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Type: Posts; User: Mary Jane

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    Got my appointment with neurologist in...

    Got my appointment with neurologist in Stanford...April 30th....think good thoughts.
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    And I forgot to say, my doctor is sending me to...

    And I forgot to say, my doctor is sending me to Stanford for more tests
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    Ok, so the results are in.....the MRI showed...

    Ok, so the results are in.....the MRI showed abnormalities in th right frontal lobe. They listed MS, possible strokes, inflamed blood vessels, and the one that really bothers "dementia". Any...
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    Eli...did they say it was a seizure? My first...

    Eli...did they say it was a seizure? My first seizue was about 11 yrs ago. I was in a car accident. I didn't become aware of anything until I was at the hospital in the ambulance. I'll get the...
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    Had my MRI yesterday, will get results on Monday....

    Had my MRI yesterday, will get results on Monday. Think good thoughts.
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    I've had a couple seizures recently...they were...

    I've had a couple seizures recently...they were very strange...I simply lost time. On my daughters birthday, I had a strong aura.. I put the candles on the cake, she was opening her gifts...the next...
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    Cerebal Lupus

    My Doctor thinks I may have Cerebral Lupus. I'm scheduled for a MRI this Wednesday. Does anyone know of this form of lupus?
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    Well, I had another flare a week ago...but of...

    Well, I had another flare a week ago...but of course it was on a weekend, and I wasnt able to see the rheumy because it was on the weekend. I need for the rheumy to see my rash/inflamed area for...
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    Hi everyone...just a note to check in...I havent...

    Hi everyone...just a note to check in...I havent had a flare since Sept. 1st. I'm not sure if it is the shot my pc gave me, or if I'm just lucky. Saw the rhuemy again last week. He still thinks I...
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    ...Thanks to all of you for your concern...I'm...

    ...Thanks to all of you for your concern...I'm having an unusually GOOD day today... it's kind of scary.:yes:
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    Danica...I'm not on anything for the fm...I take...

    Danica...I'm not on anything for the fm...I take plaquinil and imuran(sp), plus cymbalto and trazadone to help me sleep. One thing I have noticed since I started having flares 3 years ago...in the...
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    sleep...whats that...After I take my meds, I...

    sleep...whats that...After I take my meds, I should sleep ok. I'm having the night sweats right now...I think it's from the fever my body is fighting. :sleepy:
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    I just posted "lupus or fibromyalgia" in Laura...

    I just posted "lupus or fibromyalgia" in Laura lounge...and the rheumy said to only come back and see him early if I develop a butterfly rash or sores in my mouth...I've never had those...
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    Well I had a really bad flare today. The rash...

    Well I had a really bad flare today. The rash came on my thigh and buttocks, and I had 102.3 temp. Not to mention, I have pain throughout my body. I went to my pcp today, and cried like a baby. ...
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    Thanks everyone for your thoughts and input. ...

    Thanks everyone for your thoughts and input. I've been reading about fibro and I definitely has most if not all the symptoms...even more than the lupus symptoms. I'm wondering if I have both. My...
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    Lupus or Fibromyalgia?????

    Well, I finally went to a Rheumotologist after being treated for lupus for the past 2 1/2 years. After telling the Rheumotologist all my symptons, he says he's not convinced I have Lupus. He said I...
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    I often forget whether I washed my hair in the...

    I often forget whether I washed my hair in the shower...so I'm sure I've washed my hair twice on numerous occassions. I drive my husband crazy. When I go to the grocery store ... which is 2 minutes...
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    Glad I never started

    Interesting reading, makes me glad i never started. My mother died from emphasema(sp?), I swore I'd never start. Respiratory problems run on my mothers side of the family. Thanks for reinforcing...
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    I've been taking placquinil for a couple...

    I've been taking placquinil for a couple years...400 mg per day....I was taking 600 mg per day for about 6 months...then tapered back to 400mg. So far I havent had stomach problems from it...it's...
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    So, how did your appointment go. I know exactly...

    So, how did your appointment go. I know exactly what you are talking about. I don't think I know what it is like to feel normal anymore. I hurt all the time, and it's very irritating.
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    Thanks Angiefaye for letting me know I'm not the...

    Thanks Angiefaye for letting me know I'm not the only one. It's just the strangest feeling. someone can pat me on the shoulder or hug me, and it feels like my whole body is bruised...I guess...
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    Prednisone, and I weird or what?

    :wacko:I'm on a regimen of prednisone...my doc calls it my "rescue" drug. I'm taking 40 mg a day for 3 days...30mg a day for 3 days...and so on until I'm done. This time and the last time I took...
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    Sticky: I discovered I was sensitive to sulfa drugs back...

    I discovered I was sensitive to sulfa drugs back in college (nearly 20 years ago), yet I was just diagnosed with lupus 2 years ago.....this is just one more thing that says hmmm, I think I've had...
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    Hey, all...thanks for your thoughts and prayers. ...

    Hey, all...thanks for your thoughts and prayers. We went to visit my Aunt today. She looks a lot better. She was hopeing to come home tomorrow, but the doctor wants her to stay in a couple more...
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    Thank you both for your prayers...I've stayed...

    Thank you both for your prayers...I've stayed home today to catch up on rest...and yes I did go into a flare...I know it's from exhaustion. My Uncle said my aunt is doing much better now that they...
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