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Type: Posts; User: caro

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    trista sorry it took so long to reply. i've been...

    trista
    sorry it took so long to reply. i've been in the hospital and then staying at my parents recovering.
    the care at the lupus center is the GREATEST. i highly recommend the place to anyone....
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    trista you can call 412-261-5886 or...

    trista
    you can call 412-261-5886 or 1-800-800-5776 to contact the LFA ( lupus foundation of america) in the pitts area you can also contact them online at info@lupuspa.org.
    i go to pitts to the...
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    SOLESINGER I OFTEN ENJOY READING YOUR POSTS...

    SOLESINGER
    I OFTEN ENJOY READING YOUR POSTS BECAUSE THEY SAY SO MUCH OF WHAT I THINK AND FEEL IN A WAY THAT I COULD NOT BEGIN TO SAY THEM AND AS A SINGER/ MUSICIAN ALSO I CAN FEEL THE LYRICAL TONE...
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    sole singer i'm like that and i have lupus. they...

    sole singer
    i'm like that and i have lupus. they tell me it's because of my lupus. the last year that i worked i had chickenpox 7 times and measles 3 times. i was working in a preschool/ child...
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    solesinger i get that rant! all i do is doctors...

    solesinger
    i get that rant! all i do is doctors and therapy and doctors and labs and oh yeah start over again. it does get to you. we'll stand strong together.
    and while i'm here i truly...
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    angie i want you to relax about life spans and...

    angie
    i want you to relax about life spans and lupus. i was dx'd at 14. given 30 days to live at 22, and i'm now 42. we all haave a time to live and a time to die and nothing absolutely nothing will...
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    darkwing

    hello darkwing
    i know what you mean about having a lot wrong. my mother never called me her prablem child i was her sick child. as far as being lazy i agree with hatlady. the spoon theory is the...
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    LUPUS AWARENESS MONTH

    :D HELLO EVEYONE
    I FOUND OUT TODAY THAT WE HAVE LUPUS AWARENESS MONTH IN OCTOBER. I THOUGHT I'D PASS THAT INFORMATION ON. I DON'T KNOW WHAT THAT REALLY IS INTENDED TO DO BUT MAYBE WE COULD CONTACT...
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    HOT FLASHES AND SLEEPLESSNESS

    DO YOU HAPPEN TO BE ON PREDNISONE. THIS CAN CAUSE BOTH OF THESE SYMPTOMS AND THE HIGHER THE DOSE THE WORSE THE PROBLEM.
    SOME TIMES IT GOES AWAY AS YOUR BODY ACCLAMATES TO THE MEDICATIOM AND...
  10. ANA TESTING

    I ASKED MY DOCTORS YESTERDAY ABOUT ANA TESTING AND SHE EXPLAINED THAT THERE ARE A NUMBER OF WAYS THAT ANA CAN BE TESTED. NONE OF THEM ARE ACTUALLY NEW BUT YOU CAN GET A DIFFERANT RESULT FROM A...
  11. Thread: Aching Legs

    by caro
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    achy legs

    i too have that problem
    my lupus doctors have sent me to physical therapy and they are doing leg strengthening exercises with me. i can go up and down my steps now and don't have as much pain. our...
  12. high school

    having been dx'd while i was in hs and very active myself i understand what your daughter is feeling. at this point she probably still feels like she can't do a whole lot. i know it took awhile til i...
  13. ana testing

    i do know that the doctors at the lupus clinic in pittsbugh are working on standardized testing for lupus and that when i go on the 10th of oct i too will ask if there are any new tests for ana. i...
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    been in bed and hospital

    sorry i haven't been back for awhile. i've been in the hopital twice and in bed most of the time since i joined the site and have only been posting at my other support site. i still want to come on...
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    welcomes

    thanks for the WELCOMES to the site. i've enjoyed reading so many of the posts. the questions and answers are all outstanding. even someone whos been around the sle block a few dozen times can learn...
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    lupus and families

    cindylou
    most people believe that sle like many other auto-immune illnesses are heriditary and are seen in more than one person in a family.
    personally i have a cousin on each side of my family...
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    just saying hello!

    hi, i'm caro and i thought i'd come in and say hello. i've had sle all of my life and was dx'd when i was 14 and i'm 42 now.
    i just heard about this site the other day and have been checking it out...
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