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  1. hi loddie

    hi Loddie!
    your post makes me sad and happy at the same time. sad because i identify so much with you- ot rbings back so manyu feelings. and happy because i am better now, and i look good again and...
  2. Thread: reply to loddie

    by carlau
    Replies
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    837

    reply to loddie

    hi Loddie!
    your post makes me sad and happy at the same time. sad because i identify so much with you- ot rbings back so manyu feelings. and happy because i am better now, and i look good again and...
  3. hi there i've only been only disability for a...

    hi there
    i've only been only disability for a few months- had to wait 3 years for it to go to trial and then more waiting after that.
    how often do they have you come back and re-testify?
    Carla
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    hmm yeah i was prescribed actonel but when i read...

    hmm yeah i was prescribed actonel but when i read abotu all the stuff youhave to do to not get nauseous, i decided not to take it and to pursue alternative medicine so i could get off the prednisone...
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    yeah me too- i had pains in my kidneys (right...

    yeah me too- i had pains in my kidneys (right back side) like i was getting stabbed with a knife, and it turned otu i had kidney problems.
    Carla
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    wow saysusie really knows her sh*t. for your...

    wow saysusie really knows her sh*t.
    for your hands, as a musician i truly sympathize and would like to suggest a little self care-
    i got a parrafin hot wax hand bath. you can get one at bed bath...
  7. Thread: specialist?

    by carlau
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    2,388

    wherever yuou are, as long as you are looking...

    wherever yuou are, as long as you are looking within mainstream medicine, you ar going ot be referred to a rheumatologist, and where I come from (South carolina) you ahve to go through a primary...
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    hi all i've had 2 horrific flares, one in...

    hi all
    i've had 2 horrific flares, one in 1992-94, anotehr 2001-2003.
    both times my period stopped *before* getting on the prednisone.
    first, in March 1993 it started coming heavier, then every 2...
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    oh yeah and did i mention that at the time my...

    oh yeah and did i mention that at the time my sister was turning my illness into a sibling rivalry thing, i was 26 and she was 29?
    aren't we a little old for such behavior???? :x
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    wow i just read your story about your crazymaker...

    wow i just read your story about your crazymaker parents.
    i can relate to some degree, having a family that just doesn't "get it."
    my older sister actually resented me because she thoguht i was...
  11. death is not psychosomatic! nicely said!!!! as...

    death is not psychosomatic! nicely said!!!!
    as always people belittle what they do not understand, so i think that that is what people do with lupus. i get weird stuff like "isn't that something...
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    go ahead and vent! that's what the chat room is...

    go ahead and vent! that's what the chat room is for right?? 'cause we've all been through it.

    sounds like a hematologist might eb able to shed some light. i was impressed with the guy i was going...
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    so sorry :( iis didronel like actonel- drug to...

    so sorry :(
    iis didronel like actonel- drug to stop bone destruction?
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    did they ever put you on calcium or actonel? it...

    did they ever put you on calcium or actonel? it may be a little late now... but 've been on prednisone twice, both time for over a year, and knew pretty early on about the bone issues-0 had a riend...
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    i did 2

    i had 2 treatments then quit.
    i was on 8 drugs, incl 40mg of prednisone, and also doing tons of alternative medicine, so since i was doing so well i quit.... it made me feel VERY sick. it was a...
  16. E mail dr phil and tell him to learn about lupus!

    http://www.drphil.com/email/email_phil_show.jhtml
  17. i e mailed dr phil!

    here's a link to where you can e mail the show. i think we should bombard him!
    it is a chance for us to make him correct his error and at the same time make some lemonade out of this lemon and...
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    sudden pain?

    did this come on suddenly?
    maybe you could use some kinesiology (muscle testing, intuitive and very gentle but powerful)- i recently had someone gently put ym back in line for me using kinesiology...
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    i must avoid the cold myself

    being in the cold causes me geat PAIN!
    i find the temperate climate of south florida in fall and winter very kind to my health.
    i get bronchitis a lot, especially when exposed to cold dry air, as...
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    support group

    hey! thumbs up to you for starting a group!
    in 1994 when i first went to a local lupus chapter, i was disappointed that he only things that group was open to was talking about prednisone and...
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    getting diagnosed

    hey there
    sounds like you are really going through the wringer. ouch.
    the whole dignosing lupus with a blood test is almost a useless exercise, as they can get a false positive test OR a flasse...
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    i also take milk thistle to clean out my liver ...

    i also take milk thistle to clean out my liver
    and i take fish oil daily and it really reduces inflammation in my joints and also helps regulate my mood.
    food and stress can be a big aggravating...
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    i already ahve 2 of them but that is good to know...

    i already ahve 2 of them but that is good to know for other folks that insurance will maybe pay!!!
    if not, bed bath adn beyond ahs them for only $10! wahoO!
  24. I evacuated! I'm fine- thansk for asking. been...

    I evacuated! I'm fine- thansk for asking. been trying to touch base with all my friends to make sure they survived. many lost trees and power and phone for a while, can't be fun in the heat!!!
    ...
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    thanks for sending a smile back to me. well as...

    thanks for sending a smile back to me. well as you can tell i write songs from personal experience. keep coming around this chat roomis a life saver :)
    hugs~
    carla
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