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    Rheumie troubles....

    At my last appt. I kinda lost it, my doc is more the Doctor/Scientist type and I prefer warm fuzzies. I've been with her since Sept. of last year.

    Anyway, I feel like she is cold and too focused...
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    Me too.

    What I notice is that the pain starts in my fingers and toes, and if not controlled goes into the hands and feet, then to wrists/ankles, then the elbows/knees.

    I have also said to friends that it...
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    I don't want to take Prednisone...

    but my rheumie says I should try it. I don't want to gain weight and get a moon face. I am vain, sorry. Any advice?
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    Hi

    I notice that wearing off effect too.... I'm on pills.
  5. Thanks guys.

    I am in Arizona. Southern Arizona. I have heard great things about another rhuemie but she is an hour away and I would prefer not to drive that all the time. But, I need a good doc.
  6. Thanks

    I guess that is what I need to do. I just feel so crappy and went in there so weak, and I just felt like an idiot.
  7. Really bad rheumie appointment and I don't know what to do..

    To give you a little background on me I was the kid who was always sick, had strep throat like 6 times one school year. Suffered infertility for years, finally attributed that to endometriosis for...
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    Hi

    I started on Plaquenil back in September, along with Relafen (anti-inflammatory) and I noticed no major symptoms or side effects from the drugs until I added methotrexate. The meth makes me very...
  9. another reminder..

    And keep in mind ladies there are other ways to have children. Adoption and fostering are two options. I have a friend with lupus who was able to have one baby and adopted a second.

    I struggled...
  10. Thanks.

    Thanks Sonya, you sound like me. I totally related to your comment that it seems like you forget to grab onto things. I experience that too.

    I still cook but I find when I am loosely following a...
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    Yikes.

    Menstrual pain with no meds is no fun. I would ask about using Evening Primrose Oil, it's OTC but not a med. It has helped some women with the severity of their cramps.

    The other thing is to talk...
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    Thanks

    Thanks all. Laura, I think a massager will be okay. I had two hour long intense massages about 4 days apart.

    I think I'll stick to the lighter massages and reflexology after this. Thanks!!!
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    Hi

    Congrats!!! Enjoy the good news.
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    Hi

    Please make sure you are seeing a reproductive endocrinologist and not an OB/GYN. RE's are far better qualified to help those of us with difficult cases.
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    Does massage cause flares?

    I am still learning what causes flares, and I have really struggled this week. I had a massage at the end of last week and one on Monday. Could this have done it?
  16. Hi

    I know people who have been told this. I was dxed after having my twins in 2000. I can tell you that my health has SUCKED since then and I think the pregnancy was WAY too hard on my body.

    There...
  17. Thread: hysterectomy

    by Milagro
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    Your energy will be gone for 6 weeks. I tried to...

    Your energy will be gone for 6 weeks. I tried to go back to work PT after 3 weeks and it was VERY hard.
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    I had taken prednisone previously and did not...

    I had taken prednisone previously and did not like it, when I started seeing a rheumie for probable lupus, I told her I wouldn't take the pred., and she put me on plaquinil and relafen and then later...
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    TD, I can relate to it sucking to be in your...

    TD,

    I can relate to it sucking to be in your body. I feel the same sometimes. Tomatoes don't seem to bother me. But I don't get the sores, at least not yet. ;)
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    I too am on MTX pills and get some strange...

    I too am on MTX pills and get some strange chills. I don't get the shaking but I do get VERY cold and can't get warm. I take the pills Friday nights and I generally have fatigue the next day and NO...
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    TraceyDawn can you tell me about why you cut...

    TraceyDawn can you tell me about why you cut tomatoes? I too have been noticing that I feel better when I don't eat red meat, and even chicken isn't always appealing to me. I have cut much of the...
  22. Thread: Cold Weather

    by Milagro
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    the cold

    the cold makes me hurt more when I live in it, but when I have visited other cities that are cold, the new 'atmosphere' seems to make me feel better during my visit.
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    Hi

    Ho much trazadone do you take? I have been on it for about 3-4 years and am rx'ed 150 mgs. At one point I was taking 250-300 mgs! Now I am down to 1/4 to 1/2 a 50 mg tablet.
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    There's an anti-inflammatory diet that

    Dr. Weil uses on his website. You have to pay like $3 a month to access the part of the site that has the info.
  25. Thread: Mycelex?

    by Milagro
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    Ganesha...

    I am fairly new here and noticed your bio at the end of your post. I'm intrigued by your use of medical marijuana. I have never met anyone who is doing this. What form do you use and do you find it...
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