Thanks for the info! You said earlier that you had met your current girlfriend after you were diagnosed, I was curious where you went to meet people. I live in a very small town surrounded by other small towns, so there aren't a lot of things to do around here even if I could. I have been on a leave of absence from work for the past two years, and I know it was something I had to do but I miss work. I mostly miss the interaction with my co-workers. I am a Correctional Officer and I really kept working for a long time after I should have been, I couldn't keep up. I was probably putting myself and others in danger trying to keep doing it which is why I finally let the doctors talk me into going on leave. So, not working I don't do much, and the little I do is usually right here on the property. I keep in touch with some of my friends at work, but I can't go do the things with them we used to do. One night right before I went on leave I went to a UFC fight with some of the guys from work,and we walked up a lot of stairs. While we watched the fight I started to swell and run a fever, I tried to pretend it wasn't happening but by the time the fight was over one of my buddies had to carry me all the way back to the car, I was so embarrased. He was a real sweatheart about it, but I am just learning to take help from others and I wasn't very gracious about it. I figured that would be all over work, but none of them ever said anything to anyone about it. Anyway, I am rambling, but from the tone of things you are the guy to ask for advice.
Hi Heather! Welcome to WHL. We are so glad that you found us. I am one of those still undiagnosed people that keep fighting to find someone who will diagnose me! This site is wonderful and the people here are the best around. This is a great place to vent because we all understand what you are going through. Please let me know if you ever need a shoulder.
I live in Texas and I am so ready for the cold! Although the cold weather hurts my bones the heat is much worse! Like you I can bundle up when it is cold but I can only take so much off. My skin doesn't do well in the sun so usually I am indoors during the warm months.
I look forward to getting to know you
Hi Xani's Mom;
I am Saysusie, the other moderator for this site (which was formed in memory of my daughter, Lauri). I am a bit late in welcoming you, but I see that you have been warmly welcomed by several of our members and you have been given some excellent advice.
You will find that this place is filled with the most caring, understanding, and informative people on the web and you are never alone when you are here with us.
This disease can be a lonely one and can make you feel alienated. It is hard to make our friends and family understand how this disease affects us. Many times, we can feel as if we are completely alone and totally misunderstood. However, as Marla, Rob, Tgal, and Terri have shown and said, it is very possible to have a fulfilling life with this disease and there is always hope. We are here, in part, to continue to give you hope. We do that by giving you useful, truthful, and helpful information and advice; by letting you know that we understand and that we truly care, and by never judging you or devaluing anything that you say.
I do hope that you make friends here and that you know that you are valuable to us! Again....welcome :-)
Peace and Blessings
I am sure someone has already suggested this, but have you tried an immunologist or an endocronologist. Actually I have found the specialist doesn't even really matter what you have to do is keep asking to see diff doctors until you find one you believes in you completely and wants to help. A lot of dr will give you a diagnosis of fibromyalgia just to shut you up. Doctors who don't even believe in fibromyalgia will do this. I believe whole heartedly in fms, but I also believe that there is almost always another underlying condition that is causing the FMS, and can usually be treated more effectively. I don't know much except we have to fight the health care system for our own well being, and never give up until you have a diagnosis that makes sense.
Hope to get to know you well, I have already become very fond of WHL!
I'm glad that you found this site. The people here are the greatest and have ALWAYS been willing to help me with problems or questions. My advice is to jump right in and make yourself to home. There's lots of information,and people that know exactly what you are going through.
As for friends I explain to them that I have limitations on what I can do and when I feel like doing it. You'd be surprised how people will offer their support and assistance. The spoon theory will help you tell them what its like. Type this in your search bar. The Spoon Theory written by Christine Miserandino
Its great to help describe that you cannot do things like someone with out illness can.
Hope this helps. Welcome you are among friends here! Billie