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    Wrist and hand pain..

    Hi, here to ask a question. So overall I feel like my lupus has been getting under control. The only thing I can't seem to shake is pain in my hands. It is seriously driving me over the edge. Simple...
  2. Just keeps getting better and better WHATEVER

    Went to the neurologist today first visit. He did a nerve test to my surprise right then and there. Who knew I had carpel tunnel in both hands. Good grief! So what is it exactly that's hurting the...
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    Hello newfangled. I'm sorry but I can't answer...

    Hello newfangled. I'm sorry but I can't answer your question. I only know my dr said after my first labs were done that low c4 and c3 were markers for lupus. Maybe post as a separate question. You...
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    Thank you Susie. So 9 months almost 10 months of...

    Thank you Susie. So 9 months almost 10 months of cellcept/myfortic and still active lupus. I thought by now it would be better.
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    C3 and C4 levels on Immunosuppression

    I just had some labs done for a follow up with dr next week. I will be speaking to her about this but thought maybe someone here could shed some light.

    10-30-13
    C3 my level 85 standard range...
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    Ra and lupus

    Just curious if anyone here has ra and lupus? I'm probably barking up the wrong tree but still curious. I've been on plaquinel/asprin for 2 years almost a year ago started cellcept switched to...
  7. Thread: myfortic

    by tomcatsgirl
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    Hi I take myfortic. I was on cellcept but had a...

    Hi I take myfortic. I was on cellcept but had a heck of a time keeping it down. Myfortic is basically the same thing it's just absorbed differently. I still have tummy issues but not nearly as bad as...
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    Skin troubles

    Good Morning,
    Hope this finds you all well. I have been doing pretty good. Finally feeling the effects of all the drugs. Still have some yuck days but overall I'm feeling better then I have in...
  9. Thread: Bruises!

    by tomcatsgirl
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    Me too. Just a bump and I'm bruised. My arms and...

    Me too. Just a bump and I'm bruised. My arms and legs look horrible. I randomly will wake up with them here and there on my torso. Mine has gotten way worse since starting asprin therapy. I'd rather...
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    I have been through this only I could afford to...

    I have been through this only I could afford to loose some. I recently went to gastro dr had the full work up. In my case its lymphatic colitis along with my meds. Steroids were prescribed but dr was...
  11. Debbie, please talk to your dr about your fears...

    Debbie, please talk to your dr about your fears of pain I am sure a small prescription for something to get through it is fine. Seems to me it's better that way then not going. My sister just went...
  12. Welcome Judy I'm also in Washington State. Nice...

    Welcome Judy I'm also in Washington State. Nice to have a neighbor. I can relate with the outdoors. I love being outdoors hiking, gardening, boating, camping a new hobby kayaking. This time of year...
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    On another note my experience with a teaching...

    On another note my experience with a teaching hospital was horrid. It's a long story 20 years long. I spent 20 years at a teaching hospital. Nope I'm not afraid to say it anymore. I went to the...
  14. Thread: Colitis

    by tomcatsgirl
    Replies
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    274

    Tic Toc..and a holiday weekend. Trying to busy...

    Tic Toc..and a holiday weekend. Trying to busy myself. My procedures went fine the prep really is the worst part. Dr took a lot of biopsys from top to bottom she said. Just waiting on results and...
  15. Thread: Colitis

    by tomcatsgirl
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    Colitis

    Hello hope everyone is well. Yesterday I saw a new gastro dr who scheduled me for a endoscopy and colonoscopy this Wednesday. Back in 2005 I had a colonoscopy due to nausea, chronic diarrhea, weight...
  16. Ruziska I have a flying dog of sorts myself. Lol....

    Ruziska I have a flying dog of sorts myself. Lol. My son just brought home an alaskan klee Kia. He's almost 5 months old. Currently we are sitting as my son is in alsaka until July. He's a wild one...
  17. What do you do for work? How does lupus effect your job?

    The hobby post got me thinking. What job do you do? I still work pretty much full time. I have two jobs. I am a bookkeeper for my husband. We run an automotive repair shop. We have four guys on the...
  18. Baking. I love to bake. I do cakes on the side. I...

    Baking. I love to bake. I do cakes on the side. I just recently last weekend was involved with an auction to benefit the American Cancer Society. My sister spoke and I put up for a custom designed...
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    Still not sure but I'm feeling better still...

    Still not sure but I'm feeling better still tired. Had a blood draw some things were off. Some things starting to drop. Could be from med change other then fever and body aches no other sign of the...
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    Im not sure if its the same as you describe but I...

    Im not sure if its the same as you describe but I had what I described as maybe a blister. It was swollen it would get in the way of chewing at its largest and then would pop only to come back. It...
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    I find myself coming here when I want to whine. I...

    I find myself coming here when I want to whine. I can see how it gets depressing. But as Rob said its place where we are not judged and understood. I'm newly dx'd myself and am in the process of...
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    Flare or flu?

    Since Friday night I have been running a low grade temp off and on and have major chills. My body aches so bad just the water in the shower was hurting my skin. my joints are achy. I slept all day...
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    Hi Debbie, I just wanted to send you a hug. I am...

    Hi Debbie, I just wanted to send you a hug. I am so sorry you are having a rough time. Hair loss is not easy to deal with. This disease is not easy to deal with at times. I wished I had some majic...
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    Hi Jmail, its been over a week now and still I am...

    Hi Jmail, its been over a week now and still I am getting bouts of hives. My dr did respond with let's see what happens. I am also feeling pretty achy and am wondering if maybe I'm just flaring. I...
  25. Thread: Celcept

    by tomcatsgirl
    Replies
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    I too have the same issue with cellcept. I was...

    I too have the same issue with cellcept. I was vomiting a lot. I just switched to myfortic its just been a bit over a week not going so good. My rheumy told me it was okay for me to take it with...
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