Tgal; I am glad that this was helpful to you and I understand you being a bit pissed off. Having both conditions is something that should not be ignored and it just irks me, to no end, that so many doctors won't even acknowledge that this is a problem and that it can affect our way of life.
I do hope that you confront your doctor with this information, once your other issues have been resolved, and that you insist that he/she take appropriate steps to provide treatment for you.
SandyR; Like you, I just cannot understand it either. Are they lazy or do they just not want to deal with this issue? I think that they decide that, if they are dealing with other issues with us, they don't want to have to take the time to run tests and prescribe treatment for other issues. Just because it does not affect their lives doesn't mean that they can ignore the fact that it does affect ours!!
I wish you both the very best :-)
Peace and Blessings
Can't be left out! I average 3-5 in the morning and if it's a bad day 6-7. I have meds from the doctor that you put under your tongue, it melts, you get a bit of relief. If I'm on higher doses of blood thinners, sometimes I appear to be dispensing a facet of blood directly from the nether regions! I've had four colonoscopies and 3 endoscopies. My innards are a mess! But you know what? I'll take this over the pain any day. I feel like I have some control and predictability with this. The pain -- it owns me.
God bless all and keep asking good questions. I've come to believe that Lupus must be like when a computer is struck by lightening. Everything goes crazy and occasionally something will work but mostly the wires are just crossed!
You are so right! I think the doctors don't deal with it b/c they are so limited with specific knowledge only in their specialties and for the most part can't functionaly think outside that box. Is it really so hard for them to see how the gastritis could be related to the reflux or to the inflammation in other systems? I guess it is. I know that before I went looking for my own answers I didn't see that link but now I can't help not to see that link. It's very aggrevating to be passed of from dr to dr for lack of knowledge or interest or whatever it is they can't seem to overcome to deal with us properly. I hope that medical schools here start training our doctors to see us as whole beings with connected systems soon and that each of our specialists will begin to open their eyes minds and practices to the theory of treating the whole being as well.
Originally Posted by Saysusie
Wonderfully said Susie and Sandy! 90% of my dx has been made by me! I have taken the papers to the doctors and said "can you test for this since I have every symptom?" You are absolutely correct abou them being boxed in. "Sorry but that is not what I do". I get so tired of hearing that! I take 11 meds for different symptoms and can't find 1 doctor willing to help put them all together. Almost all of them say "I am sure this is something autoimmune but the test results aren't showing it". Then they ignore half of the other symptoms because it isn't part of their specialty. It is so frustrating!
Well, I guess this is even more reason for us to educate ourselves in order to be our own health advocates; for us to stand up for ourselves and not allow our myriad of specialists to dismiss us!!
I am so happy that we are here for one another in order to help each other do these things for ourselves!!
Peace and Blessings
My next visit to the GP was going to be to ask if I needed a colonoscopy as I've been getting bad intestinal pains before a trip to the loo. I get the bloating also, so I'll ask him about IBS. Very informative thread, thanks all!
Ask him about IBD. IBS is only one disease under IBD. IBD also includes Chron's Disease and Colitis.
Originally Posted by Han
I've never been so pleased to read so much about other peoples bowel movements!!! I have had chronic diarrhea for months. In the past 2 months it has been every day. And like many of you mention it is completely watery. Don't think my partner understands how bad it is because she keeps saying its because I take immodium and block myself up...then it ends up as the runs. I know thats not the case because I try not to take immodium.
I have to take immodium if I have to leave the house (impossible otherwise!)and it helps if I take about 3 tablets, followed by more later in the day. My stomach is bloated and sore and cramping, right from my stomach to my back and very low down too. I have nausea too.
It's been so bad recently that I've stopped eating most of the time. I won't eat all day, but when everyone gets in from work and there's an evening meal I feel like I have to eat. I've thought IBS (although I don't have a dx of fibro, who knows?) or some kind of food intolerance, gluten perhaps? I'm going to the docs about it now. I've started to lose weight which I'm quite enjoying, but i want to go back to work soon and it's not possible unless I fix this (which I will be telling the doctor!) It's more important that I earn money than it is to be thin.
Thankyou everyone for your openess and honesty!
I have been meaning to write a post about this all week and just kept forgetting. The ONLY good thing that came out of me being in the hospital last week is that I found out what this is!!! Not by the doctors, mind you. I found out because I had a nurse that had this same thing and was on medication for it. She said it took her 3 doctors before she found one that cared enough to think this was important!
I don't remember this whole thread and am not up to reading it now but my problem was that I had to have a bowel movement almost instantly after eating. I couldn't eat in a car or be away from a restroom if there was food. I cramped and was so uncomfortable. I would have 5 or 6 bowel movements a day (at least). The name of this condition is Gastric Dumping Syndrome or Rapid Gastric Dumping. It usually happens in people that have had some kind of bypass surgery but can happen to others as well
Here is a bit of info from Wikipedia on the topic.
I had this the first few months that I was taking Plaquenil, but then it seemed that my body got used to it. I do still have to be close to the restroom not long after I've taken my dose of Plaq, but it's usually just once and then I'm good for the day.
I wonder if taking Plaq has anything to do with this?