Linda, a friend of mine's mum has lupus amongst her other autoimmune issues and she said that there are some support groups that she has met with, I think they were through Royal Perth Hospital, but dont quote me on that...brain fog day :)
Hey guys this actually sounds awesome. I know two other from Perth on a FB group that I thinknwould love to come. I think I could really use this at the moment. Could we set a date and time? And if Linda isn't feeling too good the first time I'm sure we'd love to make it a more regular meet? Thanks. Any times or dates soon?
Thanks driver :)
i would like to catch up as well if anyone still comes on this site,
i have lupus now for 16 years and also sjogrens, coeliac, and arthritis
im in perth wa
if you like to message me please feel free,
I am having a bad flare day and browsing thru the net,
I hope you are feeling better,
Hey :) ok I think one of us needs to come up with a date time and place haha. Where a bouts in Perth are you guys, I am Bayswater or Woodvale? Thanks
Debstar, my sister has started planning a meet up on the Lauries Lounge Forum section, the thread is titled 'For all the Sandgropers Keen to Meet Up' or something like that. Lets plan it and meet :) Also the Lupus Group of WA has a meeting come up, look it up on the website and come along :-)
How is your holiday going?
I have just updated the 'Sandgroper' post with date and time (need to decide on a place)
See you soon.