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Type: Posts; User: Alison

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    I"M STILL AROUND!!!!!!

    So sorry to hear about your spinal problems. But I cann't help but admire your spunk and your courage especially in the face of such a horrific and unpredictable disease. You are a true...
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    Finally saw a rheumotologist

    I finally saw a rheumotologist yesterday. He said that from the blood work that my PCP did that it looks like I am borderline lupus. He is taking me off of the prednisone and other meds. I go back...
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    All over body rash anyone?

    Wow! That sounds awful! Have you had allergy test done? I haven't. I am still waiting to see a rheumotologist. Some days my rash doesn't bother me. Other days I have large, angry red patches...
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    All over body rash anyone?

    Thanks for the reply! Acturally, I have been battling with this rash since October of last year. My doctor tried different allergy medicines to clear it up becasue he thought I might be having an...
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    All over body rash anyone?

    Is it just me or do any other SLE patients have an itchy red rash all over their bodies? I have heard a lot about the rash on the face, but not all over the body..
  6. Thread: More questions

    by Alison
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    More questions

    Thank you for the very informative response. It answered a lot of my questions! Are you speaking from experience? I hope not! It just really boggles my mind that this disease can reak so much...
  7. Thread: More questions

    by Alison
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    More questions

    Thanks for the reply. I am going to see a rheumotologist this month for more test. Hopefuly I don't have SLE, it really seems like a nasty disease. And the sad part is is that its not very well...
  8. Thread: More questions

    by Alison
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    More questions

    I was diagnosed this week with SLE. My doctor provided little info on the disease. He told me to get on the internet and look it up. I have and I have read so many differant things that I am now a...
  9. Thread: New member

    by Alison
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    New member

    I am 29 years old and have just found out that I have SLE. I have a horrible rash all over my body that ITCHES! I have the fatigue, chest pains, blood in urine and occasional swollen joints. Is it...
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