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Type: Posts; User: Neicee99

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  1. Replies
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    teenage daughter may have lupus

    Hi Everyone,

    I was officially diagnosed in 2005 or 2006 with SLE Lupus. I also have IBS, GERD, Relapsing Polychondritis, Fibromyalgia, scleritis, and a few other things. Recently I had my...
  2. Re: sick daughter

    HI Diana
    Thanks for your response. I truly hope your daughters issues are just that, a fluke. Like you said, nobody wants to see their child in pain. I pray that I only pass down traditions,...
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    Brain involvement ?

    Hi Everyone,

    I have a question about brain involvement and lupus. I have been having pains in my head that last like 2 seconds but they are sharp. I have a huge problem with going into a store...
  4. to jen

    Hi
    It must be difficult to see your daughter in pain. I have a 16 year old daughter who was diagnosed with SVT (Supre Ventricular Tachacardia) last year and she was also tested for thyroid and...
  5. Thread: hi new here

    by Neicee99
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    hi new here

    Hi Everyone,
    I think I may be having a touch of brain fog. I just joined the website and it said that I am already a member. I'll blame the forgetfulness on the lupus :roll:
    My name is Denise...
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    Hi It sure does suck!!!! I see a dermatologist...

    Hi
    It sure does suck!!!! I see a dermatologist in Chestnut Hill Massachusetts on the 28th for a biopsy too. We'll see what he says. It feels weird when I put my fingers on the strange scabs,...
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    specialist reply

    Hi
    Thank you so much for Dr. Schneebaum's number. I actually live near Manchester NH but I was just looking at Hitchcock Clinic in Lebanon because it came recommended to me. Derry is actually a...
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    Hi Thanks for your response. Now, when you say...

    Hi
    Thanks for your response. Now, when you say you cut your hair short, how short are you talking?
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    lupus specialist in NH?

    HI Everyone,
    I hope you are all enjoying your day :D . I was wondering if anyone knows if a Lupus specialist in NH? I know a rheumatologist is the specialized area but I was looking for first or...
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    heart

    Hi Everyone,
    Thanks for your input and concern. I had the tests last week and from what the technicians saw, they all said everything looked fine. They said if the radiologists find anything...
  11. Thread: feeling awful

    by Neicee99
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    1,257

    feeling awful

    Thanks tracy and hatlady,
    I appreciate your input. I am currently on Arava ( a chemo medication for my rare disease of relapsing polychondritis) dayPro and synthroid for my thyroid. I have a...
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    hair loss

    Hi
    I am having the same exact problems with hair loss. I have hair everywhere around my house. I used to have to sweep the floor daily because of the dog shedding but now it's me who is shedding...
  13. Thread: feeling awful

    by Neicee99
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    3
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    1,257

    feeling awful

    HI Everyone,
    I am feeling yucky today!!! :( I don't mean to complain because we all go through this. I was DX with polychondritis origianlly and then lupus. Is a lupus flare when you feel like...
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    hair

    Hi Angie
    Thanks so much for your reply. Your hair sounded beautiful. As I see it, it's just hair. Afterall, it is something that will regrow and is the smallest of my problems in life. that's...
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    hair loss

    Hi
    I have been losing my hair like crazy. Does anyone have little scabs or nickle sized spots on their head that are crusty? I read it was due to where you lost your hair but then I was wondering...
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    heart involvement

    Hi
    I haven't posted in quite a while but I recently went to a cardiologist and I wanted to know if anyone else has experienced what I have been? Over the past 6 months I have had 5 episodes when I...
  17. Thread: Brain Fog

    by Neicee99
    Replies
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    2,987

    brain fox

    Hi
    Absolutely!! I actually go into rooms and stand there for a minute or so and yell out to my family, "does anyone know why I'm in here"! :roll: That happens a lot. Currently, the brain fog is...
  18. Thread: white bumps

    by Neicee99
    Replies
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    3,573

    white bumps

    Hi Everyone
    I was just wondering if anyone else has or ever had little white bumps on their face. They are not blemishes, that much I know. They are bright white and the size of a ball point pen...
  19. Hi Vintage

    Hi
    I am glad you are going to a new doctor. Hopefully, that one will listen better and help you out. As far as the chest pains go, I too suffered from that for almost a year before someone figured...
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