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  1. Thread: hip x-ray

    by Teresa
    Replies
    6
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    1,513

    Thank you

    Thank you both for the information.
  2. Replies
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    998

    Very Interesting. I have 9 of 14, currently. ...

    Very Interesting. I have 9 of 14, currently. Have had 11 of 14.
  3. My family doctor when I was a kid used to say to...

    My family doctor when I was a kid used to say to get lots of B vitamins to avoid mosquitos. I don't know if it helps or not I never tried it. I have a sister that believes that eating green beans...
  4. Thread: hip x-ray

    by Teresa
    Replies
    6
    Views
    1,513

    hip x-ray

    I have been having hip pain for many years but it has been increasing so much that mast days I can hardly stand and sit. The Doctor had me get an x-ray. The results are svascular necrosis. I...
  5. Thread: Headaches

    by Teresa
    Replies
    7
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    1,235

    I too get headaches, but mine came with the...

    I too get headaches, but mine came with the lupus. The Doctor calls the lupus migraines. I call them something else :evil: . Mine last till I wake and then they are usually gone, but I get them...
  6. Thread: mouth sores

    by Teresa
    Replies
    7
    Views
    1,570

    Welcome. I get the ulcers but have never had...

    Welcome.
    I get the ulcers but have never had thrush though the Doctor always asks. My ulcers usually last 3-7 days and are usually not painful but they have been. Wish I had advice. Anyway hope...
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    713

    Thank you Saysusie and Marycain

    Thank you both for replying. I live in Shingletown Ca, 50 miles east of Redding CA. Way Northern Ca.

    I am trying the tylenol migraines. My ins. is sending me a new providers list and I'll try...
  8. Replies
    3
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    713

    Having trouble finding good GP

    Ok here goes. The closest rheumy is 50 miles away and an ass. On my second visit he told my husband I was a hysterical female and needed medicated (which he did with an antidepressant that kept me...
  9. Replies
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    3,248

    thank you

    Thank you for being so strong for all of us and just being there when we need you.
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    701

    I have to say that gave me a laugh. :lol: ...

    I have to say that gave me a laugh. :lol: Though I'm really sorry about your lips. :cry:
    I went to a doctor once because of sores on my lips, he gave me an Rx for it ( or so I thought). At...
  11. I have lupus and raynaurds too and yes I get a...

    I have lupus and raynaurds too and yes I get a cold nose, ears, fingers, and toes. In the spring, summer, fall and winter. The doc says to wear wool socks and gloves. I say try that in the summer...
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    I don't know much about this but think you'd have...

    I don't know much about this but think you'd have better time getting disablilty from your employer that social security. It took me 6 years to get ss. and I have to have a ss doc rexamine me...
  13. Replies
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    Hi: Just wanted to say I've been there too. ...

    Hi: Just wanted to say I've been there too. Even after 7 yrs from my diagnosis I still have really bad days. I went to the Doctor on the first. I havent had a good day since. The trip takes its...
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    Just wanted to welcome you. I'm new too and just...

    Just wanted to welcome you. I'm new too and just love this site. I have been trying to read all the old posts to catch up. Anyway glad you found us and wishing you the best.
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    Good blood work but same symptons

    Lately I have had good blood work, but I still have rashes, fatigue, insomnia, numbness, tingling, muclepain, joint pain, I can't grip well, and I stumble a lot. But because of the good blood work...
  16. Replies
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    Hi Kathy, I felt the same as you. You find out...

    Hi Kathy,
    I felt the same as you. You find out who really "gets it" and who doesn't. I used to walk daily (4miles), and hike on the weekends 18 mile days, I was so active. I worked full time, and...
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    Thanks for the in put. No, I am not on...

    Thanks for the in put.
    No, I am not on prednisone, at least not right now. I see the lupus specialist in two weeks, so I'll talk to him about it.
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    Lupus or premenopose?

    I have been perspiring a lot, it is summer and hot, but it's more than that. I know that waking up with the bedding damp is premenopose but how about during the day? I'm not getting hot flashes...
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    Thanks to all of you

    I want to say THANK YOU for all the information and comfort this web site has brought me. Before I found all of you I felt alone and lost. Just reading our posts lets me know I'm not alone with is...
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    All of these posts are my life, very funny! I...

    All of these posts are my life, very funny! I have always thought that I was the only one. At least thats how I feel when I tell people the crazy things I do, they look at me like whats wrong with...
  21. Replies
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    I'm so sorry your feeling bad. I remember when I...

    I'm so sorry your feeling bad. I remember when I was first diagnosed I thought my world was coming to an end. I had two boys who needed their mom. The depression was so great to just took over...
  22. I too like others had tremendous hair loss. My...

    I too like others had tremendous hair loss. My Dr hear at UCSF said that they have had good results with cancer patients taking high doses of B -complex. So a few years ago I started taking a super...
  23. Thread: Brand New

    by Teresa
    Replies
    4
    Views
    907

    You are lucky to live in such a big area. The...

    You are lucky to live in such a big area. The lupus foundation is in LA try Lupus.org. When I was diagnosed my primary care doctor said too bad you don't live in LA, they have lots of support...
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    New member looking for friends

    I was diagnosed with SLE over 6 years ago. I currently have Lupus, Raynauds, fibromyalgia, chronic fatrigue and lots of bursitis. It took me over 5 years to get SSDI, though it has a provision...
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