new on the lupus block
hi my name is katie and today i have been dx with sero-negative sle with possible renal involvement. i have 5 out of the 11 criteria for clinically diagnosing lupus, yet i don't have a positive ana. my doctor said this is very possible and that i may eventually have a positive ana. can anyone shed some much needed light on this for me? thank you so much... :shock:
Hi Katie :lol:
Welcome to our forum!! We have discussed seronegative lupus a couple of times. In fact, if you go to the "Newly Diagnosed" forum and read my post from 09/09/2004, you will find an explanation of seronegative lupus. The easiest way is to use our search and type in the word "serological". It will show you were the posts on that subject are.
Basically, seronegative means that you have met the diagnostic criteria for Lupus without the serological indicators ( blood tests that detect the presence of antibodies to a particular antigen (for example rheumatoid factor, HIV test).
Let me know if the post helps you in any way. If not, I will do another research for you!
Again...Welcome to our family
Peace and Blessings
THanks Susie, I forget about things like search functions. So a good reminder for all of us! 8)
Welcome Katie, YOu're lucky to find this site so early. It was a couple years after I was diagnosed before I managed to find a couple of wonderful boards - this being one of them.
Hugs, and welcome. :D
You are most welcome, Hatlady :D
Peace and Blessings
I am like you diagnosed sero negative Lupus. I was not taken seriously in my home town and research led me to St Thomas hospital in London where the leading Uk Lupus specialist Dr Graham Hughes works. It took him 20 minutes to diagnosed me with SLE, APS and Sjogrens. I have no antibodies.
If 90% of Lupus sufferers have Positive ANA (to quote Dr Hughes)that means that 10% are sero negative !! But nobody wants to diagnose us.
I was diagnosed may 2003 and have now received ill health retirement from the NHS thanks to Dr Hughes. If you ever want to chat all my links are in my signature.