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  1. Replies
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    Hi CJ, I have sent you a private message with...

    Hi CJ,

    I have sent you a private message with my email address on it if you would like to contact me. I may be able to help you.

    Regards

    Sammy xx
  2. Hi Carmen, Sounds like the Drs you are seeing...

    Hi Carmen,

    Sounds like the Drs you are seeing are doing all the correct tests, so you have done well with that. Hopefully taking the Midodrine will help you. It's amazing to learn how our...
  3. Hi All, I work in a clinic where we see many...

    Hi All,

    I work in a clinic where we see many POTS patient's and we also see patients with Autonomic Function issues. There is a test to see if your Autonomic system is working properley we also do...
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    Hi polly, Yes i get it quite a bit in lots of...

    Hi polly,

    Yes i get it quite a bit in lots of different areas. I used to only get it in my legs on the shins now it can occur anywhere. It may only last a day or two then move. It's weird but it...
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    Hi Babs, I certainly agree with you family...

    Hi Babs,

    I certainly agree with you family history can be a handy tool for us and our health. Lupus as you say means wolf and there is no mistake that it is as sneaky as one. I have been doing...
  6. Thread: Cat bite horror

    by Sammy
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    Thanks all, i must admit i had a giggle at some...

    Thanks all,
    i must admit i had a giggle at some of those... I am an all round animal lover, i have 4 dogs, birds, and now of course the cat.
    She is all black with green eyes, i was hoping she may...
  7. Thread: Cat bite horror

    by Sammy
    Replies
    6
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    213

    Cat bite horror

    Hi All,

    I have been unable to check in as i have been in Hospital. I adopted a 3 year old cat and within 24 hours i sustained a nasty cat bite. It wasn't the poor cats fault she got a fright and...
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    Hi Debbie, It is certainly a difficult...

    Hi Debbie,

    It is certainly a difficult decision you are faced with. If it were me i would consider the possability of you being able to cut down in work or even leave work a huge gain for your...
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    Hi Pink13, I am also from Australia and was...

    Hi Pink13,
    I am also from Australia and was diagnosed with Lupus ( 3 years ago ) and Fibromyalgia About 20 years ago. When i first started feeling poorly 3 years ago i noticed firstly the fatigue...
  10. Thread: ANA Question

    by Sammy
    Replies
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    ANA Question

    Hi All,

    I received some of my bloods back the other day and my ANA reading is 1:640.. I have had previous tests that have also been this high but i assumed that the MTX would be working to lower...
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    Hi, Maybe you have had a inflammatory response...

    Hi,
    Maybe you have had a inflammatory response after the accident which might be causing your symptoms. I know if i hurt myself the inflammation goes nuts and i feel crappy for a few days longer...
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    Internationl lupus awarness day

    Hi All,

    I believe May is Lupus awareness month and the 10th of May is lupus awareness day. United we fight, together we are strong!!!!..
    May a cure be on the horizon..
    I just received some...
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    International nurses day

    To all the Nurses who have Lupus which includes myself i just wanted to say have a happy day. To all the Nurses who help us when we are sick, hospitalised, immobilised, and generally need some...
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    Hi Katwoman, Poor luv you certainly have had...

    Hi Katwoman,
    Poor luv you certainly have had your fair share. The more i learn about this illness and hear from the people who live with it i realise what a strong bunch we are. This disease effects...
  15. Thread: New to this site

    by Sammy
    Replies
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    187

    Hi Luci, Hello and welcome to you. I am also a...

    Hi Luci,

    Hello and welcome to you. I am also a nurse and have had lupus 3 years now. How do you go manage working? I work 4 days a week clinic hours so no shift work which suits me.
    Did you get...
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    Hi Debbie, That's great news. To be close to...

    Hi Debbie,

    That's great news. To be close to your loves ones again will be fantastic i'm sure they will be thrilled when they find out.

    Sam xx
  17. Thread: Fever woes

    by Sammy
    Replies
    1
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    126

    Fever woes

    Hi all,

    Again last night the terrible fever came on. It was so sudden and i felt terrible so quickly that i felt for sure i was getting the flu or blood poisoning( as you do )... Temp was high and...
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    Hi Corella Well you have hit the nail on the...

    Hi Corella

    Well you have hit the nail on the head for me. My feet are sooo bad at the moment i'm thinking amputation is an option. I don't know if i want to cry from the pain or just vomit it is...
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    Hi Corella Well you have hit the nail on the...

    Hi Corella

    Well you have hit the nail on the head for me. My feet are sooo bad at the moment i'm thinking amputation is an option. I don't know if i want to cry from the pain or just vomit it is...
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    Hi Nicole, I did start on Plaquenil only but i...

    Hi Nicole,

    I did start on Plaquenil only but i didn't find it was givivng me much relief especially with the joint pain. I then started Methotrexate and while i started on a lower dose than i am...
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    Hi Nicole, It's interesting you say it feels...

    Hi Nicole,

    It's interesting you say it feels like sunburn because thats how i describe the internal heat as well. To me it does feel like sunburn because i just radiate heat. I may not have a...
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    Hi Kjell, I'm sorry to hear you are in pain....

    Hi Kjell,

    I'm sorry to hear you are in pain. Maybe you should speak to your Doctor about going onto MTX. I must admit i felt so much better when it started to kick in for me. I still have pain and...
  23. Thread: Advice please

    by Sammy
    Replies
    4
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    213

    Looking back over the years i believe i was...

    Looking back over the years i believe i was having Lupus symtoms for a very long time before i was diagnosed. I was having regular blood tests but maybe not specific ones. Have they investigated you...
  24. Hi Claire, I also have been diagnosed with...

    Hi Claire,

    I also have been diagnosed with both Fibro and now Lupus. My Rheumy says they pretty much go hand in hand. As a Nurse i see and deal with many doctor's and one thing i have learnt from...
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    Hi Kjell, I have also tried plaquenil for...

    Hi Kjell,

    I have also tried plaquenil for about 2 years. I found it alright in the begining but ended up stopping it because it gave me stomach pains all the time. I also take mobic ( anti inflam...
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