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  1. Thread: Swollen Joints

    by Hazel
    Replies
    10
    Views
    1,325

    Hi everyone! Thanks for your all your help. I...

    Hi everyone!

    Thanks for your all your help.
    I have increased my prednisone from 5mg to 10mg over the last few days and I feel great. Whenever I increse it slightly I notice a huge improvement for...
  2. Thread: Swollen Joints

    by Hazel
    Replies
    10
    Views
    1,325

    Thanks anyway! Curiosity has gotten the better of...

    Thanks anyway! Curiosity has gotten the better of me! I won't be able to sleep until I have sorted this out :P
  3. Thread: Swollen Joints

    by Hazel
    Replies
    10
    Views
    1,325

    Swollen Joints

    Hi all,

    I haven't posted on here for quite some time. Some of you may remember me from a little while back. At my last doctors visit my urine test showed that there was more blood present than...
  4. Replies
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    1,960

    My doctor always checks my feet for swelling but...

    My doctor always checks my feet for swelling but i have never known why. I have only had my feet swell twice and i know what a horrible and uncomfortable feeling it is. I feel for you. I guess the...
  5. Thread: Feeling good!

    by Hazel
    Replies
    7
    Views
    532

    thanks everyone! here in australia the weather is...

    thanks everyone! here in australia the weather is begining to get colder so thats been making me feel a little off, but appart from that i have been on cloud 9 since monday!
    This is quite easily...
  6. Thread: Feeling good!

    by Hazel
    Replies
    7
    Views
    532

    Feeling good!

    I saw my doctor the other day and I am glad to say that everything seems to be on track. Even though my blood tests still show lupus actvity.. it appears that i am heading down the road to...
  7. Thread: Please!

    by Hazel
    Replies
    9
    Views
    745

    i hate the prednisone as well. I was on 50mg and...

    i hate the prednisone as well. I was on 50mg and only 36kgs at one stage. Im now only on 5mg but my body doenst seem to want to let go. I get sick everytime i try to go off it alltogether. I hope...
  8. Replies
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    797

    i know exactly how u feel. For my year 12 photo i...

    i know exactly how u feel. For my year 12 photo i had the blotchiest fattest face ever! Thats the picture they put in the year book of me even after i specifically asked them to use the one from year...
  9. Thread: Flare up

    by Hazel
    Replies
    9
    Views
    770

    thanks for the support everyone. Im pretty...

    thanks for the support everyone.

    Im pretty sure all this sudden heat in Sydney hasnt helped me at all.
    Ive just had alot of jointpain, a fever and a headache mainly. Ive lost my appetite but that...
  10. Thread: Pred question.

    by Hazel
    Replies
    2
    Views
    606

    Pred question.

    I was just wondering how long everyone has been taking prednisone for. I have been on it for 2 years now and im just a bit worried about it. Im only on 5mg right now.. but i was at 50mg at one stage....
  11. Thread: Flare up

    by Hazel
    Replies
    9
    Views
    770

    Flare up

    After months and months of feeling incredibly good, i had a horrible flare up over the last 3 days.

    I find this all incredibly annoying especially since im going to be starting uni very shortly;...
  12. Replies
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    1,011

    Wow i have never heard of a male having lupus...

    Wow i have never heard of a male having lupus before. I think i have read that only 10% of lupus patients are male, but i have been yet to come across one before. Sorry to hear that ur 17th was no...
  13. Replies
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    1,468

    heyya everyone! thanks for the welcom back...

    heyya everyone!
    thanks for the welcom back messages. I hope that i am here to stay this time :P Im sure this time i will get to know all of you a little better.
    Today has been a wonderful day for...
  14. Replies
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    1,011

    I know how u feel. I was diagnosed at 17 as...

    I know how u feel. I was diagnosed at 17 as well... infact i spent my 17th birthday in the emergency room. Im about to turn 19 in a short while and have just finished school. It's a long road thats...
  15. Replies
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    1,468

    its great to be back! Chistmas was lovely as...

    its great to be back!

    Chistmas was lovely as usual.. i spent it with all my beautiful cousins so it was great.

    I have been pretty good. The odd flare up and joint pain have been on and off but...
  16. Replies
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    1,468

    Its been a while!

    Hi all,

    Just thought id re introduce myself i havent looged on to the site in ages! Just wanted to re-join you all.

    So my name is Hazel and im from OZ. It will be almost 2 years since i was...
  17. Replies
    56
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    4,775

    I get night sweats only during the really bad...

    I get night sweats only during the really bad flares. Theses are absolutley horrible i remeber the first time i got it it was so uncomfortable. Its been a while since i have had them thank-goodness...
  18. Replies
    56
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    4,775

    Rastagirl, i thought i would just let you nkow...

    Rastagirl, i thought i would just let you nkow that panafcortelone is just the same as prednisone. I remember that because i recieved some information sheets about it and asked the nurse how to...
  19. Replies
    56
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    4,775

    One thing for sure is that you certainly are not...

    One thing for sure is that you certainly are not alone! Im 17 and found this site a couple of months ago and it has been very helpful. Everyone here is very suppor5tive and often have great advice. ...
  20. Thread: First time user.

    by Hazel
    Replies
    32
    Views
    3,134

    Hi joaney, glad you have come here to share our...

    Hi joaney, glad you have come here to share our stories! I am quite new here too but i have found this place really helpful when you need someone to listen. Everyone here is really helpful and i hope...
  21. Thread: Back to School!

    by Hazel
    Replies
    3
    Views
    732

    Back to School!

    I got back to school tomorrow after a two week holiday! There was heaps of homework i was meant to do but i seemed to be really unmotivated to get it all done. Oh well i will put on may sad face and...
  22. Replies
    21
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    6,416

    One things for sure is that you should not give...

    One things for sure is that you should not give up yur meds. Although you may feel like they are doing you more harm than good, you have been put on them for a reason and they will make you better in...
  23. Thread: Im new..

    by Hazel
    Replies
    7
    Views
    860

    Hi ritzbit, i am quite new as well, i also have...

    Hi ritzbit, i am quite new as well, i also have lupus and raynauds! Like you i am young i am only 17 and understand your frustration. When i was first diagnosed i was taking 7 tablets a day. You...
  24. Thread: Itchy tongue

    by Hazel
    Replies
    7
    Views
    1,218

    That must be really anoying. This has not...

    That must be really anoying. This has not happened to me and i have not heard of it before but i did notice when i started plaquenil my lips and mouth went a little tingily and numb but that hasn't...
  25. Replies
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    1,079

    Hey Amanda, Its good to hear that things are...

    Hey Amanda,

    Its good to hear that things are finally going well for you and that you are on the road to recovery!

    I know how it feels just to write it all out and know that others are...
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