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  1. Thread: More Problems

    by val
    Replies
    4
    Views
    894

    Hi Mary, No is the answer. I am on pred too so i...

    Hi Mary,
    No is the answer. I am on pred too so i guess that doesn't help. Also only just started on warfarin 4 weeks ago. My poor body doesn't know whether its coming on going but i am seeing...
  2. Thread: More Problems

    by val
    Replies
    4
    Views
    894

    More Problams

    Hi Mary,
    Yes I have been checked for sleep apnoea as I have night panic attacks but it was negative thank goodness. I think it might be the diabetes, its still early days so I will give it time...
  3. Thread: More Problems

    by val
    Replies
    4
    Views
    894

    More Problems

    Hi Mary,
    Yes I am on Metformin, having probs with drowsiness in the afternoon--no idea whats causing it. Memory not much better but the head pains have improved so much with warfarin so at least...
  4. Thread: More problems

    by val
    Replies
    1
    Views
    604

    More problems

    Sorry I haven't been about for a bit but i have had quite a month!! I was started on Heparin for my APS, had a dreadful tummy reaction so was started on warfarin. My head and my leg pains have...
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    Hi, I live in the uk, it rains and rains and i...

    Hi,
    I live in the uk, it rains and rains and i have constant joint and muscle hurts. Yes its worse when wet and more so if cold with it.
    Val
  6. Replies
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    5,055

    I have had white cells and loads of blood in my...

    I have had white cells and loads of blood in my urine for 4 years. i have been investigated and told as my kidney function is ok that all is ok and too my surpprise was DISCHARGED from nephrologist...
  7. Replies
    13
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    2,095

    Update

    Hi girls, i thought i would give you an update. Following a Glucose Tolerance Test I now am glucose intolerant, fast becoming Diabetic but also I went to St Thomas Hospital London last week to the...
  8. Replies
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    2,695

    Hi Milagro, Sorry I pop i infrequently but have...

    Hi Milagro,
    Sorry I pop i infrequently but have had lots of support here too. Unlike most of you I am in the Uk. My Sed rate is 41, its been about the same since I started to be ill in 2001. i am on...
  9. Replies
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    2,095

    Peripheral Neuropathy

    I know what you mean about medication Mary. I take what I must and no more than I need. My Gp is still allowing me to have Coproxamol although it is being withdrawn from uk prescribing. It helps my...
  10. Thread: Low Potassium

    by val
    Replies
    12
    Views
    3,397

    Slow release Potassium (Slow K) is giving in UK....

    Slow release Potassium (Slow K) is giving in UK. Prescription drug
    Love Val
  11. Brain fog etc

    On friday nite we went out for a family meal and I was introducing my son and his girlfriend to my sisters new fella. I introduced my son and couldn't remember his girlfriends name--she just about...
  12. Replies
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    2,095

    Peripheral Neuropathy

    thanks for the replys. i have neurontin, even 100mgs makes me feel like a zombie. I react so much to medication. Its 1am and I have just got up having not been to sleep coz of the pain. its both...
  13. Replies
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    2,095

    Peripheral neuropathy

    Can I pick your brains girls?
    I have had a heavy feeling to hands and lower legs, felt swollen but look fine for a couple of years but i am now getting tingling, pins and needles and loss of...
  14. Replies
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    Is it or isn't it lupus

    I also had TMJ, it is a symptom of Fibromyalgia. I saw an orthodontist privately. She put a brace on my upper jaw for 18 months as I kept chewing through my night gum shields. It cost me 1500 but...
  15. Thread: Cerebritis

    by val
    Replies
    8
    Views
    1,507

    Cerebritis

    I read this thread with interest. 18 years i had a severe ear infection which caused severe vertigo and balance problems. My body has compensated reasonably well over the years.
    My balance problems...
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    5,936

    Prednisolone

    Yes we do produce it naturally and that is why we should taper it when coming off if we have had more than a short treatment. The body will take over as long as reducing is gradual
    Val
  17. Replies
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    Dangers of long term prednisolone

    Thought i would add my bit. I am on low dose prednisolone and have been for 5 years. Without it---I cannot get out of a chair and my hubby has to push me up the stairs... Choice.. No I don't think I...
  18. Replies
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    1,428

    Irrational behaviour

    Thanks susie. My hubby was tearing his hair out (He is bald LOL) the other night as I was so out of control- Any medication help? Cause I must speak with Dr about this. I am off to London Lupus...
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    Rainy

    Oh well, I will have to wave across the pond LOL
    Val
  20. Thread: Prolonged Bleeding

    by val
    Replies
    3
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    1,038

    Prolonged Bleeding

    Livedo is one of the diagnostic symptoms for APS. Dr Graham Hughes diagnosed me APS (Hughes Syndrome) Yes the man !! I have no positive antibodies but my livedo helped to diagnose it--So get it...
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    Sweating

    I am on steroids-only 5mg now but I have dreadful sweats too. Mine don't start till about 4pm then go on all evening and night.
    Val
  22. Replies
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    1,798

    Pain in rainy or cold weather

    You want to live in Uk :cry:
    Its always cold and wet but very hot is just as painful, when we occasionally have a heat wave.
    we cannot win
    Val
  23. Replies
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    1,428

    Irrational Behaviour

    I fly of the handle at nothing--its as if somebody has flicked a switch. My poor hubby gets a telling off for nothing. I don't seem able to prevent it. I haveLupus and APS and I have circulatory...
  24. Thread: Breathing Problems

    by val
    Replies
    16
    Views
    3,000

    Breathing problems

    hi KTJ
    I started a support group with lupus uk. We had big problems and we became independant. I fund raise for St Thomas Hospital now. I know the money goes to research then.
    I see Rheumatologist,...
  25. Thread: Breathing Problems

    by val
    Replies
    16
    Views
    3,000

    Breathig Problems

    Hi Mary,
    thanks for repling. Yes if I hadn't gone to London--100 miles away I would never have been diagnosed. my ANA has stayed negative but Dr Graham hughes diagnosed me with SLE, APS, Sjogrens,...
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