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Type: Posts; User: Derrie

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  1. Thread: My finger tips?

    by Derrie
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    3
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    169

    You may also want to look into chilblains as a...

    You may also want to look into chilblains as a possible explanation.
  2. I had nausea when I started taking Plaquenil, but...

    I had nausea when I started taking Plaquenil, but now I've been on it for over a year, and it gives me zero troubles. However, the first few weeks I was on it were pretty unpleasant. Here are my...
  3. Thread: Cellulite

    by Derrie
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    221

    Some people are genetically predisposed to have...

    Some people are genetically predisposed to have cellulite. I'm thin and have cellulite-- always have. So it goes.
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    When you say "change color"-- what color do they...

    When you say "change color"-- what color do they change to? My hands, feet, and knees turn mottled purple regularly. It's a livedo reticularis thing, and my doctor said it goes along with the...
  5. I am sorry the Plaquenil is making you sick, but...

    I am sorry the Plaquenil is making you sick, but give it a chance! Plaquenil is one of the first, best drugs we can take to get our immune system under control, though you need to be on it for a few...
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    Yes, I think it is safe to say that everyone on...

    Yes, I think it is safe to say that everyone on this board has experienced frustration with a doctor's visit at some point.

    But mainly I wanted to respond to your question about UCTD (this is a...
  7. I was very interested in the part where they...

    I was very interested in the part where they talked about maybe one day developing a version of Plaquenil that does not cause retinal toxicity. Wouldn't it be awesome if they could get rid of the...
  8. Why Your Plaquenil is Even More Awesome than You Thought

    This is a great article summarizing the latest research on Plaquenil (hydroxychloroquine) and the benefits it has for people with lupus.

    Read the whole thing here:...
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    Heads Up -- Injectable Methotrexate RECALL

    For anyone who uses injectable methotrexate, there has been a recall on some vials: http://www.fda.gov/Safety/MedWatch/SafetyInformation/SafetyAlertsforHumanMedicalProducts/ucm353266.htm
    ...
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    Going off Plaquenil can often trigger a flare,...

    Going off Plaquenil can often trigger a flare, putting you back in a bad place. Feeling good while on Plaquenil is generally a sign that the Plaquenil is doing its job-- keeping your autoimmunity at...
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    That is awesome!

    That is awesome!
  12. Thread: New member

    by Derrie
    Replies
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    131

    Timely that you posted this... I just got back...

    Timely that you posted this... I just got back from a trip visiting my rheumatologist specialists at a teaching hospital, who I go see every six months. I've had a handful of strange symptoms show...
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    Well then. I officially declare myself WHL's...

    Well then. I officially declare myself WHL's resident quasi-expert on erythromelalgia. ;)
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    I hope the test is helpful, too! Let us know how...

    I hope the test is helpful, too! Let us know how it goes.
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    An EMG is not horrible, but it's definitely not...

    An EMG is not horrible, but it's definitely not fun. You'll be in a room with a nurse and a doctor, and the doctor will test the responsiveness of your nerves and muscles to electrical currents. ...
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    At a minimum, bring all your test results-- blood...

    At a minimum, bring all your test results-- blood work, and reports from biopsies, CT scans, ultrasounds, MRIs, etc. Also bring a list of your current medications and a list of medications you have...
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    Erythromelalgia / Erythermalgia

    Has any here been diagnosed with erythromelalgia secondary to their autoimmune disease (also called "erythermalgia")? I was just diagnosed with this (they still haven't figured out what my AI...
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    Okay, Nonna, I'll do it if you do it! ...

    Okay, Nonna, I'll do it if you do it!

    (Endoscopy solidarity!)
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    Tell me about your upper endoscopy

    Hi, y'all. So, I keep gaining new, weird symptoms without getting a magic symptom that will finally reveal the identity of whatever my autoimmune disease is. The latest is some reflux and/or...
  20. Thread: Toe Raynaud's

    by Derrie
    Replies
    13
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    1,114

    Ritz, that is awesome advice regarding keeping...

    Ritz, that is awesome advice regarding keeping your whole body warm. My toes are blue almost all the time, so I tried putting a heating pad to warm my feet under my desk. And yet, even though my...
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    May I be the first to say, WOOT!

    May I be the first to say, WOOT!
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    Both illness and medication can knock your...

    Both illness and medication can knock your menstrual cycle out of whack. Before I got ill, my cycle was basically a clockwork 28 days. Now I can go anywhere from 25 to 39 days between cycles. My...
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    Seriously, people. What on earth good does it do...

    Seriously, people. What on earth good does it do to abuse the moderators, who so selflessly donate -- DONATE, they do not get paid -- considerable time and efforts, despite dealing with their own...
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    C'mon I can't be the only one who has fun with...

    C'mon I can't be the only one who has fun with math... ;)
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    Hugs. I know break ups are hard. I used to be...

    Hugs. I know break ups are hard. I used to be married, and my husband and I had a lovely little house, and... I had to move out and live in a sketchy one-room studio. So emotional and practical...
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