I've been looking for a new rheumy for the last year. My previous doctor was good on paper, but he was horrible to relate to. I would say 90% of his patients were over 65 and he had no idea how to interact with a 19 year old girl. When I had a horrible time with my prednisone... nausea, depression, night sweats, sleeplessness, headaches, weight gain and mood swings, he brushed them off and said "I'm trying to save your life here." Does anyone else have problems being young and dealing with rheumatologists?
I was wondering if you knew of any sites with ratings for rheumatologists who specialize in Lupus. I was seeing a doctor on campus I really liked, but she left until December. I've been having complications lately and a few hospital trips, so I need to get in soon!
Sorry you have to deal with a Stiff Ole' Fart for a doctor! That really sucks when you are dealing with a disease that you are trying to wrap your head around and gain answers! What state/region city are you in? I have a wonderful doctor who is female, young and responsive or maybe i just scream loud??? Either way you deserve compassion and answers from your doctor not some idiot who feels you should be kissing his a** cause he is trying to save your life..tell him he's not doing a very good job and he needs to try harder! Don't let his age scare you!
sorry kirsten you're going through this. i have a great rheumatologist that i love! he's fairly young and comes highly recommended. he is very personable and is very up to date with technology and treatments. i hope you find one soon that is better than your last. try doing a google search for your area for a lupus specialist. keep in mind most rheumatologists are used to dealing with the elderly, it's rare for us youngins to have such a dreadful disease at such an age. hope you get relief soon.
You just hang in there im sure someone here will help you soon.Ive had my own experiences with Doctors.My old doc preferred dead patients :) and sent me away...ill.So we all understand you.I'll keep a look out on this thread.Im sure someone will recommend a good rheumi for you and soon.xxxxxxxxxxx
you are all so wonderful and comforting! Thank you! I'm from the Phoenix area and have to base my decision on where my insurance, United, is taken.
It's just horrible that I've come to despise doctors during my experiences with Lupus. From my initial misdiagnoses of gout and ant bites among other laughable illnesses to the constant frustration of hospital doctors telling me nothing's wrong with me when clearly something is, I've lost a lot of faith in the medical field. Doctors don't care and they think I'm an idiot. Ugh.
Sorry about the side rant, it's just so frustrating. I'm not a hypochondriac by any means (it actually took me years before I finally sought out help for what I never knew was Lupus) and I hate doctors taking my issues lightly.
But once again, you are all wonderful and I hope all of us will someday not have to deal with this!
Kirsten! it is not in your head and it should not be taken lightly what you feel. Keep pushing forward til you get the help and treatment you need and deserve. I lift you up and I pray for health and remission so you can live the life you want, need and deserve. We are here for you so VENT away! If you need an ear to listen or need someone to be angry with you I am here!!!
Originally Posted by kirsten
At my RheumBA's office it is all gray tops who shuffle across the floor too. I am 48 and I seem to be the youngest.
In the room next door, I hear the old gray headed ladies praise my doctor. Oh, he is so full of himself when he hears that... gleaming, giggling with oh, shucks..while they are thanking him profusely and then there is me. Why? How come? Are you sure? I think I shrivel his ego...
Maybe speak with your doctor and ask for a different medication regime...like one of the steroid sparing drugs....I don't know what you symptoms are, or what your prescription regimen is but has he consider MTX, Cellcept or the like?
thank you both so much! I'm in the midst of finding a new doctor, preferably one that specializes in Lupus in particular, not just rheumatology. It's hard finding the perfect doctor in the right area for the right insurance! I'm still learning how to deal with everything, but i won't lose hope. I have it much easier than most on this website and I realize it. God bless you all!! <3
Hi Kirsten. I'm not a teen, but saw this post about doctor woes and noticed you and I live around the same area! (I just introduced myself in the new members forum.) I laughed because your description of your rheumatologist visit was just like mine! Old fart who didn't give two "you know whats" about me. He basically told me all my symptoms were normal. Well...I just called about my blood results and the lab guy told me I had a positive titer for Anti dsDNA and that is what they use to screen for lupus. My doctor has not called be about this, so screw him! I wanna go talk to someone else about what this means, but have no idea how to find a better doctor...Have you had any luck finding a more caring rheumatologist yet.
I'm 42 and in the same boat as yourself, i've got a crap rheumo i've only seen once but keep pushing on mate and find a good one like you said.
Now i've got a brilliant dermo and if it was'nt for him letting me know about my bloods the rheumo could'nt give a toss.