wanted to share my story...
Although I am not newly diagnosed, a friend at work found this website and recommended it to me, so I thought I'd poke around. To Cass, the worst thing you can do for yourself is worry about how you're going to live your life now. I am 24, and I was first unofficially diagnosed by my pediatrician at 11. My symptoms have peaks and valleys...I have good years and bad years...I won't get into my life story right now, but here are some things that have helped me:
(1) Yoga. It has AMAZING benefits. If you want to know more, please ask. I could talk about it forever and don't want to bore those who aren't interested.
(2) Eat healthy, drink lots of water, walk a lot, and make sure you get enough rest. I can't stress these enough. My bad days are a lot worse (and a lot more frequent) when I'm lacking in one of the above.
(3) Like hatlady said, please wear sunscreen. I ignored this one for a long time, and the sun has made me VERY ill in the past. You can have a normal and safe life in the sun if you wear sunscreen (I've been to Israel twice and did not get sick either time).
(4) Know that you're not alone, and try not to dwell on the negatives. Yes, it's unfair. And yes, it's difficult. But we can either hate everyone for not understanding and not having to deal with the same things we do, or we can love ourselves, take care of ourselves, and enjoy our lives. I find a lot more joy and appreciation in things (like waking up and feeling good) than I think I would otherwise. That doesn't mean I don't have bad days, they are aplenty. But I know that when I'm conscious of my attitude it makes things a little easier. I wish I would have had a forum like this when I was first diagnosed.
Anyway, back to work for me now...please do not hesitate to ask me questions or anything, I'm more than happy to share.
I honor all of you...have a :D day