Hello, I'm a new member from Indonesia!
Hello, I had just diagnosed with lupus SLE in March 2008, so still doesn't know how to control this... I had extreme physical transformation here. I lost my hair and I feel so unattractive now. :shock: I don't recognize myself in front of the mirror anymore...
Can we live normally? working like normal people?
Hi Rob and Kathy,
Thanks for your supportive words... I just don't know yet about Lupus. It is still scary to me and I don't know what else worse could come from this disease. I heard some of the worst stories and hoping that it won't happen to me. I had lost all my life and dreams because of this. I was living by myself in New York City, trying to make it and reach my dreams, when I got lupus and everything just slipped out of my hands. I was in the hospital for a week, treatment fro months, massive hospital bills so I had to go back to Indonesia at the end for not able to support myself and live with my parents again.
I lost my life, work, clients ( I am a graphic designer), left my boyfriend and friends, and just have to forget my dreams all at once.
Well that hurts of course, now I also hesitate because working full time was still a bit too much for me, but I love working and that is important for all of us to be exist and got some money.
How are you all with your job? Thanks :)