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  1. Replies
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    Thanks Saysusie. I personally am feeling...

    Thanks Saysusie.

    I personally am feeling better and better and hoping to come completely off prednisone...not sure what to do about plaquinil but I will ask my rheumy when I see him next. So far...
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    I am looking into the same things. I am looking...

    I am looking into the same things. I am looking at having a second child. My first son is a happy, healthy 4 year old wtih no signs of anything auto-immune having been passed to him (yet at least). ...
  3. Thread: We Have Lupus

    by bunny28
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    Beautiful! I often think that my husband suffers...

    Beautiful! I often think that my husband suffers because of my illness. He has to pick up the pieces that I don't. When I ask him if he resents it, he says "never". I am never sure that is totally...
  4. Has anyone been on plaquinil and/or prednisone...

    Has anyone been on plaquinil and/or prednisone (not a DMARD but still common used in lupus) during a pregnancy here? Were babies born without complications? I am specifically wondering about...
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    Oh nice one! This isn's mine but a former...

    Oh nice one!

    This isn's mine but a former classmate of mine recently posted this on facebook.

    She ran into a friend she hadn't seen in a while and the friend said " OMG,are you okay? Are you on...
  6. Thread: Nausea?

    by bunny28
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    I love it here, lol. You made me laugh but we...

    I love it here, lol. You made me laugh but we sound like kindred spirits. Nausea is absolutely a part of pretty much every day...bleh. Perhaps I should try splitting up plaque and predictions though...
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    I love that explanation. Thanks everyone for...

    I love that explanation.

    Thanks everyone for the support.
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    Vent re: "Lupus not that bad"

    Hey guys!

    I just wanted to vent about a new doctor I met this week. Bleh! I hate "specialists" who don't specialize in lupus! I went to see this doctor on the advice of my GP and my rheumy for...
  9. Thread: Nausea?

    by bunny28
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    365

    Nausea?

    Hi guys;

    Just read the posts on fatigue and tiredness. I currently am battling more fatigue than I have been too and found that very interesting.

    Since July I have been on plaquenil (for...
  10. I get them too. Often in my throat. Plaquinil has...

    I get them too. Often in my throat. Plaquinil has really helped with this particular symptom for me. Hope it does for you too.
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    So happy that you have coverage!

    So happy that you have coverage!
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    I am pretty sure I have low WBC count too and my...

    I am pretty sure I have low WBC count too and my rheumatologist calls that "normal for me". (Course, my brain is so foggy today that I am wondering if I have a high count, but no, pretty sure it is...
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    I have to follow up with my doctor on Monday re:...

    I have to follow up with my doctor on Monday re: Metho instead of Prednisone. I have to say though I LOVE PREDNISONE! I feel so much better than I have in such a long time...probably as long as I...
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    Congrats on your remission. I too have been...

    Congrats on your remission. I too have been feeling pretty good lately due to my new love prednisone. It is hard to feel great and know that others are suffering. BUT please, please, enjoy every...
  15. My mom recently shared the no chocolate thing...

    My mom recently shared the no chocolate thing with me after I was complaining of my acid reflux. IT SUCKS! I haven't actually been very good at not having chocolate. But lately the reflux has been...
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    Thanks everyone for the reassurance and the info....

    Thanks everyone for the reassurance and the info. I will ask about folic acid when we discuss MTX. I wish I could hold onto this prednisone feeling forever...I will enjoy it while I can...Off to...
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    Paranoid? re: low dose of prednisone

    Okay so at the risk of sounding crazy, I have to admit that when my doctor suggested a two week trial of 15 mg of prednisone on top of my daily plaquinil (200mg twice daily), I wondered if he was...
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    I have been on plaquinil only since February of...

    I have been on plaquinil only since February of last year. The effects build up over time. I have suffered from heartburn and acid reflux but I don't know if it is related to the drug or not. (200mg...
  19. Welcome and thanks for sharing your story. I am...

    Welcome and thanks for sharing your story. I am a 30-something mom myself and was also diagnosed in 2011. My rash was also diagnosed as roseacea and came at a time when I was seeing multiple...
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    [QUOTE=strydomjolene;104301]Hey all I have been...

    [QUOTE=strydomjolene;104301]Hey all
    I have been diagnosed with lupus today.I'm feeling a bit overwhelmed and emotional.And even worst is that my 10 mth old baby boy was admitted to hospital as well...
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    What a wonderful way to pay tribute to your...

    What a wonderful way to pay tribute to your father and his life. I am so sorry for your loss. I am also so happy to hear that you are celebrating his life in such an amazing way. Sending you courage...
  22. Thread: Now fibro

    by bunny28
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    Huh! That's a weird one. Try to just keep doing...

    Huh! That's a weird one. Try to just keep doing what your doing and maybe ask next time you see her or a new doctor.
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    Good luck with your test. I hope that someday,...

    Good luck with your test. I hope that someday, someone believes you and you get the medical justification you so desire. hang in there.
  24. Hunniebun - SOme docs recommend treatment like...

    Hunniebun - SOme docs recommend treatment like baby aspirin in first 20 weeks or whatever so be sure to talk to your doc before you are pregnant to see what course of treatment they want to take for...
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    Something's going on with my eyes too. I have...

    Something's going on with my eyes too. I have never thought of them as dry but that is something to think about. I always at 30/20 vision or is it 20/30 vision meaning better than 20/20. At my last...
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