I'm still waiting for my diagnosis....
Hello all, I don't have a lupus diagnosis yet, but I have many symptoms with conflicting test results. I have had a large rash on my right hip for nearly two years. My family doctor treated it with anti-fungal creams for a year than referred me to a dermatologist. She told me she thought it looked like a lupus rash. My other symptoms are fatigue, joint pain, blood in my urine for over two years, difficulty sleeping, and other things I don't know if they are related to lupus. I am 51 years old, ANA tests was 1:640 homogeneous, ENA negative and DNA negative. My first skin biopsy was positive for a "broad spectrum of connective tissue disorders" and I don't have the second biopsy results back yet. Tomorrow I am going to get an ultrasound on my kidneys. I have only seen my family doctor and the dermatologist. The dermatologist said we would retest in 6 months and then if needed refer me to a rheumatologist. I am tired of feeling like a hypochondriac! Is it possible to have lupus but not have a positive ENA? Thank you in advance for answering my questions.
Wendy in SC
Thanks for your encouragement Sue
I'm sorry that I haven't gotten back to thank you for your post the other day. My mother-in-law was discharged from the hospital and went to her doctor's appointment and ended up back in the ER on Friday. She actually was in the ER until Saturday night when they finally put her in a room. I had my ultrasound on my kidneys on Friday and will find out the results later this week. I wish when I first developed the rash and lost 35 pounds that I had gone to see a rheumatologist then. Maybe I would know by now what is going on. Sue, I never thought that a doctor would give a diagnosis of lupus without the blood work, what a kind per he/she must be. Thank you for your encouraging words.