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  1. Been gone for awhile...back with new questions

    Hello all. Still have yet to get an official diagnosis and my symptoms keep mounting by the day. I had a lumbur puncture done this past Thursday and am still suffering from the afterpath headache....
  2. Thread: Negative ANA

    by triciaf
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    Thank you Susie and Mary for your replies. From...

    Thank you Susie and Mary for your replies. From what I'm being told I don't have any of the anti-DNA antibodies either or any other lupus "markers" except high sed rate and CPK. My issues must be...
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    Amber- SO glad you're doing better. I too can...

    Amber- SO glad you're doing better. I too can tell what an excellent writer you are. Keep at it and you'll be published in no time. I love the whole horror genre too. King and Rice are two favorites....
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    Dear, Dear Amber.... what terrible experiences...

    Dear, Dear Amber.... what terrible experiences you have had for being so young! Your story touches my heart and I wish you could understand how deeply I feel for you. Your strength thus far amazes...
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    I'm doing my best. Logically of course I know I'm...

    I'm doing my best. Logically of course I know I'm not being punished. The emotional roller coaster called immune diseases sometimes goes too far down hill, but inevitably starts back up again. I'll...
  6. Thread: Negative ANA

    by triciaf
    Replies
    4
    Views
    1,278

    Negative ANA

    Hello everyone - I need to know if anyone has ever had a negative ANA test and still been diagnosed with lupus. I've been to the Lupus Center in Pittsburgh, PA and they sent my blood to their own...
  7. Thread: seizures

    by triciaf
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    Hello Morpheus. I have a seizure disorder that...

    Hello Morpheus. I have a seizure disorder that was diagnosed a long time ago. We have yet to figure out if it's connected to my "lupus-like" symptoms (not diagnosed yet) or not. I can tell you that I...
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    I'm right with you Angie!

    I haven't posted for quite some time but when I read your post about "not posting anymore" I felt as if I had written it. I'm still going through tests, not getting firm answers and feeling like I'm...
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    As far as I'm concerned I could not have made it...

    As far as I'm concerned I could not have made it through some days without my narcotics! My PCP prescribed vicodin at first, but that seemed like a glorified asperin, so we have progressed up the...
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    32 vials of blood!?! I thought the 17 they took...

    32 vials of blood!?! I thought the 17 they took on my visit was bad! You have my sympathy there. I've had similiar problems (and still no official diagnosis). I was on Plaquenil for about 3 weeks and...
  11. Thread: Leg Pain

    by triciaf
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    My problems started with leg pains too. I can...

    My problems started with leg pains too. I can completely sympathize. I do the pillow thing at night too. My husband is also great at massages and that seems to help me relax, but not necessarily...
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    Tracy - you're right about getting up and moving....

    Tracy - you're right about getting up and moving. Although I don't feel like walking around, it helps.
    My path to diagnosis probably isn't much different than anyone else's. I had seen a rheumy...
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    Thank you both for your words of wisdom....

    Thank you both for your words of wisdom. Logically I know I have to keep pushing forward to further my cause so to speak. But sometimes I just want to say "forget it" and live with the pain. I've...
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    awaiting diagnosis

    First of all I can't tell you what it meant to me to find this site! I have not been officially diagnosed with lupus by my physicians, but it seems inevitable at this point. As many of you have...
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