Other Post on Leg Symptoms
So this is my other post about the leg stuff. It started as one of my first real indicators that something wasn't right with me while I was on my way to a diagnosis. It started as a burning type pain and often accompanied by an ache in the tops of both thighs. Slowly over time it spread from my thighs into my lower back & stomach and then down my calves at times and then into my shoulders and arms and back of my neck.
When I got pregnant and all my symptoms went away all this did too. It just started coming back in my thighs/back. Before I was put on neurontin which I stopped along with a lot of other things because of the pregnancy. Not that it helped much before anyway lol I also had many tests done. 2 EMG/nerve studies which were normal, I saw/see a neuro at the same hopsital I see my rheumy who did the pin test and it showed patchy loss of sensation(the poke of the needle)similar to vasculitis. I have NEVER had any weakness associated with my symptoms.
The only other indicator of anything I have had is a slightly elevated CPK ranging from the 100s-300ish. I have been told this is not a high range.
With all that said I dont know what this even is or if anyone has had "peripheral neuropathy type symptoms" without weakness. If so, is there a name for this? Or can it be included within "Autonomic Nervous System Involvement" which I believe I have and have had many other symptoms of.
I would greatly appreciate any stories if you can relate or anyone that might have some information I can look into. Thanks so much. -Britt