds. My podiatrist prescribed it but I have lupus of the brain and the Procardia causes severe headaches! My rheumatologist told me not to take it...
  4. Meds

    I know what you all mean by the number of meds. I work for Express Scripts so have good prescription benefits but I still spend quite a bit every month. Here's my daily list:

    For Lupus:...
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    Recurrent staph infections post op

    I had hip surgery in Jan to correct bursitis. Thought I was improving but then got a staph infection in the joint in Feb. After 3 mos of woundcare and endless pain, we thought I was finally getting...
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    Neurontin

    Yes both of these drugs are effective in dealing with nerve pain. I use the Lyrica for seizures and had used Neurontin for many years for a damaged jaw. My dr discontinue the Neurontin saying it's...
  7. Thread: Migraines?

    by catlady4520
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    Migraines

    What type of lupus do you have? Do you have the kind that affects your brain? I have that kind and used to get severe migraines with a rash so bad it felt like my face was on fire.

    I was put on...
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    Heat/cold

    Yes I've got Raynauds so I normally can't stand the heat but in the summer we use a swamp cooler to cool our house. I immediately get blue hands/feet and tip of my nose. I've got lots of summer...
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    hrt

    i take onlly the estrogen because the progesterone causes swelling and headaches. Since I still have my uterus, I then have to take progesterone every 3 mos. I tried all the natural stuff and it...
  10. Rash

    My rash is kind of raised but mine goes across my cheeks, the bridge of my nose and sometimes up into my eyebrows when it's really bad. It doesn't really itch but burns like fire. I use a cortisone...
  11. disability

    Well since my original posting, I got yet another staph infection in my hip. My dr did cultures on 5/4/06 and called me on 5/5/06 to let me know that I had to go back into the hospital for more...
  12. Thread: Oxycontin

    by catlady4520
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    1,173

    Oxycontin

    I take oxycontin for pain mgmt but it's for healing from MRSA. I had hip surgery in Jan, got a staph infection in Feb, went through 3 mos of wound care and then ended up with MRSA in May. I'm...
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    Welcome!

    Nikki, welcome to our support group! This is best place to find answers and just have someone to talk to who understands exactly what you feel like!

    It took almost 5 yrs for me to get a firm...
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    MRSA

    No I didn't go to the hospital in Wheatridge. I went to one of the hospitals in Pueblo (St Mary-Corwin). If anyone happens to get sick while passing through here, I would suggest going to our...
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    Staph infection again!!!

    I just got out the the hospital with a staph infection in my hip called MRSA. The dr said there are only a couple antibiotics that can treat it as this is a resistant strain. I was just in the...
  16. Thread: Chest Pain

    by catlady4520
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    6,759

    Chest pain

    I too had had a bout with severe chest pain several years ago. I thought it possibly was a heart attack as heart disease runs in the women's side of my mom's family. After many tests, they...
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    Daughter

    Sorry to hear your daughter is ill. When I have the rash on my face, it does burn to the touch. A couple of months ago, I was in the hospital for a staph infection and my face rash got really bad. ...
  18. Denver

    I wish I knew of a good rheumatologist in Denver. I have one in Colo Spgs I really like and can give you her info if you want. I know how hard it is to find a good doctors. Rheumatologists are so...
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    Diagnosis

    I have never heard of LPI but as far as getting the diagnosis of lupus, half the battle seems to just get to the diagnosis. I had had symptoms for 5 yrs but until I started having seizures and had...
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    Vasculitis

    Hatlady

    Have you ever had seizures with the brain problems? I had an MRI and lumbar puncture to get a definite diagnosis of lupus. My dr said what I have is classified as cerebritis. I hate to...
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    Diagnosis

    It honestly can sometimes take years to get a definitive diagnosis. I was sent to a rheumatologist in 2001 because of a highly positive ANA and Raynauds/joint pain/butterfly rash (I thought...
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    Happy Easter!

    Just wanted to wish everyone a happy and peaceful Easter! Let's all continue to pray for each other's improved health in the coming year!
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    Surgery

    I had a similar situation. I had hip surgery for bursitis in Jan. Three weeks later, I develeoped a bad staph infection. They know think that because i had just finished a 6 month course of chemo...
  24. Thread: Hi

    by catlady4520
    Replies
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    832

    Infection

    Silverlioness

    I know what you mean about being frustrated with having had a bad infection. I had hip surgery in Jan and then 3 wks later came down with a staph infection. I spent 2 weeks in the...
  25. ADA

    We actually have adjustable workstations, ergonomic chairs and I have an ergonomic keyboard.

    I've already made a suggestion to have automatic door openers but we have to badge in to gain access to...
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